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Mucinous Carcinoma of the breast
On April 21st I had a core biopsy and today I was told that I have mucinous carcinoma of the breast. When I investigated on this website, the information given was that this is a rare type of cancer, about 2-3% of all breast cancers and usually occurs in post-menopausal women over the age of 60. I am neither. I am 51 years…
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Single Hormone Receptor Positive -> ER+/PR-/HER2-
Anyone else in this same boat? Would love input or sharing your experience. Feeling a little alone in this boat!
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tubular carcinoma
Anyone out there also diagnosed with tubular carcinoma? I know it is a rare kind, rarely spreads, is highly estrogen positive and has a good prognosis. If you have tubular carcinoma, I am wondering about your treatment. I had lumpectomy, radiation, and tamoxifen. I am curious to know if all of this treatment is necessary…
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Pathology report
Hi.. I was wondering if someone could help me understand my pathology report. It says invasive ductal carcinoma with mucinous differentiation. What does mucinous differentiation mean? I also read that the oncotype isn't validated for pure mucinous carcinoma. Would an oncotype score be valid with "mucinous differentiation?"…
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Borderline Phyllodes Tumor Diagnosis at 22
Hi everyone, I'm a 22-year-old dealing with a recent diagnosis of a borderline phyllodes tumor, and I could use some guidance and support. On 11/10, I noticed a tumor, leading to a biopsy on 11/14. The biopsy results were inconclusive, and a lumpectomy on 12/6 revealed a borderline phyllodes tumor with negative margins.…
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Invasive Ductal Micropapillary Carcinoma
I've recently been diagnosed with this rare form of IDC that is more aggressive. It is a mixed form containing ductal and micropapillary components. Although my tumour was (had BMX and reconstruction) only 1.4cm, it has been found in 3 of 7 lymph nodes sampled and is a Grade 3. I've yet to be staged as I need scans to…
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Angiosarcoma
I have been diagnosed with angisarcoma. Caught very early and removed from breast. Actually double mastectomy. Stage 1. Now getting second opinion on treatment. It is very very rare. Anyone out there with it?
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Paget's recurrence?
Anyone out there ever have a recurrence of Paget's? I'm 10 years out from a DX of Paget's and DCIS, grade 3. Had 2 MX. Cancer was on L side. A couple of months ago, I developed this concave circle area on my L chest. Then I developed this very small fine rash on the top edge of this circle. Today I had a punch biopsy of…
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Invasive micropapillary carcinoma
I haven't checked in for a while just wondering if there are any others with a similar diagnosis or if there are any resources or information you could share with me.
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alternative to tamoxifen after tubular breast cancer treatment
Hi, I'm Catherine, 52 years old and 2 years ago, I was diagnosed with Tubular breast cancer. The lump was removed as well as all my right arm lymph nodes because 2 nodes were affected. I then had chemotherapy and radiotherapy. And Tamoxifen. I'm wondering whether it's worth continuing with tamoxifen as it's linked to…
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Tubular breast cancer, looking for answers
I was diagnosed with tubular breast cancer 3/ 22 . Treated with lumpectomy, partial breast rads and now AI’s for 5 yrs. It is my understanding that pure tubular breast cancer rarely spreads outside the breast so wouldn’t it make sense just to do a mastectomy instead of the other treatments? My surgeon steered me clear of a…
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New Primary: Papillary Carcinoma With Microinvasion
So next month I would have celebrated ten years since my IDC dx and subsequent BMX with recon... But a few months ago I noticed two tiny nodules in the skin above my suture line. Had them biopsied. The path report came back positive for papillary carcinoma with microinvasion. MO is not advocating for radiation, but is…
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Papillary Carcinoma
Hi everyone, My mother was recently diagnosed with a 12mm papillary carcinoma. Apparently the imaging suggested no definite signs of invasion (but included an encapsulated cycstic papillary carcinoma). A lumpectomy is scheduled in the next two weeks, at which point I guess we'll hear more. They're already planning to do a…
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Medullary features
Hi I'm receiving chemotherapy (TC) for a 11mm, node negative, grade 3, triple negative breast cancer with medullary features. Two pathology reports concluded that the tumour was 'probably' medullary, with chemotherapy and most likely radiotherapy advised as adjuvant treatment. As this is such a rare cancer, there seems to…
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Questions on Paget's disease
This is my first time to ever post on a blog like this. Honestly, the fact that I am actually doing so scares the hell out of me. I'm hoping to get some clarity on Paget's Disease. The information I have found is minimal, my doctors office doesn't seem to have much experience and the blog comments are old, but I am hopeful…
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What were your Pagets symptoms?
