Concerning CT results and edema?
I'm not really sure where to post this.
July/August 2021- My back started to hurt mildly off and on. Over the next few months the pain level increased and became more frequent.
November 2021- I started to worry about bone mets. I called onc who told me to see GP. So I went to GP who did an xray, which was "normal", and prescribed a pain med and muscle relaxer. I took it for a few days, but it didn't really help and I'm not big on taking meds, so I just lived with the discomfort.
January 2022- Thought I felt a firm area in the remaining tissue of my "breast" in the area of my original tumor. Let it go for a few weeks until I decided I should ask onc if I could wait for next check up or if I should be seen. Onc had me come in to the office.
February 2022- Saw onc. They always ask about pain and my back was hurting that day and I mentioned it. So onc did a breast exam. She didn't feel what I did, but ordered a mammogram and ultrasound, as well as an MRI on my thoracic spine.
March 2022- The mammogram and ultrasound were fine. Nothing of any concern was seen anywhere. The MRI was normal in the thoracic spine, however, showed a paratracheal mediastinal mass. I had one back in 2016 during my original cancer treatment that was removed, so it was strange that there was a new one, so onc ordered a chest CT. The chest CT showed the mass is a likely benign pericardial cyst. But it showed two other findings, "sclerotic lesion on left medial clavicular head concerning for metastatic disease" and "edema of unknown etiology in abdominal musculature and about low back".
Questions: does "concerning" for metastatic disease mean it's likely that it's metastatic or would there be any chance that it's not metastatic? As for the edema, I googled to see what it meant and all I could find was about ascites, which I had never heard of. When I read about the symptoms, I kind of started to worry. I have been feeling nauseated occasionally when I've eaten barely more than just a snack or after drinking more than a few sips at a time. My belly always feels bloated and firm, like it's full of gas, but not relieved by passing gas. Is this what ascites feels like? Would this mean there could be liver mets too?
My case is going to the tumor board on Tuesday. My oncologist is not really giving me any information. She is not sure if she's sending me down an imaging rabbit hole for no reason. She doesn't know if I should have a PET-CT and/or biopsy, hence the tumor board. Meanwhile, my mind is going to all the what-ifs and worse case scenarios. Anyone have any advice or information?