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Tumor marker results and changes truqap

nini69
nini69 Member Posts: 2
in Stage IV/Metastatic Breast Cancer ONLY

I have stage iv metastatic breast cancer in my bones. Multiple sites. I was on ibrance. Now on Truqap. .

My tumor markers jumped 25 points recently . My oncologist does not seem very concerned. What kind of jump have you had that the oncologist was concerned about?

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Comments

  • moderators
    moderators Posts: 8,736

    Hi @nini69, and welcome

    We hear from so many that it is more about the trend over time, along of course with the scanning.

    Was this the first time they were elevated, or have they been going up over time?

    We're glad you found us.

    Your Mods

  • nini69
    nini69 Member Posts: 2

    I know we are looking for patterns and the petscan is the “real” test.

    i am now on a half dose

    I Couldn't tolerate the higher doses .

    My markers have been going up over time and are now “stabilized” and going up and down between 105-125. How high can they go? I have no idea

    I am just wondering if I should be expecting them to go down to the other level of around 75 or lower if Truqap is working or if this is my new normal range.

    I guess i am wondering if the half dose will work. I was on Ibrance for years

    I guess I just need to wait and see. Not knowing is hard. I am wondering what others are experiencing.

  • maggie15
    maggie15 Member Posts: 1,434

    Check out the thread "Anyone on TRUQAP?" to connect with those on this treatment.

    https://community.breastcancer.org/en/discussion/886252/tumor-marker-results-and-changes-truqap#latest

  • soldanella
    soldanella Member Posts: 23

    @Nin69
    I have been on Truqap for 24 weeks. I have just stopped it for 15 days due to severe skin rashes and I will start it again next Monday (400 mg/day).
    Before starting Truqap my CEA was at 225 and it went down to 27 and my Ca15-3 from 180 to 26.
    The last Pet Scan did not show any active resumption of the disease and I was super happy with my lab values. Now after 2 weeks of break my values ​​are already going back up!
    I do not know what my oncologist will think but, as for you, he always tells me that the pet scan is the reference.
    I agree with you that not knowing is difficult and I am waiting with apprehension for my pet scan in December.
    Courage for the rest of the treatment. Give us news.

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