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  • Annabella58
    Annabella58 Posts: 916
    edited June 2010

    p.s to MBJ:  I also, had really think rads skin, and my foob can be purplish or not, depending on how much I am moving or the temperature.  I think the circulation isn't as good to them.

    I guess I'd ask my PS, but for me, that went away in about 1 year....now she's pink and warm and I have most of the feeling back in my boob and my back and side.

    Before I get sensation back, (yes, even hot and cold) this is preceeded by intense itching, which is the nerves regenerating.

    Good luck!  This takes alot of time, but it's worth it.

  • MBJ
    MBJ Posts: 3,671
    edited June 2010

    Koryn:  I am so sorry that you had these kind of results--after all that we go through you deserve to get it fixed.  No need to go through the rest of your life with this.  I agree with Lilah--get a second and even third opinion.  I still have some purple where I had some blood pooling, but I was told it should go away.  8 1/2 months is an eternity!!!  2-3 seems to be the norm unless there is radiation or other complications.  If you have thin skin, which I do too, finding a dr who uses Alloderm might help, which was used un me.  Before I had my expander put in I had alot of help from this site.  After speaking with my PS, I found out that the Allergan ones can be sewn down while the Mentor's cannot.  I requested the Allergan because I tend to be very active and I am also tall and my biggest fear is that it would move up and be too high, which seems to be common in reconstruction.  I also had the benefit of joining a support group where all of these women had just undergone reconstruction and when I saw how high they were, I knew going in that this wouldn't work with my frame.  Pocket work can be done to bring it down to the right place and I think it is worth a second and third opinion.  I think that us uni's have the hardest task and it takes a more skilled surgeon to make it right.  I also found out from my PS, that my oncoplastic surgeon actually did all the work to make it possible to get good results.  He wasn't left with much to do except to sew the expander in place.  The jury is still out on mine, as I haven't had my exchange yet, but I am battling with the expander side being higher then my natural side and I am so lopsided.  I am having my right side altered and my hopes is that this will bring my right side up a bit to match.  My PS mentioned that he may have to do extra work on my other side to get it to match.  I don't need a lift, so I am not sure what that means, however, they will go under my natural breast so that I don't lose any feeling in the breast.  Whatever you decide to do, you will have the greatest support from all of the women here, many who have been through many procedures in order to get good results.  We are all a work in progress.

    Hugs,

    Mary

  • MBJ
    MBJ Posts: 3,671
    edited June 2010
    anniealso:  It's always great to get your input--it's tough on our husbands, and I also worry about him no longer finding me attractive.  He is still chasing me around the house, so I guess I don't have any problems yet, but he loved my small breasts and now I am going to have maybe average sized breasts to try and make them match.  Every once in awhile he voices concerns about me going bigger and I keep trying to reassure him that once the expander is out, it won't be as large, but I secretly think he is going to like them.  He went with me to every expansion appointment and by his reaction, I think we are going to be okay Wink
  • Lilah
    Lilah Posts: 2,631
    edited June 2010

    Ah ok Annie (it was me not MBJ who was worried about it -- and Koryn who said she has the purplish skin)... I had not heard of it but glad you posted.

  • MBJ
    MBJ Posts: 3,671
    edited June 2010
    anniealso:  It's always great to get your input--it's tough on our husbands, and I also worry about him no longer finding me attractive.  He is still chasing me around the house, so I guess I don't have any problems yet, but he loved my small breasts and now I am going to have maybe average sized breasts to try and make them match.  Every once in awhile he voices concerns about me going bigger and I keep trying to reassure him that once the expander is out, it won't be as large, but I secretly think he is going to like them.  He went with me to every expansion appointment and by his reaction, I think we are going to be okay Wink
  • Lilah
    Lilah Posts: 2,631
    edited June 2010

    Oh ooops!  I missed one of MBJ's posts (where she did comment on the purplish issue)!  Sorry. 

  • kate33
    kate33 Posts: 1,936
    edited June 2010

    anniealso-  I always love reading your posts!  Love the analysis of restuffing the couch cushions!  LOL!  And the fake boobs, real hearts.  You truly have the soul of a writer.  Thanks for inspiring!  What a great way to start my Sunday!

  • kate33
    kate33 Posts: 1,936
    edited June 2010

    So I think I have officially started the pre-exchange nesting as Jerusha called it.  I filled my pre-op prescriptions, stocked the fridge with Vitamin water, washed anything that could go in the washer, cleaned anything that would sit still and organized every drawer in the place.  Reminds me of my last month of pregnancy.  The funny thing is I didn't do any of this before my last 2 surgeries so what's up with that?  I'm starting to get a little nervous.  I told my PS I was really stressed out about this surgery thinking she'd reassure me but instead she asked if I wanted some Valium  Not the response I was hoping for but I said, sure, what the heck!  So I'll be popping some of that on my 2 hour drive to the hospital on Tuesday morning.  

