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Kisqali (ribociclib) and ILC

tweedle
tweedle Member Posts: 17
edited January 2023 in Hormonal Therapy - Before, During, and After

I am having results with Kisqali, anastrozole, and Zometa undergirded with lots of prayer. I have had debilitating bone pain in my back for over 2-years. Finally diagnosed with Advanced ILC 27 Sep 2022. I started anastrozole in Oct, Kisqali in November, and had a Zometa injection in December. Two days ago, I became aware that the cancer caused back pain is relieved completely!!! I am so grateful and happy. I can't say anyone else will experience this same effect, but I wanted you all to know what I experienced because it is a miracle to me

Comments

  • mandalynn
    mandalynn Member Posts: 22

    I am in a similar situation. I had a fever two days after taking my Femara and Kisquali… and then all my aches went away (almost… one spot in my back). I definitely think it was cancer die off! I hope we both get many years progression free.

  • laguna24
    laguna24 Member Posts: 97

    Are you still there? How do you feel now? I had ILC back in 2008, but it came back in May 2024. Now on Kisqali/Letrozole plus Prolia and some of my mets resolved after two rounds. But on my third round I have some itching. Looks like allergic reaction. Just wondering if you any SE

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