Medication for ER positive breast cancer
I was on Arimidex (name brand anastrozole) for 8 years after my last breast cancer diagnosis. Even though I was taking the drug, I still got a new breast cancer - one that is ER+ (last cancer was triple positive). The cancer was tiny (5 mm) and was actually totally removed with the biopsy. I had a mastectomy and the cancer is not in any of my nodes. Wondering what type of treatment others received if they were on an AI and still got a diagnosis of a new breast cancer. Did you switch AIs or did you get a different treatment? Thank you.
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I had DCIS stage 0 in rt breast found during a reduction surg., 2/23. The pathology also showed atypical lobular hyperplasia in both breasts. I Opted for a dbl mastectomy. A 4mm ILC was found in the left breast. Nodes negative, lymphovascular fluids around the ILC clear, stage 1 grade. ER+, PR+, HER2-. I am post menopausal at 63. Have not decided to take any AI. My med onc told me that was my choice. He, of course, is not happy with me. I already have osteopenia. Really miss what little BHRT I was using topically. Cannot imagine getting rid of what estrogen my 110# 5’2” body makes. I am doing a functional medicine approach, diet, many supplements and exercise. Lots of prayer and gratitude. I have no chronic health issues and am not on any meds routinely for any health issue. ONCODX test score was low for recurrence, no need for chemo or radiation. I do still have concerns, but the risks of the AI meds seem to out weigh the benefits for someone my age and with the stats of my BC that was found. I am so sorry you have had recurrence even on meds. There needs to be more options for us. A cure would be nice. My Iodine level was low. There is a lot of info on that being a pre-cursor possibly to BC?
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I had Stage 1 Invasive Mammary in May of 2017; double mastectomy and 4 rounds of chemo. Was also on Arimidex. Found a 2.5mm mass very close to the original area in late 2024. Invasive Lobular, but it's not clear whether it's a recurrence or a new primary tumor. Had 3 weeks of radiation and am now switching to Exemestane and Kisqali (400 mg daily I think). I'm very nervous about side effects for these. I managed Arimidex well, but I don't know if that will carry over to these drugs. Really concerned about hair loss. I know it's vain, but I just worry most about this! Any experiences to share?
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Hi @cards1978, and welcome to Breastcancer.org! We're so sorry for the reasons that bring you here, but we're really glad you've found us. You're sure to find our incredible community a wonderful source of advice, information, encouragement, and support — we're all here for you!
It's possible others will stop by to weigh in on their experiences with Aromasin and Kisqali, but since this thread is a little older, it may not get as much attention as if you started your own thread in the Hormonal Therapy forum. So we encourage you to please create your own new thread to get the most responses. Let us know if you need help!
Also, there's an extensive thread called Life on Aromasin you can read through to find out people's experiences with this hormonal therapy.
We hope this helps you get started. Let us know if there's anything else we can help with!
—The Mods
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