    I have noticed the closer the exchange gets the more I am on this site and the longer my posts seem to be getting.  Sorry!

    Kate 

  • Lilah
    Lilah Posts: 2,631
    edited June 2010

    No worries Kate :)  I was more nervous before exchange too.  I was petrified before MX/TE but about a week before the surgery I entered a sort of state of denial (or something) where I just stopped worrying because I knew it had to happen.  The week before exchange I was more nervous (and yeah I did the nesting thing too -- though I did do that before MX as well)... I think it's the fact that this time it's the "final" surgery (or so we hope) whereas with the TEs you know it's temporary.  Anyway breathe!  And know this: the implants will feel MUCH better than the TEs :)  And given how good your TEs look, Kate, I'm thinking you're going to be very pleased with your implants!

  • Estel
    Estel Posts: 2,780
    edited June 2010

    Kate 33- I understand your nervousness.  My exchange date is July 19th. I think we've been through so much, and now, it is coming to an end. We want it to be perfect.  I think that may be why we fall off a cliff emotionally after the exchange. 

    Question:  I have an appt. with my PS tomorrow, I guess you could call it my pre-op visit. I'm having a terrible time making a decision about what type of impalnts; saline or silicone.  I know I should have made a decision before now, and will have to SOON so he can order the correct implants. I've written a list of questions to ask him and am going to suggest what whippetmom has recommended.  I'm just nervous.  I've posted on the saline vs. silicone threads and there hasn't been much of a response. I'm leaning toward the silicone (didn't start there).  I'm just weary of making decisions.  After a year's worth of painful decision after decision here is another one. I may be making too big of a deal out of it.  I'm just tired.  Any advice would be appreciated.  Please be thinking about me tomorrow. My PS is often rushed.  I've written out a list of questions.  I just want him to hear me and not blow me off.  I want to be listened to ... I'm not a big talker and asking those questions is hard for me.  Ugh.  Appreciate your thoughts and any insight you could give me.  Thanks for 'listening' to my rant.

  • Lilah
    Lilah Posts: 2,631
    edited June 2010

    Dawne -- what are your concerns about the silicone?  (Since you're leaning that way, I'm assuming that is your real area of interest?).  I think unless you want something larger than 800 cc's (which is as large as silicone currently comes) the general concensus is that silicone will feel better (softer) and ripple less than saline... but saline is best if you want a very large size (since only saline comes in sizes larger than 800 cc's).

  • AStorm
    AStorm Posts: 1,393
    edited June 2010

    I am contemplating replacing my current rippling and asymmetrical saline implants with silicone but I'm afraid of silicone bleeding. I have spoken to 4 PSs and none of them use the gel implants. Has anyone had trouble with their silicone (ripples, leaks/bleeding)? 

  • Estel
    Estel Posts: 2,780
    edited June 2010
    Lilah - I was a child of the 80's when the whole silicone scare came out and that's really all  I knew about silicone.  So, I've had to learn a lot.  My big concern was safety.  Are they really safe?  What if they do leak?  I know the gel is more cohesive than the past.  I'm a bit of a worrier (I'm trying to get over that!) and just want them to be safe.  And the other big question that I've worried about is, will insurance cover the cost?  I don't want to get them and then three years later my insurance company says, "Sorry, pay those thousands of dollars yourself, we're not covering that MRI."  I don't have insurance through my work now, but will in three years, or I would call and ask.  Not sure what the company will be in three years.
  • whippetmom
    whippetmom Posts: 6,028
    edited June 2010

    Claire:  You could try an Amoena post-mastectomy bra - like the Jada.  You can insert a little prosthesis to even things up if needed and it would be a nice comfortable bra to wear even after everything is symmetrical. 