Hi everyone, Just searching for advice- I’ve been worrying about Pagets for a few months but primary care doctor and OB does not seem to believe anything is wrong. It started last August when my left nipple was scabbing- it was yellow/whitish tinge and wouldn’t actively discharge but when I looked at my nipple it just…
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Occult Primary with Lymph Node Metastases
Does anyone else out there have experience with an Occult Primary Breast Cancer? I was diagnosed this week with Breast Cancer in a Left Axillary Lymph Node but they can't find any cancer in my breast - I've had whole breast US, breast MRI, and biopsy of two small lesions in my breast that they didn't think looked like…
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Paget's Disease of the Breast
Hi all- During the summer of 2011 I began to experience flaking on my right nipple. I showed it to my gyn at my yearly check-up, and she recommended using some hydrocortisone cream on it, and getting a mammogram. The flaking continued off and on, and I finally got a mammogram about six months later. The mammogram showed…
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ER-/PR+ BC girls come here
You are like 1-5% of all BCs. Most oncos see a few of you in their entire life practice. Most phase 3 clinical trials get a few of you, not enough to make statistic significance. So, you need to find each other and share with each other and look for some researchers/oncos who will focus on you and track you and figure out…
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Apocrine tumor
I was originally diagnosed with invasive ductal carcinoma in Feb. 2015. My cancer was triple negative. I had a lumpectomy . However the tumor tested to be apocrine tumor. I can't find much research on tthis type. My treatment plan is 16 weeks chemo. 12 of taxol weekly and 4 treatments three weeks apart of A/C. Then a month…
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Metaplastic Carcinoma
I was diagnosed with this rare breast cancer. No one seems to know a whole lot about this type of rare cancer.. anyone else have it??? Perhaps someone out there has some information for me. Thanks, Shelley
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Phyllodes Tumor - Newly Diagnosed - Lots of Questions
Hi everyone, I'm new here. My name is Rae, I'm 23 years old and a special ed teacher, hence the username. :) I went in for a routine gynecological exam on 1/16/15 and my provider found a lump during the CBE. I had a diagnostic ultrasound on 1/28/15 which showed two distinct lesions that were fairly smooth-looking. The…
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Phyllodes tumor borderline has anyone else had one too?
Hi ladies, I am in my early 30s, and would like to hear other people's stories about being diagnosed with a borderline Phyllodes tumor. I found out I had one this past Monday July 10, 2017 after having a mastectomy on my right breast two weeks earlier to remove what was thought to be benign. My borderline Phyllodes tumor…
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Pagets Disease with negative biopsy?
Hello, I'm looking for some perspective on my current situation. I'd really appreciate some opinions and I'm sorry it's lengthy. To start, I'm in my early 20's and fairly healthy. I have a slight family history of breast cancer, one aunt on each parents side. In June (4 months ago), I got what I thought was just some sort…
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Metaplastic carcinoma 5 yr survivors
Hello Everyone. I am nearing my 5 year cancer free day. I had metaplastic carcinoma. I am looking for anyone that has survived this and how long have you been cancer free. I feel the closer I get to the 5 year Mark, the more worried I am. I take femara, so that will stop. ( feels somewhat like a security blanket) Insomnia…