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radiation-induced atypical vascular lesions (AVLs)

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I've had radiation treatment twice for breast cancer in 2009 and 2019. In 2021, I developed four atypical vascular lesions on my mastectomy scar. They are a rare complication of radiation treatment and had to be removed. The surgeon removed them because in some cases these can lead to angiosarcoma, which is a death sentence.

I am just wondering if anybody else here has had them. The sarcoma doctor at NYU said I was one of only 200 cases worldwide.

Comments

  • pfogart56
    pfogart56 Posts: 1

    Hi

    Yes I have atypical vascular lesion on my right breast due to radiation. Had surgery to remove then but they came back. My breast surgeon has me go into check them every 6 months. It's really scary. I go again in July.

  • Is there an oncodermatologist at your cancer center who can monitor them besides your breast surgeon?