Bone metastasis or osteoporosis. Very anxious.
Hi everyone. I was diagnosed with Stage 1a, Grade 3 IDC in August 2020. 3 tumors all about 1 cm each. 1 of 4 nodes had a micromet. Onco of 34. Had a double mastectomy 4 rounds off DD AC and 4 of DD Taxol. Then right on to arimidex which I still take despite aches and pains.
I fell at the beach in August and then lifted a lot of stuff last weekend. Back pain suddenly markedly worse. CT Scan at ER showed fractured lumbar spine. CT scan at radiology place notes mention “lyric abnormalities” and “concern about bony metastatic disease”. My MO will commit to nothing, as if there are other possibilities, until after the PET scan of my bones, followed by biopsy.
I started this whole journey well into osteopenia, I’m tall and on thinner side, and my gyn once told me I really needed to look out for my bones. Arimidex doesn’t help all this! I guess I’m asking has anyone else been through something like this? Can what the regular CT scan sees turn out to be different on the bone scan with iodine?
I always knew becoming metastatic was a real possibility. I just never thought it would come so soon. 1.5 years after ending chemo. But, as we all know, there are no rules for any of this.
Thank you for listening.