It's been awhile....
It's been awhile since I've checked in. This forum has changed a lot since then. I can't find the usual discussions I stalked and participated in - so starting a new thread.
You may see from my history that I was diagnosed as a Stage IV de novo with lobular at the age of 50 (mets to innumerable bones). That was in 2018 - seems like a lifetime ago. This website was so valuable to me in the beginning for gleaning support, information and tips about my diagnosis and treatment. I even traveled out of state to meet with a fellow member to commiserate and bond over our mutual diagnosis.
I wanted to report that my most recent imaging showed no activity from my stupid, lazy cancer. None of my imaging since diagnosis (FDG and estrogen avid scans) have ever showed any activity. Aside from the minimal side effects from Ibrance/letrozole, my life has not changed from pre-diagnosis. I still work full time, I have custody of two rambunctious elementary school boys, I am as active as ever.
Back in 2018, when I was first diagnosed - I thought I was going to die any day. I was in a terrible and dark place. This forum gave me an anchor. I hope my story gives light and hope to you.