Frustrated with this process.
I had mammo, then called back from for more pictures. Then told I had calcifications and needed biopsy. No other info other than get it done. I left with a scheduled appnt but I had lots of unanswered questions. I tried to call to get answers and got made fun of. I did show up for the biopsy appnt but the doctor was so rude and condescending that I walked out.
I shared my experience with my hemotolgist and he referred me to different center for repeat diagnostic 3 months later. I had back surgery and the recovery had been slow and painful. I did not want to have any procedures that were not necessary at the time. Considering that my previous mammo was 2 years prior and normal, I did not see any reason to rush.
I went and had this second opinion mammo, with the same outcome....the doctor scream and yelled at me. and she was yelling. and screaming at her staff. I walked out. Got a call a few days later to scheduled appnt for biopsy. Told her I really was not interested in proceeding. She keep pushing, so I scheduled it. In the meantime starting doing research. After the information I read in the medical journals are how useless mammo is and that women like me end up getting very high doses of radiation due to dense breast tissue. I got angry....very angry. I canceled the appnt at the last minute.
They sent me to see a breast surgeon. I pissed her off. because I told her I did not want a biopsy as I did not see any reason to have one. Plus its invasive and they demand that I have the breast clip which I did not want. I have auto immune issues. So I walked out again.
More research, and I had a thermogram done that showed nothing in the left breast that they were flipping out about. My mammo showed a loose ring of micro calcifications. I had back surgery and spent 6 hrs on the OR table face down and I had discolored marks on my face to this day. When I woke from surgery my chest, breasts were sore and bruised. I was told no by 3 different radiologist, hemotolgist and breast surgeon.
I have thermogram down that shows the left breast with calcifications is fine, but there is a something in the right breast, I sent that to the surgeon and she finally orders ultrasound. While waiting for Ultrasound appnt I get a letter from the breast surgeon's office saying they are trying to contact me and how important is it to follow up and contact them now. Its signed by the office manager. I call and I am told by the office manager that the PA for doctor was not happy with me and she had her send the letter. She did not read the notes so she didn't know what the plan is. I told her off in a nice way and followed up with a very strongly worded letter.
I get the ultrasound and they say its a cyst with debris in it that needs to be scanned in six months. They see nothing in the left breast but push for biopsy. I get tit scheduled and go in a few days later. But they still demand that I get the marker. So I went through with the horrid experience. The next they call me and tell me its a fibro adenoma which is benign. So I was totally right and and now I am really enraged with whole process. I want this clip/marker OUT and now.
To make it even worst. When I was tried to take the bandage off the stupid girl that put it on taped it to the steristrips. So I pulled the whole thing off. I have been using heat and massage because it has a goofball inside it. It burns and has stabbing pains. they refused to listen to me that my body does not do well with foreign objects. I eject them and push them out of the skin. I tried to call them to ask about the breast is feeling and left a message. I never got a call. they got my money and what they wanted I guess I am not worth a call.
This is my LAST mammogram. I am never going back after this mess. My goal now is to get this clip out of my body and get it to heal. the wound is seeping and leaking so I know its open and trying to push it out. I am not going back to see the surgeon. She can go kick rocks. I will keep my thermogram and ultrasound appnts.
I should have listened to MY instincts. They are NEVER wrong. Sorry for the typos and grammar errors. I am beyond angry. I guess its a good thing the office is closed because I really want to stab the whole lot of them with a 9 gauge biopsy needle with less than enough numbing meds and cut out a few chucks of their body!!
Update Day 4 post biopsy: The area they biopsied has been swelling up like a golfball, then draining. It was clear and blood at first. This morning it was yellow and green. None of the numbers they gave me work. No answer just voicemail. The breast surgeon is on vacation until after the New Year. I did reach someone in the office who claim they will call back. I finally called the mammo center who said call the breast surgeon. I'm at that point time to take matters into my own hands. This swelling and drainage will not stop until this marker is OUT!!!
Update Day 5: Spent all day yesterday getting calls back and forth from the breast surgeon and the mammo center. Everyone is passing the buck. They told me they would see me at 2pm today. Then called me back and said I had to see my surgeon who would not be in until Tuesday. So they say 4pm Tuesday. Now they are calling asking me to come earlier which I can't have a dental appt. I finally told the lady I can come now if you want and wait. She tells me the surgeon is in surgery all morning. I told her if you can tell me if she is going to remove this clip today I will change my dental appnt. If you can not confirm that then we are leaving it as is.
I called the taeching hospital where I get all my care normally. I left there cause the mammo was so rude. She got me an appointment for ultrasound for Thursday and to see their breast surgeon on Monday Jan 3rd. She said if its infected that I will not be able to get the clip out now. I have to wait until the infection is cleared. UGH!!!!!!! All this over a stupid doctors not listening to me who is the patient and I know my body.
I also saw my breast surgeon. She claims its all healing ok. pulling off the bandage I pulling the plug that was keeping a hematoma in so I drained it. So now it's draining on its own whenever it feels like it. She claims its already sealed over but its drained a few times since I left the surgeon. Probably related to me doing physical therapy and moving around like normal. That seems to make it swell up and form a goofball and then drain. She wants me to wait a month and basically let this thing heal and settle in to see if I change my mind about wanting it out. She did schedule a removal for January 17th. I have to have another mammogram with wire placement to have it removed. She tried to explain it to make it distasteful in the hope I would change my mind. Then I told her I went with a friend for that and lumpectomy done under local. So she could chill on trying to scare me. We did talk about what triggers me to reject stuff and she agreed that surgery is going to ramp up my immune system even more than it is with the marker in. We agreed to disagree that its already. causing issues so out would be better. I asked about removing with stereotactic and she said nope. If she does she will also take out the fibroadenoma so I don't have to deal with it in future mammograms.