Pain
Discussion List
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Burning and itching near old incision site after recent injury.
I had a skin sparing bmx about 4 years ago, and had pre pec silicone implants placed shortly thereafter. I have not had any issues with pain in the region since the removal of my port, a few months after the exchage surgery for the implants. Only the occasional unscratchable internal itch and some aching from cold. The bmx…
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Post Mastectomy Pain Syndrome (PMPS)
The purpose for this forum is to discuss the concerns of women experiencing pain several months following their mastectomy. A portion of an abstract from Pain Management Nursing, 2009, describes it this way: Chronic neuropathic pain affects between 20% and 50% of women after their breast cancer treatment. Breast cancer…
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Old Mastectomy Scar Itching
I'm wondering if anyone else has had to deal with intense itching of an old mastectomy scar. I had my first mastectomy (right) in March 2010 (the prophylactic second one in December of the same year). The past couple of days, the end of the scar under my right armpit has really started itching like CRAZY. Can anyone…
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Back Pain - Weekly Taxol/Herceptin - Neuropathy?
I'm betting a lot of us have dealt with back pain during this treatment. I'm looking for experiences and advice. I'd been moving through treatment with no pain/neuropathy up until round 6. Had a week delay in between round 7. Noticed during the week break that the center of my back is stiff, achy, and tends to hurt more…
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Foot pain on arimidex
I had my ovaries and Fallopian tubes removed this summer and switched to arimidex which I've been on about 6 weeks. I'm experiencing foot pain- heels, toes, even the muscles in my calves. I'm guessing it's from the arimidex. Very painful in the morning and after I've been sitting. But sometimes I wake up in the middle of…
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Pain 10 years post masectomy
Hi everyone, I haven't been here for a while but need some advice please, I am 10 years post B masectomy reconstruction and rads. I have had pain and achiness under my arms, my sides and chest. Mainly effected side (right). When I stress I feel like the implants tighten. My Left shoulder is tight with raisining arm and…
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Severe Consistent Burning and Raw Sensation
I am new to this community…About a week post surgery I woke up from a nap and it felt like someone laid a hot iron on the back of my arm. While it feels like there should be blisters and irritation it looks normal. Assume it is because it is the nerves. Then a few days later the same pain started in my nipple. A little…
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Weird Type of Pain - feels like an electrical shock
Hi Gals, I had my mastectomy/chemo/radiation back in the 2002 - 2004 timeframe. It seems like the last few weeks though, that I feel a sharp, electrical shock type of pain on my right side where I had the cancer at. Does anyone know if this is some type of nerve damage or something? It feels like a quick, sharp pain like…
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LDN (Low Dose Naltrexone) - Has anyone used it?
I was wondering if anyone was using LDN (low dose naltrexone) to help deal with chronic pain? I heard about it on the stage 4 section and asked both my primary care doctor and my MO about it but neither knew anything about it.
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What could it be.....contracture or rupture???
Hello everyone. It has been a long time since I have posted, but I am hoping to gain some insight into what is going on with my reconstructed breast. I had my mastectomy and direct to implant reconstruction in June of 2011. So I am coming up on 10 years with my implant. It is a smooth, round, hight profile Mentor silicon…
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Pain and side effects with estrogen blockers post treatment
Hello All Is anyone having severe side effects post chemo and radiation while taking estrogen blockers? Since treatment I have not been able to get back to pre cancer life style. I am in chronic pain with fatigue and insomnia and cognitive issues. Weight gain as well. I don't feel like I can work let alone do many things…
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Pain with implant?
I had my mastectomy with immediate reconstruction about 3 months ago. Recently my cancer side hurts. Is this normal? Anyone else experienced this?
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Do cancerous axillary nodes hurt?
Those who've had mets to axillary nodes, did they hurt? Mine are enlarged and MO wants to scan again in 6 months. Now, they've started to hurt. Sort of a constant ache. What was your experience?
