Stage IIB Positive in Two Nodes No Chemo/No Radiation
I am stage IIB with two positive lymph nodes. I had left breast mastectomy with node dissection at end of October. My OncoType score was 11 so we determined chemo was not necessary. I have an auto immune condition (Scleroderma) which is a connective tissue disorder. The oncologists at two places discussed performing radiation only to the nodes, not the chest due to the auto immune condition. Now, after further discussions, they feel radiation at all is risky and could pose a problem for my auto immune condition since lung fibrosis is a big issue with this condition. Performing radiation to the nodes will hit 20% of the left lung in the process which may be too risky. There are not many treatment options for my auto immune condition if my lungs become affected so this is why there is a lot of concern about it.
I will be doing endocrine therapy because I am ER/PR positive, HER2 negative. My question is whether any only else has skipped chemo and radiation having positive nodes and if there is any information on how much the risk of recurrence will go up at year 5, 10 and 15. My radiology oncologist told me as far as survival in general, I would see 5% reduction in expected survival by skipping the radiation. There is no question that if I didn't have the auto immune condition I would need radiation to chest and nodes but due to the condition, they are cautioning me about it.
Any feedback anyone can provide for those who skipped both chemo and radiation would be very helpful and to know how far you have gotten with or without a recurrence.