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Waiting on skull biopsy results

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I was diagnosed with IDC (er+/pr+/her2+) and ILC 13 years ago next month. About 6 months ago I began having daily headaches which became increasingly unbearable. My primary care doctor referred me to neurology and my oncologist recommended I see neurosurgeon- they subsequently did a brain and head MRI and found a 1CM T2 hyperintense ildefined lesion in the frontal calvarial skull bone. The recommendation was to wait 3 months, and rescan in August, which we did. The lesion was still there and so last Friday (9/17/2021) I had an excisional bone flap biopsy (craniectomy) with titanium plate - the bone sample was about the size of a quarter so that margins were taken on all sides of the lesion. This was done with computerized MRI mapping. My surgeon said results would take 2-3 weeks because bone biopsies are processed differently than soft tissues. The wait is harder this time because, well, I know what a positive result would mean and it's really weighing on me. Has anyone else been through this same type of thing?

Comments

  • sbelizabeth
    sbelizabeth Member Posts: 956
    edited September 2021
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    KorynH, I don't have any words of wisdom for you, but I wanted to say I'm sorry you're going through this--13 years after your original diagnosis, fer cryin out loud. Not fair. Hang in there and find something fun to distract yourself until the results are available.

  • stargaza
    stargaza Member Posts: 1
    edited September 2022
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    Hello, korynh your diagnosis is so similar to mine Checking in to see how you are doing?

  • serendipity09
    serendipity09 Member Posts: 769
    edited September 2022
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    Korynh - you haven't posted in almost a year. I pray all is well and that you are just busy enjoying life!

    Stargaza - you are in my thoughts, I pray everything goes well for you. *Hugs*


  • KorynH
    KorynH Member Posts: 84
    edited September 2022
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    it’s been a year since my skull surgery and it was BENIGN! God is so good!

  • KorynH
    KorynH Member Posts: 84
    edited September 2022
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    my skull surgery was a year ago yesterday and it was BENIGN! Also an angel nurse let my husband into ICU - such a miracle! It’s all good and we added 3 more grand children this year! Godis good!

  • KorynH
    KorynH Member Posts: 84
    edited September 2022
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    how are you doing? I updated below - life is good

  • moderators
    moderators Posts: 8,229
    edited September 2022
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    Korynh, that is wonderful news! Thank you for sharing!