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  • kittycat
    kittycat Posts: 1,155
    edited May 2010

    So, was looking through my breast cancer file to read my original path report from the bmx.  I came across my MRI pre BMX, which the radiologist put on disk!  :)  Now, I'm looking to see if there was something that they might have missed???  The amount of breast tissue removed on the right is less than the left (right was bad side).  I'm really wondering what all was taken out and to get a 2nd opinion on all of this.  The only reason why I have all my old reports and films was because I got a 2nd opinion and changed BS's.  I'm still glad I left the 1st BS, but I'm really beginning to wonder about the 2nd.  Although, he came highly recommended by my PS and OBGYN. 

  • juliempw
    juliempw Posts: 191
    edited May 2010

    Kittycat, it seems like you'd get more info from the surgery reports.  No surgeon is perfect so the change may have been good but errors can still be made.  Try not to make this personal with the surgeon, that puts your energy in the wrong direction.  You have a right to the anger that may exist by errors but try not to focus there right now.

    Susie,  I don't think you should remove anything until you see you're PS, if they didn't give you instructions to remove or say that you could take a shower, that usually means they want it on until they see you ( I assume that's Monday?).  Glad you're through this phase, but the next phase is a trial of patience so hang in there (lots of waiting to see how things settle)

    Julie 

  • val61
    val61 Posts: 969
    edited May 2010

    (((((Kitty))))) - I haven't been on since yesterday morning and am so very saddened by your news.......you have a beautiful spirit, though, and that will get you through this next journey with bc....plus we're all here for you, too.....doing the Komen walk today was probably exactly what you needed.....if yours was anything like mine was last weekend, it was a wonderful life-affirming experience.  I'll continue to pray for you, sweetie!

    Gosh.....if this can happen to Kitty who had DCIS, what about us girls with invasive BC?........damn scary.........

    Susie - I second Julie's advice - don't take anything off unless your ps has told you to.  If the tape under your bra is like mine - though I didn't have a surgical bra, just a big old wrap of wide foam tape - it's mimicking an underwire to definie your IMF and provide some support to the implants.  You definitely want to keep that in place as long as your ps wants.   The surgical bra is tight for a reason, though I know it's pretty darn uncomfortable.  It's hard, but try to be patient......in a week or so you'll probably be able to get a good fitting and be in a real bra......and get to really enjoy the softness!

  • FACECRAFTER
    FACECRAFTER Posts: 433
    edited May 2010

    Kitty:  Remember- A grade 3 cancer, although aggressive, is also more vulnerable to chemo and radiation.  I had a grade 3 IDC and it was very suseptible to both chemo and radiation.  So grade 3 is not necessarily bad news.  Mine melted away, and I'm NED now...Be well my dear.  JUDY

  • maggie66
    maggie66 Posts: 71
    edited May 2010

    Kitty, just got on and saw your news. I'm pulling for you and visualizing you healthy and beautiful. My good friend who has also walked this path with me has said she liked to think of her cancer cells as unruly adolescents up to stuff in the back seat, and that her job was to tell 'em what was what (she's a middle school teacher!). She stayed really focused on the fact that all but a few of all of the cells in her body were doing exactly what they were supposed to; it was just the few that needed some management. I'm sure you're filled with all sorts of emotions right now, but know so many of your sisters are sending light and love your way. Maggie

  • rockwell_girl
    rockwell_girl Posts: 517
    edited May 2010

    Kitty I would suggest to make sure they do the onco type test on your new idc.  That test will help you figure out if chemo is needed or if just radiation might be the way to go.  This test does take a while...maybe 2 - 4 weeks.  I'm glad you got out today with other survivors. 

  • cnemeth
    cnemeth Posts: 136
    edited May 2010

    Just back from vacation in the wine country and thanking God for every day that I live and breathe!!

    Kittycat ~ So sorry to hear your news.  You will be in my prayers.

    A friend in San Diego died from lung cancer (45 years old) while we were gone and a nephew was put in hospice in Long Island (35 years old) also with lung cancer.

    This disease brings out the "fight" in me.  It's effects are so heartbreaking . . . .

    Colleen

  • whippetmom
    whippetmom Posts: 6,028
    edited May 2010

    Yes kittycat, I agree with Sandy - now you qualify for the Oncotype DX.  You will probably have to request it...or DEMAND it...as not all medical practitioners voluntarily offer it because of the cost. 

  • cnemeth
    cnemeth Posts: 136
    edited May 2010

    Have shed my quota of tears for the week.  Whew!

    So while away I discovered the most incredible nightgown in the world.  Was looking for something comfortable that would protect the nips during the night as I have always been a naked sleeper.  This is the best and I swear that you could wear it day and night.  Perhaps I will just throw it in my purse when heading for Vegas along with some sandals, clean undies and a necklace.

    http://www.dreamsack.com/store/women/cleo-gown.html

    You are the most incredible women that I have ever not met (yet)!!!  My heart is heavy tonight and full of love, hope and prayers for all of you!!!!!!!

