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  • rebetata
    rebetata Posts: 213
    edited June 2010

    Lilah I am so happy to see you. I love the pic.

    Rebecca

  • KorynH
    KorynH Posts: 84
    edited June 2010

    Lilah-

    you are beautiful! Keep smiling! My hair was your length a few short months ago. One day it just decided to take off and GROW and I swear it was about 3 weeks after my last Herceptin! Now it is growing about 1/4 inch a  month and I only know that because I see that gray strip grow in each month! Ha! I ditched my wig last September and the heat made it much easier to do it. After the big reveal it was like,"okay, this is the new me" and boy it is sure easy having no hair to have to style. You look maw-ve-lous!

    BigApple09 - I'm so sorry to hear about your friend. Stories like that make me realize we must not ever give up this fight. None of us.  We fight onfor HER.

     cnemeth - hairs? Are you kidding? I had NEVER heard that! That's reason enough for me topass on the nips.

    MBJ - I am a fellow Uni. Thank God for Wunderbra!

    I hope everyone has a wonderful and relaxing weekend! Stay cool!

  • Lilah
    Lilah Posts: 2,631
    edited June 2010

    Aw thanks ladies for the thumbs up on the short hair :)  I am rather enjoying it now that it's gotten long enough to brush (ha!)... gave up the wig in May, right after surgery.  SO nice not to have to put a wig on in the summer.  I did enjoy having the wig all winter though...

    Koryn -- I am still on Herceptin til September... so here's hoping I get a growth spurt on the hair when I'm done!  I have actually had this hair cut already once (just before I started going without the wig)... just to trim it up, really, and even it out.  It's so fun seeing how people react (very few know I had BC)... they all think I'm so brave to have cut it!

    Brenda -- aw you're so sweet to say Greta Garbo!  I keep hearing Leslie Caron.  I'll take either.

  • don23
    don23 Posts: 213
    edited June 2010
    Lilah  - Love your new picture!
  • Hope4future
    Hope4future Posts: 68
    edited June 2010

    M-Star I hope your vacation is going great!  Just wanted to let you know I miss your posts! 

  • Lilah
    Lilah Posts: 2,631
    edited June 2010

    Aw thanks Don! :)

  • Emme
    Emme Posts: 85
    edited June 2010

    Ladies can you give m input on how saline differs from silicone...weight...texture....overall appearance?

    Thanks,

    Em

    I am up really over thinking everything tonight....I need to calm my butt down

  • kate33
    kate33 Posts: 1,936
    edited June 2010

    MBJ- LOVE your comment to the ass _ _ _ _, I mean men at work!  So glad you got to say, "Take this job and shove it!"

    Bigapple09- I am so sorry to hear about your friend.  With all the laughter, support and success stories on here it's easy to forget about the other side of the coin.  It's so unbelievable that women are still dying from this disease.  My heart goes out to you and her family.

    Hope4Future- I don't know when you had your MX but I struggled with fatigue for about 3 months.  Just a trip to Target would wipe me out so much I'd have to come home and take a nap.  Hang in there.  It does get better and you start feeling more like yourself soon.

    Lilah- I think your short hair looks sassy and kick ass!  You are totally rocking it!!!

    Kate 

  • Hope4future
    Hope4future Posts: 68
    edited June 2010

    Kate - thank you for telling me that.  I went to Old Navy today for the 30% sale.  Thought I would pick the kids up some school clothes.  I was there 45 minutes and had to leave and come home.  I feel better that you felt that way also.

  • kate33
    kate33 Posts: 1,936
    edited June 2010

    Hope4future- I remember someone on here once said your body doesn't know the difference between having a MX and being stabbed.  When I thought about it that way I didn't feel like such a baby.

    I don't know if you have a Costco membership but they were handing out samples the other day of a product called "Body Choice" protein shots.  It is advertised as a weight loss product but the woman there said it is excellent for helping the body to heal.  She even mentioned they're good for recovering from surgery.  (This was before I told her I'm having surgery on Tuesday.)  I have been taking it every day and I swear it has made a huge difference in my energy levels.  It has 25 grams of protein in it!  It also has 8 vitamins, fiber and is only 104 calories.  It is Zero fat, carbs, sugar or cholesterol.  Each "shot" is about 3 oz. and is fruit punch flavored.  You can drink them straight or pour them into a water bottle and sip it throughout the day.  She said you can even freeze them, pop one in your purse and drink it later when you start to drag.  They aren't  super expensive.  About $20 for 12.   Anyway, don't know if it will help with your fatigue or not but it seems to be working for me. 

