Does Lyphedema spread?
Do you know if arm lyphedema can spread to the leg? I had a total masectomy last year and had 1 sentinel node removed. I was diagnozed with lyphedema in the right arm 3 months later. Earlier this year, I had DIEP flap reconstruction. Just 1 month after the surgery, my right leg starts to swell. My right toes get swollen after I walk or drive for a few minutes. My right shoe is so much tighter than the left shoe to the point where it hurts. If I sit down for a long time (1hr+), my right thigh becomes very numb. You can tell my right thigh is visibly thicker than the left one. The right thigh also feels more firm than the left. Sometimes, I feel tingling and pain when my right leg swells. If I elevate the right leg, the swellness goes down. It just feels exactly the same when my right arm started to swell. I am worried that I might have lyphedema in the right leg as well.
I went to see a lyphedema therapyist today, she will not treat my leg because I only have a referal for the arm. She ask me to see my surgeon first to make sure it's lyphedema. I mean my surgeron only deals with breast reconstruction, he won't be able to diagnoze lyphedema. She said removing a sentinel node in the arm won't affect other areas of the body like my leg. But I heard from another therapyist that even missing just one lyphm node, it can affect the lymph fluid movement for the whole body.
I'm so worried and scared because I don't know who's telling me the truth. And I can't seem to find anyone to help me with my leg.