How has the Pandemic affected you as a cancer patient/survivor

1101113151644

Comments

  • alicebastable
    alicebastable Member Posts: 1,956

    Wrenn, Moth, and exbrnxgrl, I'm so sorry you've had to put up with gravity bangs and biopsies. It's weird how the floor and pavements get harder as we get older.

    The turning point for me on "polite language" was when that 🟠💩 said "There were good people, I'm sure, on both sides" after the frightening and deadly event in Charlottesville. That was the (hopefully temporary) end of civility in this country. People who hurt others through direct action, and/or racist, misogynistic, and homophobic language, and/or WILLFUL ignorance need to be told they are the problem in whatever words work to get their attention, or to draw other people's attention to the problem, or even to let off steam for having to live under the conditions we've all had to endure for too long. Why the hell should right and wrong be treated with equal respect? Not for racists marching and killing, not for traitors invading the halls of Congress, not for the turds who treat others as property or less-thans, and not for anyone who refuses to accept scientific evidence and spreads that ignorance to others. No. Hell no.

  • chowdog
    chowdog Member Posts: 190

    Cross post regarding CDC booster vote

    Update for today's CDC vote, CDC has voted to approve Pfizer booster (again this is for people who originally got Pfizer; FDA hasn't reviewed Moderna data yet).

    1) Yes for > 65

    2) Yes for those 50-64 with underlying conditions

    3) Yes for those 18-49 with underlying conditions based on individual benefit & risk.

    4) No for those 18-64 who are at high risk for severe covid due to occupational or institutional setting.

    Pfizer booster is recommended at least 6 months after the original 2nd dose.


  • SerenitySTAT
    SerenitySTAT Member Posts: 3,534

    Chowdog - Never heard of him before, but quickly caught an agenda from that one article.

    Alice - 👍👍👍

  • simonerc
    simonerc Member Posts: 155

    Hey Wrenn,

    I am going to have to respectfully disagree. I never slagged every participant, nor did I tell anyone how to be a better person. I did express my personal dislike of people calling other people names. Plain and simple. I thought this was a thread where we are encouraged to express our thoughts about Covid. If name calling is cool with you, have at it. Interesting to hear a few participants advocating for name calling. It is not a narrative that is common in my world. But again, we are all different and that's what makes the world go 'round! I respect your right to call people names. I hope you can respect my right to dislike it.

  • SerenitySTAT
    SerenitySTAT Member Posts: 3,534

    Seriously, if name calling is your only issue with the thread, why are you wasting your time here? Let it go.


  • sadiesservant
    sadiesservant Member Posts: 1,875

    Sincerely hoping we can move on folks... opinions have been expressed (ad nauseum). I think we know where everyone stands. Winking

  • trishyla
    trishyla Member Posts: 698

    Again, SimoneRC, you have invoked me, the OP, as a reason to chide others for their very justified anger. I created this thread as a place to rant about all things Pandemic, while not being disrespectful to any member of this community. Sometimes those rants express anger and frustration in way that you do not find acceptable. Fair enough.

    But my viewpoint is that I can no longer be civil to those who refuse to be civilized. Their right to be a jackass is superceded by our right to live in a safe society. They endanger my family, my friends and my community with their intransigence. At this point all gloves are off.

    Edited to add:

    You are correct, Sandy. I have only asked that we all be respectful of the other members of this community, not to the world at large. Which probably doesn't matter, as I doubt any of them are following this thread.

  • SerenitySTAT
    SerenitySTAT Member Posts: 3,534

    In actual COVID-related news, the man who assaulted the nurse hasn't been found yet. The nurse is on leave to recover. Vaccinations at the pharmacy are suspended because she's the only nurse. It's in a town SE of Montreal.

    https://www.cbc.ca/news/canada/montreal/sherbrooke-police-assault-covid-19-vaccine-nurse-1.6185016

  • SerenitySTAT
    SerenitySTAT Member Posts: 3,534

    Apparently, they're hitting their limit.

    image

  • exbrnxgrl
    exbrnxgrl Member Posts: 5,316

    Well, it's confession time. I am not a name callernor do I swear, in general (Not perfect, but trying 😬). My parents never swore and rarely engaged in name calling so I followed in their footsteps. However, my mother always said that you can think whatever you want. So that is exactly what I do to blow off steam and frustration. I still freely express my thoughts but make every attempt to keep my words civil when I do so. For me, name calling rarely seems to accomplish anything but raise the temperature of a situation but that's just me. My mind has been very busy since the arrival of COVID.