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Pain in nipple/breast during ovulation
hi all! Here’s my hx: BMX in 2017 for Left breast DCIS. Direct implants. Follow up every 6 mos with breast oncologist; just had my most recent follow up in November of ‘21. I’ve mentioned to her before that during ovulation, I feel a slight, dull pain in the nipple of the left breast. She said that ovulation could cause…
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Shoulder/Leg Pain
Hi all, I am not in treatment yet so I am not sure if this is the correct place to ask my question but I don't know what else to do. I have had lots of leg pain the last two weeks, and now I also have stiff shoulder pain/neck pain. When I mentioned it to my breast dr, both time he said it is not related to your breasts. I…
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Pain in ribs
I have an area that is slightly swollen on my rib, near the sternum. My physical therapist said she thought it was the area where the bone was broken, etc, to connect my Diep flap. I have recently been having some anxiety, so I don’t know if I need to contact my MO or wait until a regular appointment. How can you tell when…
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'Ironbra' syndrome 15 years after surgery
Hi all, I'm experiencing what I have discovered is called 'Ironbra' syndrome. Didn't know it was a thing until I started researching these past few months. I had my mastectomy in 2006 and reconstruction 12 months later. I had lymph nodes removed which showed no spread so no other treatment necessary other than 5 years of…
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Nipple pain
hi there. Not sure if this is the current forum to post this question, but here goes. Can one have nipple pain before and during menstruation even after a mastectomy? My breasts and nipples were always sore and painful prior to my diagnosis, but now that I have had a double mastectomy, I still sometimes experience nipple…
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Still having pain 6 months after core needle biopsy
I had a core needle biopsy just over 6 months ago. My diagnosis was mastitis and I spent 20 days on antibiotics and seemed to get better. Six months later I'm still having problems. My breast is so sore and tender that it is impacting my daily life. It hurts when my kids hug me. I won't let my husband touch me. It hurts if…
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BONE METS / JOINT PAIN Q & A
Hi Friends: I have a lot of questions. Some of them might sound silly. But I think we need a thread where Bone Mets questions can be asked and answered by those of you who have been diagnosed with this. Where did your Bone Mets start? Did you have pain? Does bone cancer ever start in joints? If anyone has any other…
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Dealing with pain 10 weeks out -any advice is appreciated.
I posted about 3 weeks out from my bilateral mx with diep flap re: some abdominal issues. I'm now 10 weeks out (and about 6 weeks out from breast revision) and still experiencing some tightness in the abdomen and some nerve issues (feels like something is "in" the belly button and sometimes like it is rubbing). Not at the…
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First follow up mammogram - worried about pain
I have my first follow up mammogram scheduled for July, and my breast is still really sore and painful. I had my surgery in December, finished radiation in February. Any words of wisdom? I was thinking of slathering my breast with emla first thing in the morning then going into a bathroom when I get to the hospital and…
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Pain from Latissimus Dorsi Flap Surgery
Hello, I would like to correspond with someone who has lived the nightmare of chronic pain after this type of reconstructive surgery. I had a complete mastectomy 12/14/10 and have been living a horrible nightmare. There is not enough space or emotional energy to provide all of the details here, but I will provide a few…
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When to worry about pain.
Hey ladies, I could really use some advice or maybe some input as to how you all handle things. When do you feel that pain reaches a level that it is a concern and should be reported to your doctor? I know the two weeks of pain should be reported to your doctor thing, but what kind of pain? What I mean is, do we worry…
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Pain in joints—menopause or cancer??
Hi Friends: I’m hoping those of you with these symptoms or who have had bone cancer will post: I’m officially in menopause as of April of this year. I’m in my early almost mid 50s. Very healthy overall. Active and thin with no overlying health issues that I’m aware of other than osteopenia I have very sore/painful joints.…
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Headaches headaches headaches
i have had almost daily headaches since dx 3 months ago. Told my oncologist who says they don't order brain scans unless there are other symptoms. Not having any other symptoms and the headaches aren't that bad. I have a history of migraines but have been fairly headache free for the past year up until now. Advil does help…
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Neck and shoulder pain - feeling so dejected
hi all, I'm a year and 4 months out from a single mastectomy on my right side. I had reconstruction just over a year ago. last may I started getting bad pain in my shoulder and neck area. Since then I've had flare ups about every two weeks and sometimes weekly. I've tried everything from massage, physical therapy, meds,…
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Anyone else using Kratom for pain?
To start, I will say that I am frustrated beyond belief on this whole "war on opiates" thing. I will explain why. 1. I know, I know, addiction is horrible, hard to break and all that. But when you have legitimate chronic pain patients who have to go through hoops and sometimes cannot get their pain under control because we…