Possible BRIP1 mutation, any help is appreciated.
Hi! I hope it's ok I post here, I am very new so apologies if I do this wrong. I know nobody here is a doctor but I'm looking for any advice I can get right now:
I semi recently learned my mother has the BRIP1 mutation, her and her cousin got tested after her cousins brother passed from lymphoma (unrelated)
I am very shocked to learn this because we do not have a history of cancer in the family, only a little on my moms fathers side (which is where the mutation comes from) but everyone in my first degree family rarely has any health issues. My mom got a hysterectomy at age 58 and was never diagnosed with cancer.
My dilemma is I want to know my risk, but my moms genetic counselor told her to tell me not to test until I'm 30 because of some insurance reason (I just turned 24, and I don't have money or insurance to meet now anyways...)
For those who don't know about BRIP1 it gives you a higher chance of OC (10% instead of 2%)and possibly BC, it's definitely not as scary as the bigger genes but still elevates risk.
Guidelines for this mutation say I don't need to do anything until around age 45-50, considering none of my mothers cousins got BC until they were in their 50's, is it safe to assume I have time to wait this out?
I certainly don't want to put myself into forced menopause until I need to, I just feel trapped and confused and I have no one to talk to, I'd again really appreciate any advice I can get on this matter!! Thank you.