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What counts as "active treatment"?

What counts as "active treatment"? I'm honestly asking, since I am in that weird liminal zone between "done with surgeries" (I hope), but "still taking meds."

Comments

  • exbrnxgrl
    exbrnxgrl Member Posts: 4,648

    I have not given this much thought but I would think that any treatment is active treatment. Whether you’re in the midst of chemo or taking anti-hormonals, you are treating bc. I doubt that there’s a hard and fast definition for active in terms of treatment but is there a reason that this has some importance to you?

  • moderators
    moderators Posts: 7,685

    Hi @saltmarsh! Our main site has an article that might give you some insight into active treatment. You can check it out here: Beyond Treatment: Expecting More From Your Follow-Up Care (After active treatment for breast cancer ends, navigating ongoing care and support can be a challenge.)

    Hope it helps!

    The Mods

  • moderators
    moderators Posts: 7,685

    Also, @saltmarsh, many of our members consider "active treatment" as the treatments initially after a breast cancer diagnosis — surgery, radiation, chemotherapy — and "passive treatment" as the treatments that are more long-term after active treatment — such as hormonal therapy or targeted therapy.

    We hope this helps!

    --The Mods

  • exbrnxgrl
    exbrnxgrl Member Posts: 4,648

    mods,

    Is there a formal definition of active treatment or is what you outlined a casual distinction?

  • moderators
    moderators Posts: 7,685

    @exbrnxgrl This is not a formal definition, but how we distiguish our non-MBC Zoom Meetup members between the In Treatment meetup (active treatment) and the Bonded by Breast Cancer meetup (passive treatment).

    We hope this helps.

    —The Mods

  • exbrnxgrl
    exbrnxgrl Member Posts: 4,648

    Thanks! So what you’re saying is that there is no medical definition of the term but rather an informal distinction that has been made on bco?

  • moderators
    moderators Posts: 7,685

    Yes, correct.

  • maggiehopley
    maggiehopley Member Posts: 97

    I considered my time on targeted therapy- Kadcyla- as active treatment, because it required trips to the infusion center, regular bloodwork, and a visit with the oncologist every infusion. Now that I am only on anastrozole, I consider myself no longer in active treatment. I don't need my bloodwork monitored, I take my meds at home, and only see my MO every six months, so she's not actively treating me.