Dcis microinvasion
Waiting for results of slnb, had smx dcis was 80 x 83 x 80 so very large. What are the treatments usually given for the microinvasion ?
Comments
-
Hi- I can’t say much out treatments for DCIS with microinvasion, but I have a similar diagnosis and will have more to share soon. I had a BMX a week ago and pathology results received yesterday showed microinvasion in addition to the DCIS we already knew was there (Grade 3, comedonecrosis, 3cm). Margins were all good. We didn’t do a SLNB during mastectomy, but had the mag trace and likely will have that performed soon. I meet with the surgeon for my 1-week folllow-up tomorrow.
Good luck to you and I hope to follow your journey!
1 -
Thankyou, hope all goes well for you too
0 -
@rainclouds Sorry to hear you are going through this! I had extensive DCIS with multiple micro invasions… 4 or 5 I think. I also had a positive lymph node. I decided on a double mastectomy. I had 4 rounds of chemo and 5 weeks of radiation. Currently on Letrozole for 3 more years. Feel free to reach out with any questions.
0 -
I think i was initially relieved in a way when they said dcis, could cope with the smx. That didn't worry me and declined reconstruction. It was when they said they would check lymph nodes during op that made me panic, I thought dcis can be treated very successfully but then the what if its spread worries kicked in amd there isnt much info on possible treatments when you research, its all very vague. Thankyou for sharing your treatment with me
0 -
@rainclouds sorry to hear that you are in similar boat as all of us. I had high grade DCIS w single 1.3mm focus of invasive. Only treatment was surgery (no chemo or radiation). I underwent BMX instead of SMX as I wanted recon and symmetry. I wonder if I should have received radiation. Hopefully there will be some research to help guide.
0 -
Hi again. I met with the surgeon today to discuss the pathology report, and based on the small amount of microinvasion she is questioning whether or not SLNB will be necessary. She thinks there’s about a 3% chance the nodes would be positive, and if they were, it is uncertain whether this would impact my treatment plan. She will review with the oncologists and then we will discuss again. So the question is, would I need chemo based on a few cancer cells in the nodes. I would have guessed yes, but she said that those cells don’t tend to spread and are more like a proxy for potential spread in the rest of the body. I’ll try to update my profile to get my stats on here!
1 -
@sarahxyz I did get 2 of my sentinel lymph nodes during my BMX removed and thank goodness they came back all clear. I had large area of high grade DCIS 5.5cm.. path found single 1.3 mm focus.
I didn't get rads on my left side as my MO said chance for local spread is extremely low, and I didn't want to risk heart issues. She said that if recurrence does occur it will be distant. She said recurrence rate for me was 5%.
So I try to focus on the 95%, eat healthy and exercise!
0 -
Seen surgeon today, biopsies came back, no cancer , so the smx has got rid of the dcis, im so relieved and will always be grateful for thr nhs screening programme for finding it and treating it so quickly
2 -
So relieved to hear your news! I always wonder why some of us have large DCIS areas w very little to none invasive cancer, while others have tiny areas of DCIS but have invasive cancer.
0 -
Glad to hear your good news!
I am waiting to have my SLNB scheduled (oncologists confirmed that positive nodes would impact my treatment plan). I’m a bit discouraged by needing to do another surgery under anesthesia, and set back my progress, but of course I agree it’s the right approach. If they do find positive nodes I’m not sure what my treatment would be. NHS Predict shows negligible improvement in my situation, with radiation and chemo. But hopefully we won’t need to make that decision. In your research, did you find patients who had chemo/radiation for DCIS with microinvasion? Seems like an uncommon scenario.0