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What You Need to Know About Inflammatory Breast Cancer
What You Need to Know About Inflammatory Breast Cancer October 25, 2024 Dr. Filipa Lynce discusses the symptoms and treatment of inflammatory breast cancer. Inflammatory breast cancer is a rare and aggressive type of breast cancer; only about 1% to 5% of all breast cancers diagnosed in the United States are inflammatory.…
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Worried About IBC, But Not Diagnosed
If you are concerned that you may be exhibiting symptoms of Inflammatory Breast Cancer, please post your questions or concerns in our Not Diagnosed But Worried forum. The IBC forum is dedicated to our members who have been diagnosed with, are in treatment for, or have completed treatment for IBC. If you're unsure what IBC…
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IBC lounge: roll call, support and just a good place to hang out
Hey all, I am starting this thread to give us a place to meet up and check in. We all know this "ain't Facebook" and since some of us have left the boards recently let's have a roll call and start fresh here. Some of the "IBC ladies" and other threads have gone a bit untended so let's see who we are: I'll go first: dx June…
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Post Mastectomy Peau d'orange - IBC Concern and Questions...
I had a mastectomy in October 2023 following a DCIS diagnosis. It is now Feb 2024 and my swelling has not subsided. Despite asking why my swelling had not gone down and being told by my plastic surgeon that there was no cause for concern, my gut told me to cancel my final reconstruction surgery and demand a look at my…
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what else could it be beside IBC
Trying to remain positive… Noticed a new sensation near my old cancer site, more so around my lumpectomy. I noticed it a week ago and them this morning I wake up to an irregular dime size light red spot. It's not raised and does not itch. Everything I read says ibc. I have a call into my oncologist, any thoughts and words…
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Scared of IBC
hi, I’m a 29 year old mama of 2! Recently I noticed a red (about the size of a quarter) rash close to my nipple. I was put on cream for a week and it hasn’t helped at all. My Dr has referred me for an ultrasound, they won’t do a mammogram because I’m younger than 30. I have a 3 week wait for my ultrasound and my nerves are…
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Worried about IBC
9Hi all, I am very concerned about my right breast. It all started around Christmas. I had a furuncle under my breast wich was annoying me. And foolish me tought its a wise idea to put a needle in the furuncle. After some week or two it seems the skin got infected. It was inflamed and i had this peau d'orange skin. I…
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13 yrs ago Aug 8
Hi! Haven't been around for a while - some may remember me from a while ago. I was DX'd with IBC ( Inflammatory Breast Cancer ) 13 yrs ago on Aug, 8 ,2009. Just wanted say I'm still 'around' living and loving' every minute of life!
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Inflammatory Breast Cancer symptoms after mastectomy?
hello all. I was diagnosed with IDC with micropapillary features back in 2017 and had double mastectomy with no reconstruction in January 2018. I was on Tamoxifen for a year and have had no other treatment. Back in April this year I had a bump come up on my mastectomy scar of my affected breast side. After a few days it…
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IBC Breast looking "angry" after 1st Taxol Infusion
Hi Friends, New here - Mom of 3 diagnosed with IBC around the holidays last year- Stage IV with mets to my spine. Finished 4 dose dense AC three weeks ago and started Taxol last week. While on AC my sick booby got a little angry looking but stayed in checked and even looked a little better. Unfortunately, I just had my…
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IBC question
I had a lumpectomy one year ago for IDC. No chemo but radiation after surgery. I just developed a ver hard, reddened, swollen breast on the same side. Saw my surgeon and am on antibiotics, with mammo and ultrasound scheduled. When I see pics of inflammatory breast cancer, it looks like my breast. Trying not to freak, but a…
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IBC specialist in San Francisco area
I’ve been diagnosed with IDC and am no wondering whether I have IBC as well. Does anyone know of IBC specialists in San Francisco I can consult with? Thanks
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I've been in remission for nearly 12 years!
I logged in tonight for the first time in quite a few years. Just wanted to say that I have been in remission for almost 12 years after my IBC diagnosis. And it was not my first breast cancer diagnosis. I was diagnosed with IBC while I was in the middle of treatment for my first diagnosis (IDC/DCIS). (More details in my…
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Inflammatory BC - Triple neg - chemo, rad then surgery
Breast minimal response to chemo 4 rounds AC then 4 rounds T. I started radiation on 1/25/21 MO will add 1x wily chemo cisplatin on 2/8/21. I will have a total of 33 rad treatments 6,5 weeks. Just finished 2 weeks rads using miaderm 4x daily.. Breast size hasn't changed much - skin surface thick, red , swollen and I still…
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IBC Symptoms
Hi everyone I'm not quite sure why I'm here, but I'm here because I do have concerns. I had a red pimple like thing on my breast and so I took a photo of it and that's when I noticed what couldn't be seen by the naked eye and on both breasts ...they look like indentions. P.S. The pimple like thing is fading away now and…
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Radiation for IBC
I am getting ready to start radiation soon, and was wondering if anyone who also had IBC would share their experience with radiation. My understanding after my RO consult is that the treatment is not the same as for typical breast cancer.