    alicebastable, thanks for the good wishes. I know you have faced more than one cancer but shouldn't that be illegal😉

  • SerenitySTAT
    SerenitySTAT Member Posts: 3,534

    Good move here 👍.

    image

  • alicebastable
    alicebastable Member Posts: 1,956

    exbrnxgrl, I don't want to see anyone join the Crap Magnet™ Club! Membership must be kept as low as possible because it's an elite group. 😄

  • simonerc
    simonerc Member Posts: 155

    I am very grateful for the largely safe and largely effective vaccines that are so readily available to everyone over the age of 12 in the US. My community has readily embraced them and I have not seen a single act of Covid related unkindness in my community. Quite the opposite, actually. Our community has rallied and supported individuals in need as well as local businesses.

    Exbrnxgrl, I couldn’t agree with you more!


  • SerenitySTAT
    SerenitySTAT Member Posts: 3,534

    I would love that vaccine access, kindness, and support extend beyond our communities.

    My immediate community is highly vaccinated, but it doesn't keep me from looking to those who are disadvantaged.

  • minustwo
    minustwo Member Posts: 13,389

    Simone - You are lucky & fortunate. I live in Texas. My community has NOT embraced any protections. My statei is fighting for the right not to have vaccine or masks. A parent ripped the mask off a teacher right in the school room. Another person who wanted priority service made a point of coughing & spitting at someone & laughing. LOTS of unkindness, It's great that you have such a neat community - but the rest of us occasionally need to RANT about the insensitive assholes that surround us. While I wish we lived in a nicer, kinder world - it just ain't so right now - no matter what we do.

  • SerenitySTAT
    SerenitySTAT Member Posts: 3,534

    I don't know how this is real, but if it gets vaccines in arms...

    image

  • betrayal
    betrayal Member Posts: 3,599

    Meanwhile if you look closely, the venom extractor is being demonstrated on the inner aspect of the forearm. Don't know any nurse worth her salt that would identify this as an intramuscular injection site (not used for subcutaneous sites either). However, most venomous snakes probably wouldn't bite your deltoid. I wish the morons luck with that product. Why is it people will spend more time plotting a work around then it would take to just do it correctly? Cheaters abound.

  • SerenitySTAT
    SerenitySTAT Member Posts: 3,534

    I wish it said they had 20 minutes. That way they can wait the required 15 minutes and then leave the facility to do this nonsense.

  • exbrnxgrl
    exbrnxgrl Member Posts: 5,316

    minus two,

    I live in CA and most folks are supporting masking and vaccinating. My county, Santa Clara, is doing well with controlling disease spread. Maybe that’s why I can still be civil about non-vaxxers, but certainly not in my head! Seriously, I think I would be more outraged if I didn’t live in a community* that was trying so hard to put the brakes on this nightmare.


    * Please do not use this post to “deduce” that I do not care about other people, communities, countries etc.

  • simonerc
    simonerc Member Posts: 155

    Hi Serenity,

    Thank you for posting the article from Science. Good summary review. What I did see in the summary article you posted was that vaccination of previously infected and recovered individuals boosted their immune B and T cell activation levels. This is completely unsurprising since every re-exposure to viral antigens whether natural or in the form of a vaccine produces such a boosting effect. There is however no suggestion that vaccine boosting of previously infected persons is necessary for those individuals to be protected against recurrence of the disease. In general natural immunity against infections is more widely distributed against a broader range of viral antigens than vaccine induced immunity and is highly efficacious in protecting against re-infection. There’s no reason to think that this coronavirus behaves differently from the thousands of others viruses with which we have extensive experience and the article you posted makes no such suggestion.

    On a strictly personal level, my husband and I both donated Convalescent Plasma for almost one year after we recovered from Covid. Our antibodies were tested at each donation and we both retained more than sufficient levels of antibodies to be Convalescent Plasma donors for that entire time. We only stopped making donations as the science moved away from Convalescent Plasma to monoclonal antibodies.

    Thank you again for posting the summary!


  • minustwo
    minustwo Member Posts: 13,389

    exbrn - Ah ha.... I grew up in Palo Alto - MANY years ago when there was no Silicone Valley and lots of green hills (or brown as the season would dictate.)

    No - I won't mis-interpret that you don't care. I too care. I was active in a number of things before COVID and expect I will be again when I feel comfortable in groups again. But considering where I live - not now.

