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Leg pain with Enhertu

After my 3rd TX of Enhertu and a week into it I am experiencing very painful knee and leg muscle pain. Anyone have this, and what worked to stop it? Wondering if Mg would help? It kept me awake last night. I drink 90+ oz of water a day and walk. Thanks for advice.

Answers

  • moderators
    moderators Posts: 10,590

    Hi @kisbah06! Checking in to see how you're doing. We hope the pain has eased since you posted. You may also want to join the discussion Anyone starting brand drug, Enhertu?, where other members on Enhertu are sharing their experiences. Please let us know how you’re doing when you get a chance.

    Best,

    The Mods

  • My overnight leg and knee pain began to lessen the next morning and I did take Mg and put electrolytes into my water, which I think helped. Mostly, I have brain fog and dull taste buds. On day 7, I noticed a mouth sore and began swishing with salt water, so it is resolving now on day 8. Everyone is different and figuring it out is a process. For instance, I had bad constipation after first infusion and took Miralax and Metamucil, which helped. Sooo, I began taking Meta ad Mira BEFORE my second infusion and each day after and had NO Problem with 2nd and 3rd infusions. I have one more TX with Enhertu, then will be switching to THP. Any advice from your experiences is appreciated.

    Prayers to all!