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Breast cancer vaccine in trials!!!!
So the reason our bodies can't fight cancer is because they have no ways to recognize it. But with the vaccine (mRNA) our bodies will be able to recognize and fight it off. Hopefully within the next 10 years because it's already in human trials. It started them a few months ago for triple negative. I can't link but just…
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Triple Negative IBC and Adjuvant Hormonal/Systemic Therapy
I am being treated as triple negative IBC even though I do have a 12% PR, making me ER-/PR+/HER2-. I understand that there are not many treatments specific to my cancer's hormonal makeup so TN was my designation. Of course as far as tri-modal treatment for IBC, it's a moot point; everyone gets the same…
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AI
Hello: Has someone been on the AI Letrozole/Femora for 10+ years? Were you told that you must take a short break from Letrozole?
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Not diagnosed, but really scared!
Hi, I'm breastfeeding and I'm 22. The last couple of days I noticed red streaks across the top of my left breast. No other symptoms. The doctor doesn't think it's mastitis but gave me antibiotics anyways. Of course I googled it and IBC came up. Now I'm so afraid I have it. I have to go back to the doctor in a few days if…
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Treatment Centers
Hi everyone, I am a single mom of 3. I live outside of PhillyI just discovered my bruise this weekend when I bent over and got the sharpest shooting pain in my breast. I then found the bruise n he ide of my breast. It is already so much sore than it was the other day.
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Not Where I Wanted To Be, But Here I Am
I posted a thread in the "Just Diagnosed" section, but I feel it is time to move to the IBC forum. :( I'm sure all of you diagnosed with IBC have had the same feelings I'm experiencing today. So far I'm diagnosed with IDC with a lymph node involvement, but have been assigned to the IBC "team" at MD Anderson in Houston. To…
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IBC-TN addtl chemo + cisplatin + radiation. to
what drug should be given with cisplatin and radiation to kill more cancer cells and keep them from growing back - I read this but I don't completely understand...how it applies to inflammatory breast cancer - triple negative. Does anyone have any insight they can shsre Science News from research organizations Drug makes…
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IBC TN diagnosed 9/14/20 - misdiagnosed
I was misdiagnosed during covid19 for a small dog scratch infection for two months. I am 59 years old and worried. Husband not doing well with diagnosis. His father died of cancer 56 and he survived testicular cancer at age 30. Delays due to covid19 - I was finally seen and given amoxicillin clavid. I kept my annual…
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IBC? Or coincidental symptoms?
Hello, I am so worried...my head is spinning. About me: 40 yrs old; mom of adorable 4 year old; feeling great! ...until this History: Breast cancer runs all throughout my maternal line; I see a breast specialist regularly because I am so high risk. Have had a few roller coaster rides...lumps, biopsies, aspirations... Never…
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is it neuropathy or brain mets? FACE NUMB
Hi all, I was diagnosed with IBC in August 2010. I was treated with 6 months of chemo, followed by a double mastectomy, followed by 6 weeks of recuperation and then 6 1/2 weeks of radiation. So far, no lymphedema! But...I did develop neuropathy. At first I had no idea what was wrong with my feet. They just hurt every time…
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Peau dorange pics. Is this what it looks like?
If anyone can tell me if this is what peau d'orange looks like I would appreciate it. Thanks...and if this doesn't work, sorry I'm still trying to figure out the pic posting process. " mce_src=" " alt="Peau d'orange?" border="" hspace="" vspace="" width="" height="" align="" /> " mce_src="" alt="" border="" hspace=""…
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IBC DIAGNOSED, LETS SHARE OUR STORIES!
I would love it if all who have been diagnosed with Inflammatory breast cancer would share their story. Because this form of breast cancer is rare, please post your process of being diagnosed. Also tell us when you were diagnosed, what treatments you have had, and how you are currently doing. I know when I have read about…
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What were your symptoms of IBC?
And please forgive me if this is the wrong forum :) I'm just curious as to what your story was. Thanks
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Red Patch on side of breast, looks like bruise but not
Hi, I have a quarter size red blotch on the left side of my breast......looks like a blotch because it's not a perfect circle. Almost looks like a bruise, but never started out blue, started out dark red, with different tones of red. It's been a week now, and is a bit lighter in color/tone........more like a darker pink.…
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How fast does IBC grow?
My Mom is 66 years old, she started with right breast pain about 2 months ago, and she had a mammogram and an ultrasound which confirmed that she had a lump in her breast and 2 more in her shoulder. Within the past 2 months she went from pain in her breast to an inflamed breast which was red and warm around the nipples to…
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Diagnosed with IBC
HI everyone- I just recently got diagnosed with IBC stage III on 12/17/15. I stumbled across this site in 12/12/15 and looked up the symptoms I was having. Had it not been for this site I would have just taken my PCP's word and antibiotics. I am glad I found this site. Ready to start this journey!