Angiosarcoma of breast
Hi everyone - I was diagnosed with a very rare cancer called Angiosarcoma - it appeared in my left breast and due to its aggressive natural I had a mastectomy and radiation
I am feeling blue and feeling awful about my body although I am in remission and I feel guilty as I should be grateful instead of feeling the way I do - joyless...
Anybody felt the same? It also has a high likelihood of coming back so it's tricky not to worry about that...
Xxx
Comments
-
Hi @yoko168, and welcome to Breastcancer.org.
We're so sorry to hear of the reasons that bring you here, but we're so glad you've found us. You're sure to find our community a wonderful source of advice, information, encouragement, and support — we're all here for you!
Here is some info about Breast Angiosarcomas.
We definitely understand how diagnosis and treatment can not only change the way your body looks, but also shift your mindset. Finding a "different normal" after treatment can be difficult and emotional. Here are some resources to help give you some tips and encouragement:
In addition, you can find others with a similar diagnosis by using our search tool — here are the results for "angiosarcoma": angiosarcoma - Community Discussion Forums
We hope this helps. And, if connecting in real time sounds appealing to you, we do offer our weekly Bonded by Breast Cancer Virtual Support Groups — for those out of active treatment and figuring out life after treatment. We hope you'll join us!
Sending hugs!
—The Mods
0 -
Thank you soooo much 😊
1 -
I'm so sorry you are going through this. I also have angiosarcoma. I was diagnosed with breast cancer in 2017. Small lump. Had lumpectomy & radiation (no chemo). In Dec 2023 I saw a purplish bruise on my right breast where it was radiated. I mentioned it to my daughter who works in medical records at Moffitt Cancer Center in Tampa FL. She turned white but tried to not scare me and said "Mom you need to get that looked at" I said OK at my next mamo. She said, "No Mom, you need to get it looked at right away. After she left I searched and found angiosarcoma. I was sick to my stomach. My husband was diagnosed with Alzheimer's in 2021 & I was caring for him. I went for an exam and they immediately did a punch biopsy & confirmed angiosarcoma. I had no choice but to put my husband in memory care and move in with my daughter to get treatment. That was in early 2024. I had chemo and double mastectomy with a flap on the right breast. They got clear margins. My husband passed away in August 2024. He never knew I had cancer thank God. I prayed I would live long enough to make sure he was well cared for. I did that. Every day beyond that is a Blessing. My scans were clear for 20 months no metastasizing. A few weeks ago I noticed a purplish thickening of the skin next to my left breast. I had a 6 month follow up with my surgeon 2 weeks later and pointed it out to the ARNP. She said she wanted to biopsy. She went & asked the surgeon to come in. He said 2 biopsies right & left breast to see if it was spreading toward the left. Both came back positive. I was referred to the Sarcoma Clinic at Moffitt. Met with Dr Brohl 4 weeks ago. Started chemo 3 weeks ago. Paclitaxel. I will have 3 months of chemo, then radiation for 5 days a week for 5-1/2 weeks. I'm scared about the radiation. Moffitt said the radiation I had in 2017 caused this angiosarcoma. After chemo & radiation I will have more surgery. Because of the way angiosarcoma spreads through the skin, blood & lymph system & isn't really tumors. They can't see it on scans. I would want them to be aggressive with treatment. The first surgeon I saw said she was only going to do a mastectomy on the right breast. Moffit surgeon said both breast and radical on the right with flap. I'm 77 years old so losing my breasts didn't matter to me. I wear prostheses. They asked if I wanted reconstruction and I said no. You might consider that. Feel free to reach out to me if you need to chat. Praying for you. Hugs. 💗
0 -
Hi, Yoko and Diane.
I am in the same boat. So far, so good after chemo, mastectomy, and a skin graft this past fall. I am 67 and received my diagnosis in April. While I sometimes get into the worry mindset—given the high chance of recurrence—most days I go about my business and am focusing on what I really would like to do in life. It helps that I feel fine, though I have minor complaints about the skin-graft donor site. I am curious about what kind of chemo you received. Like Diane, my cancer is secondary to the radiation treatment I received seven years prior for breast cancer. The surgical site certainly takes some getting used to.
0
