DCIS recurrence 4 years out from IDC
I love all of you but really never wanted to revisit these boards!!! However, I need some sanity and most of you know the anxiety, worry and sick feeling in the pit of your stomach with a diagnosis - let alone a recurrence. Jan 2020 - diagnosed with IDC ER, PR+, HER2- Grade 2 - KI67<5% - 2 tumors and one lymph node involved. Had a lumpectomy, 30 radiation treatments and been on tamoxifen faithfully ever since. Have been doing well other than some mild lymphedema and residual telangiectasia.
Fast forward to now - 2 mammos and biopsy with results of DCIS High Grade with comedonecrosis ER, PR-. Different than what I had before, but considered a recurrence. I want to throw up.
I have a breast MRI scheduled, see my oncologist on Monday and see the surgeon on Tuesday morning. I don't even know what I am asking here at this point - just trying not to spiral. I work for the health network, although I am not clinical. (Just know enough to be dangerous). I am so angry at the moment, because I feel like I did everything right (lumpectomy, radiation, tamoxifen, lost weight, stayed active, etc.) On the other hand I am grateful that we have technology that can find things at an early stage. Back and forth…. up and down…… grrrrrr.
Without jumping the gun, I am already thinking bilateral mastectomy - had I done that in the first place, maybe I wouldn't be here now. Take the stupid boobies that are nothing but trouble!! I turn 55 tomorrow. I am on my second marriage and the last 10 years in this relationship have been the best times of my life - I LOVE my life and just want to be here to live it!
I am PETRIFIED because the surgeon already mentioned scans, etc. looking for distant mets even though no one 'thinks' that will be the case. Every little pain I have now I am freaking out!! Sorry I am rambling - just need to type it all out to even make sense of it. So many feelings, questions, worries, etc.