Remission for stage 4 - SUV levels
Hello everyone- while I have been reading these boards daily, this is my first post. Thank you to this wonderful community for lifting me up when I needed it most, your kindness and support and stories have meant a lot during this process.
I was diagnosed in January of this year as stage 2b (er+,pr+, her2-) at the age of 32. After a masectomy and before chemo, I did ivf to preserve my eggs and the egg retrieval surgery caused internal bleeding that sent me to the ER and additional tests showed a lesion on my sternum. I was diagnosed as stage 4 and my oncologist recommended aggressive treatment (4 rounds of AC, 12 rounds taxol, followed by 30 sessions of radiation)with a small chance of remission.
I completed chemo in early august and redid my pet scan and the SUV uptake was reduced (21.1 down to 3.6) in my sternum and the rest of my nodes are clear. Next up is radiation.
I’m wondering - how many of you ladies were in the same position and did radiation help get your SUV levels down further? I read the pet scan results in the portal but haven’t talked to my oncologist yet - wondering if this is good news or should chemo take SUV levels down to 0? Not sure if I’m responding as expected or if this isn’t ideal.
Please share your stories, I appreciate every word.