Perjeta and itching
I think this has been discussed a while back, but I was wondering if anyone has anything new to report. I’ve been on Herceptin and Perjeta for about 7 years so far. Weird itching on both my arms (without a rash) started about 6 years ago… got progressively worse, and I’ve been on and off various medications to try to mitigate it. Oral meds, topical, acupuncture, ice packs etc. Now it’s itching/burning on the sides of my neck, shoulders and arms. My new-ish oncologist recently said this is a side effect they sometimes have seen with Perjeta. I decided to take a break from the Perjeta to see if that would help.
Has anyone else has a similar experience? I’m just wondering how long it might take for the symptoms to (hopefully!) stop after I’ve been on Perjeta for so long… seems like I should be patient but the itch/burning pain is so frustrating and impacts my sleep. Thanks for any thoughts. 😊
Comments
-
I’ve been on Phesgo (Herceptin/Perjeta injection) for almost two years. I have the same itching problem. Only my forearms so far. Sad for you that it is happening other places. Makes me worry 🙁. What oral meds have you tried? I’m still getting some relief with external creams and lotions. I also have a drippy nose-annoying but manageable.
0 -
I have been on Herceptin and Perjeta for almost four years now, and Phesgo (injection version) for one year. I have the same terrible itch, it's like pins and needles, and gets worse at night when I am trying to fall asleep, but definitely can be activated randomly throughout the day. It's on my arms and back of my neck, as others have stated. Lately it's also been on my scalp. Ugh! My left arm is always the worst though. I also have the drippy nose thing @lakehousegal ! Ugh.
I haven't found much that helps, and it really does make you feel crazy. Sounds like many people try Claritin and Excedrin PM? I use Eucerin skin calming cream that kinda helps. Good luck to everyone. xoxo
0 -
Hey there, @marlapdrsn! Welcome to the community, and thanks for posting and sharing your experience with us. 😊 Hopefully, you'll find some useful tips from other members here. For now, here's an article from our main site that you might find helpful: Managing itching
Looking forward to hearing more from you soon!
The Mods
0