    Colleen

  • val61
    val61 Posts: 969
    edited May 2010

    Great gown, Colleen  - and the bamboo is especially good for those of us dealing with those lovely night sweats!

  • deekaay
    deekaay Posts: 254
    edited May 2010

    kittycat, big hugs and warm thoughts to you.  I am really so sorry to hear you have to get on the treatment path again.  Seems unbelievable, but I've been told that cells can remain after mx and if they are the bc cells a recurrence can occur.  But...there are many weapons awaiting you once you get more path details that will help you defeat bc.  I'm just sorry you have to go through this again.  THINK SURVIVOR.  Hugs, deekaay

  • Estepp
    Estepp Posts: 2,966
    edited May 2010

    Kitty, I third what Sunshine said.. the onco test...

    I am glad you did the walk, I agree with Val.. it probably helped you in some way. I am glad your mom is there too now..

    Colleen.. welcome home sister... I will check out the night gown. I have sons.. so always wore something to bed.. usually silky nighty that was short. ( as I am TINY SHORT...)... but with hot flashes ( getting better) silk SUX!.. so I wear nothing or boxers and a tank... :).. such a hottie I am these days....:)

    Ladies.. as some know.. I gained about 27 pds through my journey from 08-09. Well... when I ended Herceptin ( Oct, 09) and then got my pain figured out ( 2/10).. I have finally been able to get back to my treadmill and some weights... I have lost  17 of it and only have about 10 pds to go.. to be back to my normal adult weight.. I am so happy and somewhat proud of myself.

    I now have so much respect for anyone who is over weight and looses it.. it is very hard. Not the discipline part.. but after a certain age... after menopause.. the weight comes off very slowly. It took me 6 months of trying what I could , to loose just those 17 pds... But I feel a lot stronger all around and think I can get these last 10 off by July..:)...

    Have a Blessed Sunday..

    Kitty, if you wanna talk.. yell... blow off some steam.. PM me... I can give you my # if you wanna talk. Also.. I will be in your town in August... if you are in Chemo or anything like that.. Maybe I could do something nice for you... you let me know sister...K!

  • JenJo
    JenJo Posts: 11
    edited May 2010

    Hugs to Kittycat

  • Estepp
    Estepp Posts: 2,966
    edited May 2010

    COLLEEN:

    That dress/sack/nighty is EXACTLY what I like to wear around the house here... or throw on some flip/flops and run to the store.. I LOVE IT and LOVE the wider straps! I always get empire waist as it makes me look 5ft.1.....BAHHHHHHHHHHHH.. anyway...

    can you see through this? Is it a little dress you could wear out and not see what type underwear you had on... ya know. I HATE wearing a slip... hate it. If it is thick enough.. it would not need one.

    Let me know before I buy it. I truly love it! Thank you for turning us on to the site!

    Laura

  • Estepp
    Estepp Posts: 2,966
    edited May 2010

    COLLEEN:

    That dress/sack/nighty is EXACTLY what I like to wear around the house here... or throw on some flip/flops and run to the store.. I LOVE IT and LOVE the wider straps! I always get empire waist as it makes me look 5ft.1.....BAHHHHHHHHHHHH.. anyway...

    can you see through this? Is it a little dress you could wear out and not see what type underwear you had on... ya know. I HATE wearing a slip... hate it. If it is thick enough.. it would not need one.

    Let me know before I buy it. I truly love it! Thank you for turning us on to the site!

    Laura

  • Adnerb
    Adnerb Posts: 727
    edited May 2010

    Laura, congratulations on losing all that weight!  You look very good in your new photo, BTW.  

    Brenda 

  • jizogarden
    jizogarden Posts: 139
    edited May 2010

    Morning all,

    Been thinking about you Kitty...wishing for good things from your doctors this coming week.

    I hope your having a good weekend Sally.....do something for yourself, something you love :)

    Judy hope your getting better and better :) 

    Colleen, I love the website....lots of nice things on there...the nighty is beautiful! I spotted some sleep shorts for $16.00....I usually sleep in pajama bottoms and tanks....but the softer and cuter the better :) Bamboo is such a wonderful product :)

    For those that have already gone through the exchange I need a little feedback.  Last night I started getting some darting pains at the base of my right implant....and now this morning I'm getting zinged in the same place by the left implant.  This is where my ps lowered my breast pocket a wee bit during the exchange. Is this just normal to have little darting pans as the implants begin to drop....and fluff?  I'm not panicked just curious.  I also notice a small bubble about the size of a quarter under my right breast....it believe it is just a little fluid that would be a natural reaction to healing pocket work....does this all sound normal =o\  When I push in gently on the little bubble it disappears and then comes back in few moments....it isn't painful or growing in size.  I go see my ps for my one week follow up tomorrow morning :)

    It's going to HOT in NY today....plan on taking it easy and spending some time in the shady back yard :)

    Wishing all healing, peace and comfort....

