Why can't I see scans?
I was diagnosed with IDC breast cancer last April. A mastectomy scheduled for later that month was cancelled by the surgeon after an MRI showed it had spread to my chest wall. Stage 4, I was told. I live in podunk, so I transferred my care to a major teaching hospital. Stage 3b, they say. I've had two more MRI's and the chest wall tumor appears to be shrinking (I'm told), but five lumps in the breast have not. They want me to have a "simple mastectomy" next month and possibly radiation for the chest wall tumor because they don't think I can handle a major thoracic surgery due to age, low BMI, and a lifetime of smoking. My issue right now is I have NEVER seen a single scan, xray or picture of what's going on inside my body despite repeated requests. My chest wall tumor originally involved five ribs and now encompasses two and with every dr. appt. I expect someone to walk in with side by side so I can delight in my progress. I can read the reports in my chart, but I want to see a picture so I can wrap my head around this. Is this normal? I don't want to be a pita and keep asking and I trust the doctors, but isn't it normal for a woman with such serious disease to want to see it, or are they trying to spare me?