  • ronqt1
    ronqt1 Posts: 565
    edited June 2010

    Anniealso: Thank you for the info to my question where do nips come from and I thank everyone for their "true" feelings. I could nott have said it any better.

    I go to a mastecoctomy boutique near my house and the staff there wanted to give me a fake nipple for the one without. I did not take it. I am proud to be a survivor and travel this journey., even with all the miixed emotions. I feel very special. With all the ups and downs, this has been the biggest challenge of my life. I am alive to talk about it. Don't want to get mushy.

    Have a great day and again thank you all.

  • Lilah
    Lilah Posts: 2,631
    edited June 2010

    Thanks Kate :)  Also: re the vitamin shot -- make sure you're not shooting a lot of Vitamin E -- Vitamin E can work as a blood thinner (like Aspirin can) and you shouldn't take it before surgery.

    Hope -- I too was tired for about 4 - 6 weeks post-surgery.  It feels SO good when that energy drain passes!  Hang in there and as Kate said, take it easy on yourself :)

  • Lilah
    Lilah Posts: 2,631
    edited June 2010

    Thanks Kate :)  Also: re the vitamin shot -- make sure you're not shooting a lot of Vitamin E -- Vitamin E can work as a blood thinner (like Aspirin can) and you shouldn't take it before surgery.

    Hope -- I too was tired for about 4 - 6 weeks post-surgery.  It feels SO good when that energy drain passes!  Hang in there and as Kate said, take it easy on yourself :)

  • waldo
    waldo Posts: 145
    edited June 2010

    Lilah, here's another thumbs up for your new do!  You have a beautiful face and your short hair lets it shine thru!

    BigApple-I so sorry to hear about your friend's wife.  It breaks my heart whenever I hear of anyone dying from BC. And so much moreso when they are young and leaving behind young children.  It is so sad that despite all the research and money raised that people still die of breast cancer.

     Kate, I think the increased protein is a great idea.  I've been having egg white omlettes for breakfast to increase my protein which helps in the wound healing and I think it makes a difference in my energy levels as well. Also Vit. C.  I would have to eat 6 egg whites to get that much protein, so good find at Costco!!

  • kate33
    kate33 Posts: 1,936
    edited June 2010

    Lilah- I double checked the protein shots and there is no Vitamin E but thanks for the heads up.  My PS had me stop taking my multivitamin for a few weeks in addition to all aspirin products.  The vitamins in the protein shots are Vitamin C (100%!), B1, B2, B5, B6, B12, Niacin, Biotin and Folic Acid.  It also has Chromium and green tea extract.

    Waldo-  Wow!  6 egg whites!  I had no idea.  I guess these would be good for those who don't have much of an appetite, like maybe those having chemo, who need to get their protein.

  • kate33
    kate33 Posts: 1,936
    edited June 2010

    I was telling my sister what was involved with the exchange surgery and how glad I will be to have these TE's removed that were growing into my armpits and she said, "Yea, you can finally get rid of those pit tits!"  I thought that was hilarious!

  • MBJ
    MBJ Posts: 3,671
    edited June 2010

    bigapple:  I am so sorry for your loss!  That is just too young and a reminder to us all to live well and to cherish the time we have with those we love the most.

    (((((Hugs)))))

  • MBJ
    MBJ Posts: 3,671
    edited June 2010

    Kate:  Pit tits, really!!  I went to a Bikini Fashion Show last night as I have many friends in the clothing design industry, and all I could do was look at all of the models breasts!!

    I think we all need more protein while we are healing.  It doesn't matter if we have had or not had chemo, we need the protein.  I have started adding organic chichen to my mostly vegi and fish diet just to get more energy.  Is the product exclusive to Costco?

    Lilah!  You now have an air of mystery to you!  Very Greta Garbo!  I love it!  I am not so brave yet--My hair came in grey, thick and kinky and it used to be fine, wavy and brown.  I have no idea what to do with it so I bleached it and now I have 1/4 inch black & white roots with frizzy bleached ends--not attractive. 

    KorynH:  Another Uni Sister!  I have to ask you, if you don't mind--Did you do both breasts or did they just try and match your existing?  I knew they couldn't match mine and I would be bothered by it so I am opting to completely make them different by doing both sides at the exchange.  I do miss mine though.

