Not Diagnosed But Worried

For those who are experiencing symptoms or received concerning test results, but haven't been diagnosed with breast cancer.

Worried About Inflammatory Breast Cancer? Start here
Hi! We know you're here and worrying about a symptom or change to your breast or breasts. You may have found yourself Googling your symptoms, which led you to finding information on inflammatory breast cancer (IBC). Before coming to any conclusion, we hope you can take a deep breath, and read below from the main…
Posting to Not Diagnosed but Worried Newbies? Please read here
Dear Members, We appreciate that you are responding to our new members who may not have a breast cancer diagnosis but are worried about a change in their breast health. We also appreciate your support of caregivers who are accompanying their loved ones, and who are also deeply affected by a potential diagnosis. We know…
For ALL Not Diagnosed Newbies: Imaging & Common Symptoms FAQs
Our very helpful member djmammo has taken the time to research and put together some extremely helpful information for all newbies who find themselves here, worried about a symptom, a test result, or interpreting image results. Please take a moment to read through the thread links applicable to your situation below. Many…
Are You New Here and Worried? Start Here BEFORE Posting
Welcome to you. We are sorry that changes in your breast health have brought you here. We are glad that you decided to join our community for support. Everyone here understands how changes in their health can create worry, and distress as they wait for definitive answers to their symptoms. While our members will not be…
What did your radiologist say when you were referred for a biopsy?
Hi there. I had my first two screening mammograms in 2018 and 2019. Life got in the way and I haven't had another one until just recently where they found calcifications (that were not there previously) in my left breast only. I went back for a diagnostic mammogram and ultrasound. I knew something was weird when the tech…
Over it already!
At just 33 years old, this feels like a nightmare that won’t end. It’s been over a month since I first discovered the lump, and I’m completely drained, mentally and emotionally. The endless waiting, appointments, needle sticks. it’s all just so overwhelming. I shared more details in another post, but to sum it up: there’s…
Does this sound like fibrocystic breast pain?
Hello, I am wondering if anyone has experience with fibrocystic pain? I have very lumpy very dense breasts and always had pain before my period. My cycles are not regular the last year or so as I am in perimenopause (46 years old). The pain has gotten worse on one side mostly (right). Last mammogram and u/s I had a lot of…
Feels like pebble near areola right breast
Hi, searching for information and assurance. Last month I felt a lump, feels like a pebble, right breast, near areola. I noticed it and pressed on it because I felt like I had a scratch in the area and it was red and bit irritated. I’m 62 and I am a uterine sarcoma survivor taking Letrozole for 11 of the last 13 years as…
Interpreting Your Report
***Edited by Mods to add: Unfortunately DJMammo has stepped away from the Community for personal reasons. Please do not expect an answer from him directly. However, you can still post here in an effort to get help from our other amazing members!*** Mammogram and ultrasound reports contain (should contain) a fairly specific…
In the Awful Waiting Period Between a BIRADS 4 Mammogram and a Biopsy
Hi folks… As the title suggests, I'm in the dreaded limbo-land between tests. I have dense breasts, and this was not my first time being called back for a follow-up mammogram. It was, however, the first time I was called back for something other than the density mucking up the images. This time, it was for tightly grouped…
Lifestyle Risk Factors and Breast Cancer Mortality
Lifestyle Risk Factors and Breast Cancer Mortality Dr. Samantha El Warrak’s research found that a diet high in red meat was most linked to dying from breast cancer. May 27, 2025 At the 2025 American Society of Clinical Oncology (ASCO) Annual Meeting, Dr. Samantha El Warrak presented the results of her research on how five…
Okay to get a breast ultrasound during or right before period?
Besides breast pain and tenderness I mean. I know that you should get mammograms at the beginning of your cycle because near the end of you cycle your breasts are denser. But I know that ultrasounds see through dense breast tissue better. So is there any reason why one should schedule a breast ultrasound at a particular…
Can MRI be done to diagnose pelvis, abdomen, lungs?
I under diagnosis of breast tumor. I had USG, mammography, biopsy, blood test and waiting for the results. I was sent by the doctor to computer tomography (CT) for lungs, pelvis and abdomen test. However, I wander if MRI could be done instead of CT (at least partially e.g. for pelvis or abdomen) and have the same…
Worried about IBC, and risks related to pregnancy
Hi everyone, I am 38 and I had an IBC scare a few years ago (and a long history of health anxiety). Everyone here was so kind (and honest) about it, which I deeply appreciate still. It turned out to be a “chemical” mastitis on my left breast from popping a boil. I ended up getting an MRI that found nonmass enhancement in…
MRI Guided Biopsies
I've had 3 BIRADS 4 on ultrasound over time in the past 3 years and each time resulted in a biopsies. All came back benign (thank God). I'm considered as high risk with LCIS and family history so I have to do MRI once in a year. I did MRI for the first time and it showed multiple BIRADS 4 areas(4 in total) in my both…
BIRAD5
just curious what the odds will be that this is benign. I had my first screening on 3/26 and came back they wanted more testing done. The women that did my mammogram said that they would do that and not to be worried. They called every day, texted and sent me a certified letter. Between work and the radiology office hours…
Surgeon put titanium clips during breast cancer surgery against my wishes
Surgeon put titanium clips in my breast during breast cancer surgery against my wishes. I expressly told the surgeons nurse during pre-op that I did NOT want the clips placed in my breast. I understand why and what for but declined. How to handle this wrong doing. My body my choice.
