'Ironbra' syndrome 15 years after surgery
I'm experiencing what I have discovered is called 'Ironbra' syndrome. Didn't know it was a thing until I started researching these past few months. I had my mastectomy in 2006 and reconstruction 12 months later. I had lymph nodes removed which showed no spread so no other treatment necessary other than 5 years of Tamoxifen. I recovered well after both surgeries with no complications and have lived a full, active life until a few years ago. I noticed that my back would ache after doing anything remotely physical. I would also have periods when my back muscles would go into spasm causing acute pain. This has got increasingly worse over they years and I am now in varying degrees of discomfort/pain every day. I have a constant tight feeling around my back and chest and feel as if I am wearing some kind of tight bra/corset. It can sometimes be difficult to breath as taking a deep breath really hurts. I sometimes go to adjust my 'bra' and realise I'm not wearing one!! I have bought numerous types of soft bras over the years but just can't tolerate wearing one.
Over the years I have been practising Pilates and Yoga but I am no longer able to do this due to pain. I have had some treatment from a physiotherapist (when back goes into spasms) but I sometimes feel that her massages are irritating the nerves and making my back more reactive to touch.
I am now seeing a pain consultant and have been prescribed Lidocaine patches to wear at night, only 4 days in so not seeing any results yet.
I was wondering if anyone else is having these experiences so long after surgery and if so, have you been able to get any treatment for this condition? I'd really like to hear from anyone else experiencing this problem.