    Laura2 

  • Kristinka
    Kristinka Posts: 223
    edited May 2010

    Laura2- I had painful pings in the weeks after the mx and after the exchange - maybe these are nerves that got disturbed during surgery?  Over time, the pings went away for me, and I hope they will end soon for you.  I never had a bubble - perhaps you could call the PS to find out what it might be.  Stay cool today - I think the Bay Area is heating up too!

    Laura1 - congrats on getting back into shape and feeling so good!  

  • Lilah
    Lilah Posts: 2,631
    edited May 2010

    Laura -- wtg on the weight loss!  I've struggled with it all my life (up and down 25 pounds) and yeah it does suck.  I lost 12 pounds on chemo and was so happy about that!  Now I've gained it back and feel a little defeated.  BUT am not giving up and am hoping I can lose the weight again.... chemopause and Herceptin notwithstanding.

    Colleen -- CUTE nighty! :)  I thought I would echo that.

    Kittycat -- fight fight fight!  You will beat this.  Hugs galore to you :)

  • fairportlady55
    fairportlady55 Posts: 152
    edited May 2010

    Kittycat----thinking of you and sending hugs 

  • bcincolorado
    bcincolorado Posts: 4,831
    edited May 2010

    Laura:  Congrats on the exercizing and weight loss!  You'll make it to  your goal. Afterall, getting through BC trreatment is a lot harder. 

    Kittycat:  I'll say special prayers for you this week.

  • navymom
    navymom Posts: 842
    edited May 2010

    Kitty.I am at a loss for words.  You are such a strong gal.  You will get through this.  If you could only really feel this great big group hug from all of these women on BCorg.  Positive thoughts to you, girl

    Navy

  • Texas357
    Texas357 Posts: 332
    edited May 2010

    Kitty, I'm praying for your strength. You are a fighter, and you'll get through this too!

    Laura2: I've had shooting pains now and then too. I think it's just part of the healing process.

    I've got one tiny spot that's not healed totally from my last exchange surgery, on my radiated side. I'm just hoping that it's not going to stop me from getting tattoos this next week.

  • packergirl
    packergirl Posts: 81
    edited May 2010

    Kittycat- First let me extend a HUGE hug to you. Please know that if you wanting to talk, cry and yell I am here for you honey!! I know your waiting on path to tell you about receptors this time. I am an triple negative, IDC, Grade 3 survivor and would be happy to share the things I learned along the way. Congratulations on the walk and the team you had with you- what an inspiration. You continue to hold that beautiful head of yours high and one step at a time we will have things going in the right direction to beat this and return that lovely smile the TaTa Sisterhood saw of yours last year! You have our prayers!

  • whippetmom
    whippetmom Posts: 6,028
    edited May 2010

    packergirl: So good to see you here.  Thank you for coming through for kittycat! 

  • binga
    binga Posts: 30
    edited May 2010

    Kitty- So sorry to hear your news.  I can't even imagine how discouraging after going thru the BMX and all.  Stay strong and know you have so many ladies on here praying for you.  

    Becky 

  • Adnerb
    Adnerb Posts: 727
    edited May 2010

    Prayers and good vibes go out to our Kittycat...

    Brenda 

  • KorynH
    KorynH Posts: 84
    edited May 2010

    I am wondering if anyone in this forum who did a unilateral mastectomy with silicone implant following expanders has had 'issues' with the muscles in front and in back of your unaffected side? Pysical therapy is now telling me that by having only the one side expanded and not the other, that the other is now trying to compensate and has overstretched towards my back and is causing this numbness in my spine. I have been through the 'mets chase' for 5 months trying to get to the bottom of this problem with mri, bone scan, x rays and ct scan only to be told they can't find anything.  Were any of you even WARNED about potential complications from a unilateral such as this? I feel like my back is being tazered all day long.  Any help would be greatly appreciated!

  • Delilahbear
    Delilahbear Posts: 206
    edited May 2010

    Kittycat - my heart is breaking for you. It is so unbelievable that you have to face all this stuff over again. Hang in there and know we are all here for support. Sending gentle hugs your way.

    KorynH - I had total numbness on both sides and entire back after my bilat exchange from TEs to saline implants. My PS told me that they put some kind of curved device under the side that they are working on to elevate and hyperextend that side and with bilat cases they use a curved pillow like thing that hyperextends the back for easier access. He says sometimes this causes temporary numbness do to compression of the nerves during the time it takes to perform the procedures. Stretching and flexeril finally have made it go away. I didn't really experience it the second go around with bigger implants and nips, etc. Maybe this is what has happened in your case.

  • FACECRAFTER
    FACECRAFTER Posts: 433
    edited May 2010

    Texas, as long as the unhealed area is far away from the tattooing site, it should not be a problem to get the tattoos.