Prophylactic Mastectomy and LE... Your Opinion, Please
I had a single mastectomy last August with ALND (due to IBC). 32 nodes removed and none of them cancerous...ack. Concurrently I had a lymphovenous bypass with 4 good "connections." So far I'm doing well but I have started the Lebed opening and learned MLD from a LE PT "just in case."
My plan was to have a prophylactic mastectomy on the healthy side this year to even things out; I have no interest in reconstruction and my remaining breast is a "D". It's difficult to dress and manage that one big boob! However my absolute terror about LE is making me reconsider additional surgery.
My surgeon (bless his heart) told me yesterday that there were "no worries" about LE since the prophylactic Mx wouldn't remove any nodes. (No worries for HIM, I'm sure.)
I'm just on the fence about this. I'd really like to have the mastectomy but I REALLY don't want to stir up the Lymphedema Gods of Revenge. What would YOU do??