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DCIS - second opinion regarding a masectomy

Has anyone gotten a second opinion on your treatment for DCIS? My area if 4+ cm and the surgeon is recommending the complete masectomy of that breast.

Thank you.

Comments

  • maggie15
    maggie15 Posts: 1,626

    Hi @theunexpected, It's worth getting a second opinion from a breast surgeon experienced in oncoplastic surgery. My tumor was 3.2 cm; the surgeon did a lumpectomy using an internal flap of my breast tissue to rearrange things so that I ended up with a good cosmetic result.

    Much depends on the amount of breast tissue you have. Some people with large breasts get a lumpectomy and have a breast reduction on the other side to even things out. It is tricky to estimate the size of DCIS since it can be larger than it appears on imaging. I actually went into surgery having signed off on multiple plans: lumpectomy if possible, mastectomy with tissue expander if not, SLNB if those lymph nodes appeared relatively normal, ALND if they did not. I ended up with the oncoplastic lumpectomy and SLNB which was my first preference. My surgeon was very experienced and had stellar ratings and recommendations so I trusted her to honor my preferences while making sure all the cancer was excised. It might involve travel to find such a surgeon but I thought that was worthwhile.

  • Thank you very much. I appreciate your detailed response.

  • waves2stars
    waves2stars Posts: 147

    Get a second opinion so you can be bettet prepared to make a decision. I was on the fence between lump and mx for idc, but the plastic surgeon at one of the best facilities said the location would would cause a significant cosmetic defect. I’m glad I had the mx because I had over 2cm of unseen dcis in final pathology, and because of the clean margins and nodes I was able to avoid radiation. A good reconstructive center may be able to offer you a lumpectomy, so it’s worth it to check.

  • Thanks. What I learned is that the area of the dcis will likely require the mx. But I will continue to research options.