  • KorynH
    KorynH Posts: 84
    edited June 2010

    MBJ - my PS told me that there was a chance (however slim) that the healthy breast could lose nipple sensation or feeling if cut upon so I said no way. I couldn't deal with having NO breast senastion whatsoever so I opted to leave that one alone. Some tried to convince me to have a double MX because lobular has a 30% higher chance of recurrence, but I chose to view that as a 70% chance that it wouldn't. Having an implant under the chest muscle and no breast tissue at all on a mx side is totally different that getting a lift or augmentation on a healthy breast where you are leaving breast tissue. There's no way they are going to look like twins, so I decided not to even try. I have never been so happy to have a saggy droopy 46 year old breast! At least I can FEEL her!

  • KorynH
    KorynH Posts: 84
    edited June 2010

    MBJ - my PS told me that there was a chance (however slim) that the healthy breast could lose nipple sensation or feeling if cut upon so I said no way. I couldn't deal with having NO breast senastion whatsoever so I opted to leave that one alone. Some tried to convince me to have a double MX because lobular has a 30% higher chance of recurrence, but I chose to view that as a 70% chance that it wouldn't. Having an implant under the chest muscle and no breast tissue at all on a mx side is totally different that getting a lift or augmentation on a healthy breast where you are leaving breast tissue. There's no way they are going to look like twins, so I decided not to even try. I have never been so happy to have a saggy droopy 46 year old breast! At least I can FEEL her!

  • Lilah
    Lilah Posts: 2,631
    edited June 2010

    Koryn -- I took the risk (had to -- my remaining breast was gigantic) and got lucky -- after lift/reduction my nipple still has feeling.  I think if my healthy breast had been smaller I would have done as you did, though.  It simply wasn't an option and to me it was worth the risk (as opposed to simply having it removed prophylactically).

    MBJ -- based on photos I've seen, the best chance for a good match for a uni is with augmentation of the healthy breast; so I'm betting you're going to look wonderful!  And oh gosh Greta Garbo again!  Ha!  I'm just happy I have hair again lol.  Mine also was wavy, brown (albeit a little highlighted) and fine prior to chemo.  It seems to be coming in thicker than it was before and straighter... same amount of grey (a touch at the temple, not enough to be visible in the photos) and in the same place!  I hear that the new growth will continue to evolve... so maybe more color will return for you?  I hope so.  I do love that photo of you pre-chemo -- hope you can get that back!

  • jizogarden
    jizogarden Posts: 139
    edited June 2010

    Koryn...I feel the same often....and then I try to move on...and then I'm back in the doldrums....very up and down...thank you for putting into words...thank you for your honesty.

    Lilah....beautiful lady! :)

    Happy holiday Kay!

    Anyone hear from Shybird....is she ok? 

    BigApple.....so so sorry about your friend, and her sweet family......words aren't enough. 

    I've been busy with teaching and keeping up with World Cup....looking forward to Sunday with a big breakfast, walking Smudge and spending time with DH.

    Healing and comfort to all,

    Laura2 

  • Claire82
    Claire82 Posts: 490
    edited June 2010

    I was so excited Tuesday because my skin expander was to come out and my silicone implant put in. When the bandages came off on Wed. the implant was so much higher than I expected. I can't even wear a bra because its too lopsided. The plastic surgeon says it will fall into place but I have my doubts. Did this happen to anyone else?

  • AStorm
    AStorm Posts: 1,393
    edited June 2010

    Claire - my PS said I should wait at least 6 months before getting discouraged about position. I talked to another PS who said she wouldn't do a revision until a year post-exchange! I'm sure every body is a little different but most of the ladies here talk about the "drop and fluff" that occurs at least a few months after the exchange. 5 months post-exchange I still have issues but things have changed a lot.

  • KorynH
    KorynH Posts: 84
    edited June 2010

    Claire82-

    I'm so sorry to heat that. My uni foob exchange was 1 year ago and STILL hasn't dropped. My PS even gave me 130 cc's more saline in the TEs than the actual implant, promising me that it would droop to match my natural breast. Clearly that isn't happening. It is trapped behind a tight chest muscle with loads of extra skin that make ripples across the top. I have just about had it with all the talk of revisions and surgeries making things better. I don't think I would put my breast (foob) in the hands of a plastic surgeon if you promised me the moon right now.  It is major surgery and no simple solution and certinanly carries with it no guarantees. I am also stuck in a military system with few options.

    I hope for your sake that you get a better long term outcome than I am experiencing.

    Sorry to sound so whiny. 

