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In Treatment? Join us on Zoom, Tues & Thurs weekly!
Hi Everyone, We have created a weekly virtual support group for all who are planning or going through active treatment. If you've just been diagnosed and are planning surgery, chemo, or radiation, join our weekly Zoom Meetups. We have two meetings for you to register for: Register here: Tuesdays at 1:00 PM…
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Important Links for Newbies to Help Get Through Treatment
Some helpful information for all types of treatment for breast cancer on the main Breastcancer.org site: Treatment & Side Effects features extensive information on all types of breast cancer treatment, and what to expect with those treatments, including Surgery, Chemotherapy, Radiation Therapy, Hormonal Therapy, Targeted…
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In Treatment Zoom Meet-Ups: Place to keep chatting
This is a space held for our In Treatment Zoom Meetup members to gather in between meetings for updates and support. Join our Virtual Meet-ups! Tuesdays at 1pm ET, register here: https://us02web.zoom.us/meeting/register/tZEvc-uurzgvHNyvhpw-l0KPkwjlKN_KbOeC#/registration Thursdays at 6pm ET, register here:…
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Hat
does anyone wear a wig or a sleep cap
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Open Letter
I am a husband/ caregiver... I didn't know where this should be posted---and since my wife is going through treatment now, I just picked here. I have lurked since my wife's diagnosis and have been posting only for a few days. I can recognize a sisterhood when I see one. An army of kind souls. I am humbled by your humanity.…
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Stamina and fatigue four months after treatment?
I feel like I went through a year that has certainly taken it's toll. Chemo, radiation and then Herceptin. It has been four months since I did the last Herceptin but as I look back I felt like I dealt with each modality better with more energy last year when I was going through treatment. Before all this (and I am older) I…
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Golden Milk Latte
Hi Carolyn - First, sending over my care and support. : ). I hope this message finds you well! Is there a specific brand of the Golden Milk Latte that you like? I am checking them out and there are so many. Thank you!
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Cold Capping treatment
How do I get this Cold Capping treatment at my hospital? I've done research on it & I've found that DigniCap & Paxman have the automated machines, but my hospital isn't one of them. (the closest place is over an hour away). What do I do? I'm on Medicare & it does only cover the automated ones. My 1st treatment is next…
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Oral Side Effects of Breast Cancer Treatment
Oral Side Effects of Breast Cancer Treatment September 27, 2024 Suffering from mouth sores or dry mouth? Dr. Thomas Sollecito offers solutions. A number of breast cancer treatments, including chemotherapy and some targeted therapy medicines, like Herceptin (trastuzumab), can cause oral side effects, including mouth sores,…
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Pain
I had a breast reduction and 2 lymph nodes removed. Got a new oncologist and he says my pain in my ribs is most likely from nerve pain. I had full body bone scan and only degenerative stuff was in different parts of my body but nothing on my ribs except on spot that had a probably from radiation.
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Exemestane (Aromasin)
My MO recommended I leave letrozole because of SE and start exemestane. Can you please share your experience with this medication? Tips? Good news: Exemestane, a synthetic steroid drug widely prescribed to fight breast cancers that thrive on estrogens, not only inhibits the production of the hormone, but also appears to…
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Cold cap and hair re growth
hello, I am on my 9th chemo and still have seven to go. I do the cold cap, but my hair is starting to get thinner faster. I don’t use a hate, scarf or wig. I don’t put my hair up and only wash it gently once a week . If it gets much worse I will look scary, but I would still want to continue using cold cap bc apparently…
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CONSTIPATION--problem with so many of our drugs
This thread will talk about constipation. The nemesis of cancer patients. If you post helpful information make sure to identify that all recommendations should be cleared with your doctor. Preferably, your Gastroenterologist (GI doc) or Primary Care Physcisin PCP). Cancer docs, I would say that this isn't there strong…
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Eye Issues on Herceptin or Kadcyla?
Hello All, I was originally on Herceptin/Perjeta for HER2 positive cancer, but switched to Kadcyla after lumpectomy revealed some residual disease left. I now have Retinal pigment epithelial detachment (PED) which is a common manifestation in macular degeneration. While I am 61, I've never had any issues with my eyes and…
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Cold Caps Users Past and Present, to Save Hair
Hi all, I wanted to start a forum for all us that are using the cold caps to try to save our hair. I am on FEC100 X3 followed by Taxotere X3. My dosage unfortunately is not a guaranteed success. I am 40 days out from my first treatment and will have my third June 17. So far I have thinned but have not required a wig. I…
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Propoli for mouth sores
I just wanted to say here I'm doing propolis mouth rinse for moth sores. I recently read they were good for chemo induced mouth sores, so I tryed it out. It seem to actually work. I diluted in some water the propolis extract and rinse 2 time daily. Before having any new supplements I always read if they don't promote…
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Top 75 things you can do to TAKE CONTROL during your bc txt
So you have breast cancer? Sucks to be you (and me). Welcome to the club. I’m sure it is one you really didn’t want to join. Guess what? Me neither. Yet here we are discussing sentinel lymph nodes and nipple tattoos. One of the things I hate most about going through breast cancer is the complete lack of control. Research…
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Tips, Tricks and How to get through this Chit!
