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Looking like a long "before" surgery. Merde

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sarahmaude
sarahmaude Member Posts: 338

I'm feeling like a yoyo. On Monday I thought I'd be referred to an NCI center for evaluation and surgery. Yesterday afternoon, I heard back that UAB is 2 months backlogged on DIEP procedures and that with the DVT in my arm that happened from the breast MRI needle stick, I am not a candidate at this time. I'm on Xarelto for 3-6 months, and it takes a while for the clots to dissipate. I'm tired of learning fun things like "blood thinners" aren't. They are really just anti-clotting. It takes time fore the clots to resolve, and meanwhile, I'm at risk for uncontrolled bleeding.

When I saw the MO, I was assured the clot wouldn't delay my surgery, but I think she was thinking about a 30 minute lumpectomy, not a 5+ hour DIEP.

Now, as of today, I think I'll be starting Arimidex immediately to freeze and perhaps even shrink my tumor. If that works out, I can perhaps still do a lumpectomy and reduction locally. Regardless, I apparently need a few weeks on hold for the DVT to get to a point that I'm not at risk of pulmonary embolism during surgery.

A month ago, I thought of myself as a perfectly healthy, young-for-my-age person. I have always been the problem solver at work and for my family. I'm all for personal growth, but dang, this is not a path I'd design for anyone.

Anyone else done neoadjuvant endocrine therapy?

I'm also taking this time to try to trim some of my pandemic/teleworking weight. And restart my walking habit. Sigh. I'm determined to make lemonade, even if it's kind of sour.

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  • 4Urglory
    4Urglory Member Posts: 2
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    Hi Sarahmaude, I could really relate on how you feel about the waiting time for surgery... I have to wait until March 28 for my Rt Mastectomy d/t no available sync sched between the Onco & Plastic Surgeon. So until then I have been focusing to improve my diet, excercise and rest habit, to prepare for my surgery & to a healthier Me. And most of all to my daily bible reading and prayers to God Almighty for complete healing,

  • sarahmaude
    sarahmaude Member Posts: 338
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    4urglory, I'm hopeful by the time you have your surgery you are able to begin the lifestyle changes to move to a healthier you going forward. Seems like a good plan as we wait!

  • beginagain22
    beginagain22 Member Posts: 100
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    SarahMaude, keep your chin up. Sour lemonade just needs strawberries or a bit of rum. The waiting is the WORST! I am right there with you and we will come out of this with our feet on the road to recovery. I have been trying to eat better too but I can’t stop with the jelly beans. One of my best friends is a priest and I made him laugh until he snorted last night when I said I was giving up my boobs for lent😁. Better things are on the way

  • sarahmaude
    sarahmaude Member Posts: 338
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    I’m glad my Sprite Zero is in the other side of the room or I’d have snorted it all over my iPad! Giving up my boobs for Lent indeed! Now I can’t help by thinking of reconstruction as an Easter sunrise service. Emphasis on the rise of course! I’m glad to see that BC hasn’t sacrificed our sense of humor.

    I like the idea of strawberry lemonade. And rum. My brother left a nice bottle here last time he visited.

  • beginagain22
    beginagain22 Member Posts: 100
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    SM,

    glad I could share a laugh! Strawberry lemonade rum tody it is, right after we evict our parasitic hanger-oners. Well, once we ditch the narcotics, no need to go out in a blaze Belushi style

  • sarahmaude
    sarahmaude Member Posts: 338
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    BA, yep, I unintentionally had a glass of wine years ago while on post shouldersurgery Vicodin. Not good. Glad I don’t like living in a mind altered state, cause that was one swooshy experience. Never again.