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Anyone have acceleration radiation?

pinkrules
pinkrules Member Posts: 107

Hi, I'm new here. My biopsy result was DCIS stage 0. A lumpectomy was performed, my surgeon said no further surgery is needed. Radiation is next but the thought of five days a week for six weeks depresses me. Has anyone did the acceleration radiation? I could handle that to shorten treatment. Can we firmly request it or are we at the mercy of the radiologist recommendation?

Comments

  • moderators
    moderators Posts: 8,633

    Hi again @pinkrules,

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  • harley07
    harley07 Member Posts: 363

    @pinkrules - sorry you’ve had to join us on this forum, but I’d like to extend a warm welcome. I had 5 sessions of accelerated partial breast irradiation. This was per my RO although she did not explain the rationale for the accelerated treatment. It may have been my age (63 at diagnosis), or that I was only Stage 1 or that it was at the height of Covid in January 2021. I tolerated it very well. So far I am doing well, although honestly I haven’t had a mammogram in 2 years (long story 😞). It would certainly be worthwhile asking about accelerated treatment.

    Best of luck.

  • dsc
    dsc Member Posts: 50

    hello! I was given the choice of 19 long course or 6 short course, more intense radiation treatments. I chose 6 and completed treatment last Wednesday. I’m still in the delicate stage where skin issues can develop, but I’m very happy to not be going to the cancer centre again this week and next! ! Wishing you the best.

  • hannavas1
    hannavas1 Member Posts: 1

    I just completed 5 days Friday 9/1/23 with an additional 4 boosts to the surgical site at Stanford. The 4 boosts because it was 3.3 cm and aggressive. So far I am ok, skin is fine, a few mild, random pains now and then, but totally tolerable. The US is slow to get on board with this. The UK has been offering this treatment for awhile.

  • moderators
    moderators Posts: 8,633

    @hannavas1 - We just wanted to drop a note to say hi and welcome to our incredible community! We're sorry you have to come here, but really glad you found us and shared your experience. Let us know if you have any questions for us. We're always here!

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    The Mods

  • pinkrules
    pinkrules Member Posts: 107

    Thank you everyone. Still trying to figure out how to post here. lol My radiologist gave me five options to choose from. It was very empowering. No radiation, accelerated partial 5 day or full breast, 15 day partial or full breast. I chose 5 day partial. Had three treatments already and doing great. Again, thank you everyone for your well wishes!

  • simpop7
    simpop7 Member Posts: 8

    @pinkrules Can you share more about your diagnosis and treatment? I am Trying to decide on radiation and no one has offered the partial or accelerated option tho I’m in a grey zone of even getting radiation.

  • pinkrules
    pinkrules Member Posts: 107

    Hi simpop! Here's what my biopsy report said.

    DIAGNOSIS:

    1. Right breast, lumpectomy:

    - Ductal carcinoma in situ, grade 2, small foci ranging from 0.1 to 0 .3 cm

    But the surgeon said I had stage 0. I don't know the difference honestly. Because of my age, 67, I had a choice of no radiation or radiation including partial accelerated (only five days). I chose to have partial accelerated radiation to rest my mind. It honestly was a breeze, no problems or pain. A little darkness. I applied Aquaphor 3-4 times a day. A little tired but not what I thought it was going to be. I was so stressed out for nothing! Today was my last day of radiation!

  • pinkrules
    pinkrules Member Posts: 107

    PS. Ask your radiologist your options and if you're a candidate for partial accelerated. I look at it as a reassuring boost although I had a choice not to have radiation because of my age and early breast cancer.

  • simpop7
    simpop7 Member Posts: 8

    @pinkrules congratulations on your last radiation session! I’m sure you feel so relieved.

    When I asked about my options, they didn’t really seem to give me any. Other than to do it or don’t do it I will pursue this again one of the reasons they want to give me radiation is because of my age, I’m 45 if I was older, they said they wouldn’t offer it to me. I also had a micro metastasis in one lymph node. This is where the gray zone lies. So though I might have some benefit from radiation, it’s uncertain to say how much.

  • pinkrules
    pinkrules Member Posts: 107

    Thank you so much for the congratulations, Simpop! Tomorrow I see an oncologist in the same breast cancer facility to discuss hormonal treatment. Wow, it unfortunate you are in a situation that doesn't go into detail or even seem to know about your radiation options. I'm so sorry, we don't need more worries. Where I went, one of Summit Health's centers, they have all new up to date radiation equipment. My radiologist said when she was an intern, partial breast acceleration wasn't even being performed yet. A lot has changed, thankfully. Please keep the forum updated! Ask right out about this treatment. If not satisfied, and if possible, go elsewhere? The radiation while I was on the table was only five minutes long! I was in and out. Setting up my position on the table did take a few minutes too.

  • rlschaller
    rlschaller Member Posts: 217

    I know it’s been a year since this thread was active, but here goes. Anyone recently gone through accelerated ? I’m 66 and going to do the 5 day whole breast accelerated program. I was glad to read how easy it was for you @pinkrules . And only 5 minutes ! Was it only one dose a day? Or multiple ? Hope you are still doing well, Rhonda

  • ismacurler
    ismacurler Member Posts: 17

    I just finished my accelerated radiotherapy. Invasive breast cancer, stage 1c, grade 2, 11 mm. Partial mastectomy with balancing reduction and lift at the end of July. Finished 5 treatments 5 days ago. To be quite honest I thought I would sail through it as it was “only” 5. Everyone talks about the skin issues, but for me I had breast pain from the get go and intermittent fatigue. The pain bothers me because I am already having issues with hypertrophic scarring under my breasts from the surgery. That being said I have read enough to understand that everyone reacts differently and there appears to be no way to know how you will react. Just don’t think that only 5 means less risk of reaction. Best of luck. P.s. the treatment itself is really not an issue, no pain or anything during. The first was the worst because of the fear of the unknown.

  • rlschaller
    rlschaller Member Posts: 217

    thanks @ismacurler for your post. Sorry to read about your breast pain. I hope you can find relief for that, and it does not last too long. Perhaps your medical team has stretches or meds or creams to help? I agree, the fear of the unknown is always worse, it’s the uncertainty of it all. Can weigh on the mind, good to notice it when it pops up and as much as possible and let go. I visited the radiation dept today for my mapping CT scan, and the radiation therapist was very helpful answering my questions. Rhonda

  • pinkrules
    pinkrules Member Posts: 107

    Hi! It's been over a year since my radiation and I'm doing very well. Recently had a breast MRI, no cancer detected. I had one dose per day for five days. I think that's what you meant? Three days the first week, two days the second. I chose partial radiation instead of whole breast out of fear but because it was so easy, I wished I had chosen whole breast radiation. I wish you the best of luck! Ringing the bell after the last radiation and getting a certificate was a great moment!

  • pinkrules
    pinkrules Member Posts: 107

    True, only five days for me meant only five days of treatment compared to 15 days. I just couldn't go through traveling five days a week for three weeks. So I chose acceleration radiation, which is a stronger radiation treatment.

  • rlschaller
    rlschaller Member Posts: 217

    @pinkrules thanks for the update. Wonderful that you are cancer free. I’m glad they offered me the option of accelerated over 5 days. I work full time and fixing my schedule for a week I can manage lol… 3 or 5 weeks would be crazy ! Take care - Rhonda