Newly diagnosed Stage IV
I just got my diagnosis after PET scan and my bc has metastasized to my sacrum, lower spine and ribs. The gave me tamoxifen for cancer and Dilaudid for my intense pain. No chemo, no radiation…just a pill. I had anyone had this? First it’s been 7 years since I had lumpectomy, 5 years off of Arimidex, and this took me by surprise because I didn’t know it could go to other areas of the body. I’m not even sure if I am posting in right area. Thank you patient moderators. Abit freaked out but grateful at this time all I have to do is take a pill, and super grateful for pain relief and hope it gets better. ❤️
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@xsuzx — we’re so sorry you’re going through this. The pain you’re describing is, unfortunately, something we do hear from others in similar situations — you are not alone. We replied to you in your other thread as well, but wanted to make sure you saw this here.
Have you had the chance to speak with a palliative-care or pain-management specialist? They focus specifically on managing symptoms and improving comfort, and many members find that really helpful. It may also be worth talking with your doctor about additional options for pain relief, including whether radiation to painful areas might be considered.
If you’re interested, we’d love to have you join one of our Zoom support groups for people living with metastatic breast cancer. They’re a very understanding, compassionate space, and many find comfort in connecting with others who “get it.”
Please keep reaching out — you don’t have to navigate this alone, and we’re here for you. 💗
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Thank you for you help and support.
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