Should I push for MRI?
Hi all,
A few years ago I posted here. I have had one breast that has breast tissue which feels thicker/firmer. Basically if you look up descriptions of ILC it's exactly what it sounds like in my breast. The other breast is much softer. I've had three ultrasounds, one where it was a consultation with a breast surgeon. Lots of discussions with my gynecologist. When talking to the breast surgeon she was literally like "boobs are weird" and told me it seems totally normal and looks normal on imaging.
Well I feel like I might have an additional area of firmness/thickening... though I am now breastfeeding so that throws a wrench into things. I have had a clog before in this area so I don't know what to think. I'm freaked out about ILC knowing it can take 5-10 years to be diagnosed.
Should I push for MRI or trust the breast surgeon? I'm 30 and first noticed something in 2020.
I do have an appointment with a gynecologist on Thursday. I'll discuss with them but I know they're generally reticent to do more on someone my age. Apparently there's only like 1500 cases of so of ILC in women under 40 yearly. So I get it. But now that I have a baby I am worried sick.
Comments
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Hello, sorry you feel causes for concern at such a young age. As a mom, of course you're concerned because it's notmal. It's usually beneficial to advocate for ourselves, which you are doing. Being "worried sick" may possibly not be the healthiest for our emotional well being, but focusing on the present, while embracing the beauty of springtime, will bring us all much more positivity.
If you're uncomfortable with your current medical team's recommendations, you may seek a 2nd professional opinion elsewhere. But please bear in mind that MRI technology could possibly yield false positives, which may also possibly increase your worries. Medicine, unfortunately, is imperfect. Wishing you a worry-free night with your baby.
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@hamster_fan It sounds like your gynecologist appointment today is for a 2nd opinion. Emphasize that an MRI now will provide a baseline for future comparisons.
As obsolete describes, that kind of scan is sensitive but not specific. Meaning it can show things to investigate however what they actually are may be unclear. It’s nice that you have a precious baby to distract yourself from catastrophic thoughts!
My lobular cancer remained hidden for years when “architectural distortion” was seen on old style film mammography, followed by normal appearing ultrasound. Once digital became available around 2010, we finally got a better look. The ILC was found first, with a small spot of IDC up under my arm.
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Honestly, if something still doesn’t feel right to you, it’s okay to trust your gut and ask for more testing. Even if the odds are low, your peace of mind matters. Maybe bring up the MRI at your next appointment and see what your gyno says. It’s better to feel annoying than to stay anxious. You’re not overreacting.
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I’d say bring it up with your gynecologist and see if an MRI might help give you some extra peace of mind. Your health matters, so trust your gut and don’t be afraid to ask questions.
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I believe there are organizations that will basically let you self-pay for an MRI and you don't need a doctors referral or prescription. I found this service in Wisconsin, for example.
I think that whether or not you go that route, you will be well served to also bulk up your support/treatment for anxiety and mental health.
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