After talking with several members and asking questions, someone mentioned that it would be nice to have a tips thread. So here it is. Here's a few basic things for you to consider and please add any tips that worked for you. As BC sisters, all the help we can give each other will make the trip a little easier. - Always…
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What Is Palliative Care and When Do You Use It?
What Is Palliative Care and When Do You Use It? Jul 26, 2024 Palliative care focuses on pain and symptom relief. Dr. Joe Straton explains why it’s appropriate for anyone with breast cancer. Palliative care is often confused with hospice care, but the two are very different. This podcast is the audio from a special Virtual…
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Research on Side Effects at ASCO 2024
Research on Side Effects at ASCO 2024 June 21, 2024 Five researchers discuss their research on the side effects of breast cancer treatment. At the 2024 American Society of Clinical Oncology (ASCO) Annual Meeting in June, an entire poster session was dedicated to treatment-related side effects.Listen to the episode to hear:…
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Cold cap photos pre and post
There was a great thread of photos going through and after cold cap from 2018 showing results and how everyone managed afterwards. Would love to see this brought back and know more about how people are getting on with styling, growth, tips and when shedding stopped?
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Brand New - like FRESH
I’m sure I will grow to understand what many of you are going through and even talking about. I’ve had a mammogram , ultrasound - biopsy in armpit and breast. It came back as cancer. So now i am in the ‘system’ and have been booked for a Bone Scan, ECG, Oncologist and Surgeon this week. (4 different appts) I’m in Canada…
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How Are Your Oncologist’s Communication Skills?
How Are Your Oncologist’s Communication Skills? Jun 4, 2024 Dr. Fumiko Chino discusses her research on doctor-patient communication. At the 2024 American Society of Clinical Oncology (ASCO) Annual Meeting Fumiko Chino, MD, presented the results of research she conducted with Breastcancer.org on how doctors’ communication…
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Anyone been taking Verzenio?
Hi, I found out today that I will start on an AI drug along with Verzenio after I finish my radiation in about 6 weeks. I am reading about Verzenio and it is pretty daunting reading about all the possible side effects. Anyone taking it now that could share their experience? Also, how did you get it paid for since it is…
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Allergy due to Tamoxifen?
I have developed a few allergies symptoms since last year. I really believe it's due to taking tamoxifen (for 3 years) that changed my body (gut health maybe). I want to see if anyone experiences something similar…. In the beginning of few months when i started to take the tamoxifen, i had night sweats but that was gone…
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Mondor’s & Cording
I was diagnosed with DCIS February 2023 and had a lumpectomy last April and a re-excision in June followed by 21 sessions of radiation. I had a weird rope like cord stretch under my breast into the side of my stomach I noticed February 2024. My breast surgeon put me on a high dose of advil for a week and it did nothing. I…
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Kadcyla side effects
Hi, Like to know how tolerable Kadcyla is and it’s side effects. Appreciate any comments.?
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Abemaciclib Verzenio for All Stages
I've noticed there is a Verzenio discussion in the Stage IV only section, and another in the Stage III forum. I'm starting this thread because I think there could be a benefit from sharing between all the stages - especially when, and if, Verzenio becomes a more common standard of treatment. I started Verzenio 14 months…
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Delayed allergic reaction to Taxotere
Has anyone had a delayed allergic reaction to Taxotere? I had a severe reaction 9 days after my 3rd treatment of Taxotere. I thought I was having a heart attack, it turned out to be a severe reaction. It started with hives all over my head then moved to my arms. I was taken to the hospital by ambulance and they gave me…
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Tissue Expanders- I hate them!!
I had surgery on Monday and they put in tissue expanders and down the road plan to do the DEIP flap. I’m really starting to regret my decision on the TE’s. Do they ever get more comfortable? The one on the right feels like it’s over too far and affecting my right arm mobility. And have constant aches and pains associated…
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Changes in body shape after double mastectomy and taking aromatase inhibitor
I'm pretty old (age 74), and had my double mastectomy in August 2022 and did not have any reconstruction. I have followed-up with anastrazole daily medication. And even though my body has changed a lot over the years, I have noticed recently that my stomach/abdomen seems much larger. My weight is the same now as before the…
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Heart Issues and Breast Cancer: What's Your Experience?
February is American Heart Month All people — especially women — are encouraged to focus on cardiovascular health this month. Heart disease can be affected by cancer itself and sometimes can be a complication of breast cancer treatments. A MUGA scan or an echocardiogram (echo) may be performed before a person starts cancer…