    BTW - does your name indicate Brown? My DIL graduated from Brown.

  • SerenitySTAT
    SerenitySTAT Member Posts: 3,534

    Simone - I have not read that prior COVID infection works against variants as well as vaccination. Please provide links? I did read that convalescent plasma did not work well as a treatment, but I appreciate the time and effort it took to donate.

  • exbrnxgrl
    exbrnxgrl Member Posts: 5,316

    Nope, it’s exbrnxgrl, brnx as in the Bronx. Born and raised there though I have not lived there since my twenties. Despite time in TX and over 30 years in CA, I’m still a gal from the Bronx.

    I think I’ve mentioned this before but I lived in Houston for almost 9 years. I lived mostly in the Heights and then bought a home in the Woodlands. My older dd was born at Spring Branch Memorial Hospital but that was 37 years ago so it might not even exist.

    Yes the Santa Clara Valley was once the valley of the hearts delights, i.e. acres of fruit trees in bloom. One of the last remaining orchards in Los Gatos is blooming with new homes and fruit production is no longer profitable here. Change, whether we like it or not, is inevitable.

  • SerenitySTAT
    SerenitySTAT Member Posts: 3,534

    Even with prior COVID infection, vaccination is warranted against variants.

    https://directorsblog.nih.gov/2021/06/22/how-immunity-generated-from-covid-19-vaccines-differs-from-an-infection/

  • SerenitySTAT
    SerenitySTAT Member Posts: 3,534

    This academic has an interesting long version of "Get vaccinated!".

    https://twitter.com/jamesheathers/status/144104427...

    image

  • alicebastable
    alicebastable Member Posts: 1,956

    I live in Missouri, a state that is fighting its way to the bottom of the cess pool under Gubner Evil Goober Parson. The majority of vaccines were sent to small towns when they first became available, because those are the areas that mostly support GEGP. Those hicks didn't want the vaccines, so the state registry notified people in St. Louis and Kansas City that we were welcome to drive hours to get vaccinated. I had also signed up through MyChart, and got my shots locally. But people who had no option except the state distribution had to travel. They didn't care about poor people without cars, or those who couldn't take a whole day or two off work. It took several weeks for government-distributed vaccines to hit the urban areas. But now the anti-vaxxers have the Delta variation and they are being shipped to hospitals in the urban areas to save their damn lives.

    My husband works for the state and has been playing hide and seek for a year and a half with coworkers who ignore building rules (that aren't enforceable anyway under GEGP, who doesn't believe in mandates) with masks under noses or chins, and reports to me every day how many tested positive. I'm furious that he, and I, and other sensible people, have to live like this and I reserve the right to call anti-vaxxers any fucking name I please.

  • traveltext
    traveltext Member Posts: 1,055

    Lots of familiar people here, so fertile ground for another article I'd like to write for Health Union, who publish the US-based cancer websites.

    If anyone here is happy to share their experiences, based on comments posted here, please let me know.



  • minustwo
    minustwo Member Posts: 13,389

    Hey Traveltext - good to see ya. Thought of you the other day when I posted "women" and remembered to take it back before I submitted. Will you provide questions or an outline - or is it just relating a story?

  • SerenitySTAT
    SerenitySTAT Member Posts: 3,534

    An actual COVID party?!? This is why officials/doctors pushing "natural" immunity is so dangerous.

    https://twitter.com/fagstein/status/14408237348315...

    image

  • simonerc
    simonerc Member Posts: 155

    The level of protection afforded by vaccines against variants is driven by how far the VOC deviates from the original. The same is true for natural immunity. It is true that vaccines can be engineered to represent a large population of single point mutations in the RBDs of the corona virus spike protein. It is not true that the effectiveness of the immune response is determined entirely or even mainly by the affinity of the antibody for RBDs on the spike protein. Antibodies directed against other epitopes on the virus are important because they allow cell surface signalling identifying infected cells for NK cells to attack. This critical arm of the immune system tends to be ignored by people not well versed in immunology.

    For clarity, I strongly support people getting vaccinated, including those who have already recovered from Covid. There is, however, no evidence that natural immunity is less efficacious than vaccine-induced immunity and much evidence, including our entire experience with infectious diseases over many decades, that it is in fact more so.

    I will be interested to see, as I have said before, real peer reviewed data on reinfection rates of people who have had the natural infection.