RBS-red breast syndrome
I believe i maybe experiencing RBS. About 6 months after prophylactic dbl mastectomy direct to implant under skin w Alloderm. Originally diagnosed 2019 stage 1DCIC, her2+, L breast, lumpectomy and bi lateral reconstruction, followed by radiation 2020. 2021 left breast revision due to necrotic tissue from radiation. 2023 dbl mastectomy as more issues on left breast. We are now back to RBS.
Presented about 6 months post surgery in left breast only. Chills, fever, headache flu like symptoms. Bright red to purple breast tight and implant pushed up the chest wall and Capsular contraction. Prescribed Bactrim, Rifampin. Took two 7 day course's to clear. Then did the capsular contraction NIH protocal, doxycycline, singulair and vitamin E for 3 months. Symptoms returned in 6 months after the first episode. 1 antibiotic regimen plus steroid pack. Back 6 months later, treated w steroids. Back 8 months later, steroid pack- which is where i am now. The steroids seem to solve the issue, however it keeps returning. I will also get some mild redness now and then, with no symptoms and it clears on its own.
Anyone having repeat??