Anyone on TRUQAP?
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Hi. Is anyone out there on drug trial for Scorpion's PI3Kα inhibitor program STX-478?
If so, how is it going?Sad to say, had progression on Truqap after 12 months and current looking for “the next” treatment plan.
Drug trial is one option I’m being offered.
thanksKat
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Fellow Truqap people. I regret to report that after three months on the drug, my liver mets multiplied. Of course, I'm disappointed because I had an easy five-year run on Ibrance and my SFs on Truqap were equally mild. My next course is Enhertu. I've already checked out the Enheru thread. Best wishes to all.
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Hi all, just popping in here to provide our site's information on this topic:
We hope this helps!
—The Mods
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I am still on Truqap. The last scan a week ago showed mixed results and maybe a tiny progression. The scan before that was really good. I have been on half a dose since last August. We are upping the Truqap dose To 320 two times per day to see how I respond now and to try and get more time out of this drug. My D is under control on the half dose.
It seems to still be working but not quite as well - thus the upping the dose.
I have been on it consistently since August so we are approaching the one year mark. 🤞🏻0 -
Hi, I am a 19 year old female with metastatic stage 4 ovary cancer that has relapsed twice. I recently had surgery because they found another cancer tumor growing in my lung this time. My doctor has been recommending me to start on truqap for about a year now. I am seriously starting to consider it now since my 4 rounds of hardcore chemo did not work at all. I came here because I needed to hear from other ladies how their experience went. I am terrified of starting chemo again, especially losing my hair at this age is hard. Did you guys lose your hair on this pill? If you have any words of advice for starting this pill or encouragement, it would be very helpful. I am so sorry you ladies are going through this. We'll all get through it ❤️ god bless!
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Hello @ilovecats12. Thank you for posting your story in the BCO Community forum.
We’re so sorry to hear what you’re going through. Please know you’ve come to the right place. This community is filled with people who truly understand and are here to support you.
If you haven’t had a chance to explore the site yet, I’d like to share a link with you about Truqap. Hopefully, this resource can offer some helpful insight while you wait for other community members to respond and share their experiences.
The BCO Mods
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@ilovecats12 I was only able to stay on Truqap for 3 months due to progression, but I was ready to stay on forever. I had mild side effects and there was no hair loss. My co-pay situation was a nightmare, however. I know some other people on this thread had issues as well. I was going to be out-of-pocket for thousands of dollars a year even with a co-pay card and a grant and great insurance. Not completely sure why Truqap was different from, say, Ibrance, in terms of dollars. Even so, it would have been worth it for me. I hope you do well with whatever treatment option you choose.
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@ilovecats12 Welcome to this thread. I am very sorry that at your age you have to go through such an ordeal, but I sense from your message that you are a very courageous person.
I was on Truqap for 6 months and I didn't lose my hair, on the contrary, it started to grow back slowly after losing it under chemo.
I tolerated Truqap well (better than any other targeted therapy). The major problem was diarrhea which was controlled with Immodium and a low fiber diet.
I hope this treatment works well for you. Best thoughts.0