  • MBJ
    MBJ Posts: 3,671
    edited June 2010

    KorynH:  Now I understand why you are so unhappy.  I understand that rippling, especially with saline implants, is much more a problem with saline implants then with silicone.  There is more weight to a silicone implant and it does tend to cause less problems in appearance with women who have had reconstruction.  I now understand why you were told you may lose sensation in the nipple, because they only go through the nipple with a saline breast, not a silicone breast.  I am curious how long your TE was in prior to your exchange, because one of the things that I have learned here, is the longer your TE's are in, the better your results because the muscle has time to hold the shape and not just revert to where it was.  It is your decision of course, but I would reconsider having a revision because obviously you are unhappy with your results.  The state is paying for mine but I am not sure what other options there are in the military. 

    Claire:  Welcome and glad you found us over here!  I spoke with you earlier today and it can be a bit quiet over the weekend but I am sure you will get more of a response come Monday if there is anything that needs correcting, if at all.  Whippetmom is the best and can help both you and Koryn, if she wants the help.

    My best to both of you!

    Mary

  • kate33
    kate33 Posts: 1,936
    edited June 2010

    MBJ- You can buy the Body Choice directly on line on their website- bodychoicenutrition.net.  The shipping charge is a flat rate of $4.95.

    I didn't see anything on there that said where it is retailed but it looked like you could also order it through Amazon. 

    Claire- I have heard as well that it can take months for your implants to settle in the right place.  A lot of women on here say that wearing the right bra while that is happening is crucial.  There is a thread on here called "Bras 101: The Great Post-Exchange Debate" where there is a list of bras that help support while you are healing.  And everyone says the best place to go to get a bra fitting is Nordstroms if you have one in your area. 

  • KorynH
    KorynH Posts: 84
    edited June 2010

    MBJ-

    Thank you for your help. I have a silicone implant. The rippling is because there is way more skin than implant, but because the implant is under the muscle band, it can't "pull" things down as my PS thought it would.  He seemed to know what he was talking about but now I wonder.  I had my TE's in for 8 1/2 months. I'm not sure how long most people have them, do you? That theory that leaving them in longer and giving the muscle a chance to adapt makes total sense to me but I don't think I could have taken them a day longer. I was very uncomfortable and they hurt. Plus it was summertime and I was so lopsided by the end I couldn't wear a swim suit with it in. My fake breast also looks like its been in a fight, very purplish all over.  It's been a year since exchange was done. The skin is very thin. I didn't have radiation. I think it is because it was stretched too much.  I agree, the correct bra is a must, both for support without impingement and also for symetry and natural look. Without the bra my foob looks like a hamburger bun top.

  • Lilah
    Lilah Posts: 2,631
    edited June 2010

    Koryn -- I'm so sorry about the results you've had.  I'm concerned about the "purplish all over" description -- that doesn't sound normal.  What does your doctor say about that?  Personally, if I were you, I would seek another opinion... since the implant has not behaved as your doctor expected, etc.  And 8 1/2 months seems like a long time to me (my TE went in December 9 and came out May 11 and that was long enough)!

  • Annabella58
    Annabella58 Posts: 916
    edited June 2010

    Oh ladies, you are all such gems.....you guys make me cry and I admire you all so much.

    Laura, little beautiful Laura, I am out of a job, and home with my daughter, but I will have to go back to work.....I am here but I always, always read up, even if I don't post.

    I guess my perspective is sort of the same as you guys....I am this extremely stubborn person, and after the second time around for me, I just felt exasperated.  I came to this exchange forum early on, as they were talking about what were to me, more positive things.  I had just finished chemo (I had CMF, doable, but not fun, but not as bad as other kinds, certainly) and I just refused to accept that the boob would not look good in time.

    I now see her as "mine".  Sure the insides are different, but the outside is still me.  I viewed it as kind of like restuffing the couch cushions, I guess.  I have regained full sensation, and I don't have a nipple, but that too, is temporary.  It has done a number on our sex life, for sure and I am never sure my husband is still attracted or not.  That's been tough.

    But we are here, we are healthy, we are alive.  Yes, we have fake boobs.  but our hearts are real and isn't that the bigger deal?  I do get sad about reconfiguring my boob, and going to a foob, but hey, she had cancer.  She needed to get fixed.  I still love her.  And the stuffing is non toxic non cancerous, so I am thrilled to have the choice, rather than the old standby of just taking them off, which to me, was frightening.  I do have friends who chose it and could care less, tho.  Wish I wasn't that superficial, but I am.

    Bottom line, the glass for me is 3/4 full.  When I even up the other girl with a prophy, I will feel complete.  Now I feel like a lady in waiting, but I had the choice of a prophy or not, and damn, having a choice in this whole thing feels great!  I am choosing to wait for now.

    Getting old is not for sissies girls; we do have more challenges than the average bear.  But we have all made it through.

    love you all

    annie