Just diagnosed - IDC no special type w/DCIS Grade 2
I had a mammo & Ultrasound 6/4- BIRADS 5 - masses and calcifications, left @ 9:00 and 12:00
Needle Core Biopsies 6/10. Confirmed IDC grade 2, nuclear grade high, solid and cribriform, necrosis present, E cadherin present. 2 lymph nodes tested (axilla and supraclavicular) both negative.
MRI 6/18: confluent mass and non-mass enhancement encompassing both biopsy sites 12:00 and 9:00 -- Total extent: 11.0 x 2.8 x 2.6 cm and involving the left nipple.
Now.. I meet with oncology and surgery on Tuesday, 6/22. They'll do bloods such then and I suppose I'll get more info then?
Anyway, I started having a flaky, bleeding left nipple around March of 2020 that wouldn't heal. I went to my PCP and told her that I'm really worried about this. I have a history of abnormal but non-tested suspicious mammos on left. She referred me to a breast specialist in May 2020. I told her that I feel like my nipple is dying. She did a punch biopsy of the nipple in office that same day and it came back negative. She told me to use cortisone. Fast forward to May 2021, my nipple never healed and has continued to look worse and worse. I went back to that breast specialist. She prescribed me RX cortisone and referred me to a dermatologist.
I had my annual mammogram scheduled anyway, so I scheduled that for 6/4 above and -- you know the rest.
Now... the cancer I have that involves the nipple seems to be pretty large by those measurements provided on my MRI report.
Turns out, that the surgeon used by our local cancer center is this same breast specialist who twice told me to use cortisone to cure my nipple.
I am really struggling at the idea of sitting across from her in an office on Tuesday and having her deliver her opinion or expertise on how I should proceed with my treatment. Does anyone have words of wisdom or some alternative perspective that can help me stay open minded and hear whatever it is she has to tell me on Tuesday?
I really appreciate your advice. I've looked at several posts in the community and so many of you have similar initial diagnosis and/or stories. Your experience is truly meaningful to me!!
Thanks in advance.