Asymmetric Non Masslike Enhancement
Hi there. I'm high risk because of a strong family history (no known genetic mutations) and had been alternating yearly MRIs and Mammos. I was a year behind on my MRI and had one yesterday that came back with asymmetric non masslike enhancement in one breast. (Ironically NOT my troublesome one that had been biopsied…
Recurrent Breast Issue
Forgive the longer post. I'll try to be as concise as possible. To preface, I am non-lactating due to having a hysterectomy in 2019. I am 36 years old. Back in 2022, I had an excisional biopsy for a fibroadenoma in my left breast. About one month later, I developed a seroma and had it drained. Fast forward to 2024, I…
Focal architectural distortion
Hi All, i need some advice to help me stop from spiralling out of control. Thanks in advance for your guidance. I am 40 years old. My screening mammogram identified a focal asynmetry (BI RADS 0) in my left breast. The followup diagnostic mammogram said focal architectural distortion 12 o clock centrally 5 cm from the…
The long wait for tests is emotionally exhausting
This will be my fourth post about what is becoming a never ending nightmare waiting game for a tests and diagnosis. A quickie summary: I had a screening breast MRI (strong family history of breast and ovarian cancer and very dense breasts) on Sept 14th last year that showed a non-palpable BIRADS 5 spiculated nodule in the…
IBC concern
I have a spot that appeared in my right breast a few days ago, it is smaller than a pencil eraser. I went straight into panic mode bc that is what I do. I literally do not have orange peel look, red/hot/tenderness, nipple is fine, no swelling. Looking for advice and see if this looks concerning. Edited by Mods to remove…
MRI Biopsy Tomorrow
After a 6 week wait, my mri guided biopsy for two bi-rad4 suspicious masses is tomorrow morning. I strangely feel clamer now than I have in the past 6 weeks. The limbo ends tomorrow- whatever they find. Please send me all the good vibes and any advice on how long your MRI biospy took, if you were sore after, how long the…
Should I stop HRT
I started HRT at the beginning of December. I have an Estradiol patch and which I change every 4 days abd 200mg Utrogestan daily. I went for a mammogram and the results were “Small apparent non-specific density” I have to go back for more imaging and potentially a biopsy. Should I stop the HRT?
Was your stereotactic core needle biopsy upright or lying down?
Hi, I have an upcoming stereotactic core needle biopsy done with tomosynthesis and I don't know if it will be upright or lying down. Very anxious about this upcoming procedure. Would like to hear people's experiences with both. Thanks!
Wanting to decline titanium markers during stereotactic biopsy pros and cons?
Hello, I went in for a routine mammogram (my 10th one) and for the first time I had an abnormal mammogram, and a small mass was found that was given the BIRADS 4 rating. I am now waiting for a stereotactic core needle biopsy. I learned about the titanium marker that will be put in during the biopsy and after talking to my…
Suspicous Masses -Unable to see and Biopsy via Ultrasound
Hi Everyone. After 3 weeks of waiting for an ultrasound and biopsy of two suspicious masses- Bi-Rad 4, the ultrasound technician was unable to see my masses bc of my extremely dense breasts. Now i have to wait another 3 1/2 weeks for an MRI guided biopsy.Has anyone else gone through this?
Waiting to do diagnostic mammogram/US
Hi all. They found a mass on my recent screening and now I'm waiting for my diagnostic mammogram and US next week. I don't know if it was an oversight on the breast care navigators part but I didn't even think to ask for the actual report. She didn't give it either and the final report isn't loaded in my portal. Just shows…
Pain after two years of clip
I have clip in my left breast and now it causing burning pain. I am confused and going to my my breast doctor soon. My mom , aunt and sister diagnosed with breast cancer . I am too much stressed. Is this cancer or the clip is causing pain. Btw I had mammogram last year because of my breast tissues are thick I am going to…
Should I push for MRI?
Hi all, A few years ago I posted here. I have had one breast that has breast tissue which feels thicker/firmer. Basically if you look up descriptions of ILC it's exactly what it sounds like in my breast. The other breast is much softer. I've had three ultrasounds, one where it was a consultation with a breast surgeon. Lots…
Hypoechoic mass on initial ultrasound, not concerning on subsequent ultrasound
My Mammogram came back normal, I'm 43 years old with no cancer history in the family. This is the first year I've asked for an ultrasound as I have dense breast tissue. The results were as follows: "Ultrasound was performed by the technologist. Representative images of all 4 quadrants and subareolar breasts were obtained.…
Estradiol cream and focal asymmetry
I just had my annual screening mammogram and need to go back for more imaging. Focal asymmetry BiRads 0. The best I can tell, the radiologist saw a new area of density in the left breast compared to three previous films. A few months ago, I changed from Premarin vaginal cream to Estradiol cream. The dose on the estradiol…
Awaiting two biopsies Birads 4
Hi, I’ve been a member a long time and survived DCIS breast cancer 16 years ago. At that time the cancer was found on my mammogram as tiny microcalcifications in my right breast. I went for my annual mammogram this week and two areas were discovered in my left breast. I’m going to copy the report and hopefully someone on…
Terrified after my diagnostic mammogram & ultrasound — spiculated mass & possible node involvement
Background: No immediate family history of breast cancer. I’m 39 and this was my first mammogram. :( I observed an inverted left nipple in mid to late February (which couldn’t have been there long, I self check often) that led to my very first mammogram and ultrasound yesterday. They found a spiculated mass that my gyno…

Not Diagnosed But Worried

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