    http://www.herroom.com/Amoena-2149-Jada-Seamless-Soft-Cup-Bra.shtml

    But check with your care coordinator, because most insurance plans in the U.S. cover purchase of a bra after MX.  So Nordstrom has the ability to fit you [it might be an Amoena, I am not sure of the post-MX bra they sell] and bill your insurance company.  There are other specialty shops in various cities which cater to post-MX patients - your doctor's office should have this information.  You can check Amoena for a store near you:

    http://www.amoena.com/us/StoreLocator/US-retailers/

  • Lilah
    Lilah Posts: 2,631
    edited June 2010

    I can't help re: MRIs and insurance... but when I was going through this I attended a seminar at Sloan Kettering in NY (where I had my surgery) on the subject of reconstruction.  They covered every option (all the surgeries that use your own tissue as well as implants) and made a point of saying that after the scare of the 90s there was extensive research conducted over a period of 10 years and the conclusion was that the rate of health problems in women with silicone implants vs. women without was the same and so there is no evidence to support claims that silicone causes health problems.  That said, if you opt for the cohesive gel (gummy) implants then you would be getting a silicone that can literally be cut in half and does not leak (just forms two halves).  These are firmer than traditional silicone (I have one) but still soft and shapely.  Maybe an implant of that type would give you more peace of mind?  There are two brands: Mentor CPG and Allergan 410.  You could put that on your list of questions for your PS and see what he says.  I think they are both still in clinical trials here in the US but have been in wide use in Europe and Canada for over 10 years.  (I know Allergan is still in trials -- in it's final year of trials actually -- but not sure about the Mentor CPG).

  • deekaay
    deekaay Posts: 254
    edited June 2010

    Kate and Dawne-Hope, I am nestled right between you two with an exchange date of 7/9.  I had my pre-op with my PS this week and felt really great, ready, etc. for about 24 hours--nice.  Now I am feeling the anxiety of "getting everything done" prior (the nesting) and mostly worrying about a good outcome.  I have one TE on my rads/lat d side that has always looked smaller than my right although both had fills of 800ccs.  My PS said I should wind up somewhere in the middle size wise, but he was sure to tell me that they would not be a perfect match.  We've talked about size, projection, to fat graft or wait, etc.  At this point, I am trying to focus on the fact that this is reconstruction and viewing it as that.  I mean it's not a replacement of my lost breasts and it's not augmentation.  It is a rebuilding of a breasts using available parts, natural and prosthetic.  So, I get it in my head.  Still, it's hard not to feel anxiety as others have said.  A lot comes down to the talent of the PS and I am trusting mine will walk in the day of my surgery with all his talent stacked and packed!!  I've communicated my wishes and now I will once again be in the hands of my surgery team.  It's hard to give up control, but that's is required for the next step and they have done a good job so far.

    Wishing you both a smooth surgery and good results!!  deekaay

  • MBJ
    MBJ Posts: 3,671
    edited June 2010

    DawneHope & AStorm: I believe that after all of the extensive studies that were done, silicone implants are now much better made as a result.  It's the exterior of the implants that deteriorates on both saline or silicone, so the re-do is going to be necessary no matter what.  Many last longer then 10 years and my feeling is, that in ten years we will have better options so I might want to change them out no matter what.  Unless you do crazy physical stuff ie.: pole dancer, you are karate kid or a boxer or you receive a hard blow to the chest-your chances of leaking are pretty slim.  I personally want to go with silicone.  You can have rippling with saline even if you aren't having reconstruction and the silicone is less likely to, though  there are no guarantees.  Also, I hear silicone looks and feels more natural.  Lilah is right, unless you need to go larger then 800 cc's, silicone is esthetically a better choice.  Speak up--you have earned the right to have someone listen to you!

    Kate:  I liken the exchange process to a girl on her wedding night with high expectations--We all want to have amazing outcomes but our hopes and fears are in the hands of our PS and out of our control.  I find myself going over and over the same thing with my husband, the nurse the PS--anyone who will listen to me, damnit-- to make sure we are all on the same page.  You have great before pictures and I can only think that you will also have great after pictures.  You are so lucky to have kept your nipples!!. 

  • MBJ
    MBJ Posts: 3,671
    edited June 2010

    Silicone gummies are the best for not leaking I mean!

  • Katey
    Katey Posts: 496
    edited June 2010

    DawnHope and Astorm, I've had silicone implants since 2000, no leakage, did get cc which basically squished the implant, still no leak when it was removed!  Switched it out for another silicone, I'm personally not too worried. BTW, have mentioned this before, in past have never had mri's every 3 years, last ps talked about having one after 10 years, so this is all new with the extra mri's, which I think adds to concerns. I do believe once they're in and you're comfortable with the implants, you'll stop worrying about any leakage issue!  I hope!!

    Kate33, Dublin and Jenjo! Best to you this week!!!  

  • Lilah
    Lilah Posts: 2,631
    edited June 2010

    Deekay -- good luck and remember: thank god you get to have a reconstruction and while it may not be perfect it will look good (and if it doesn't, it can be revised).  Hoping it looks good when all is said and done!  My PS also told me my breasts would not be identical but would look good in clothes.  She is right.  That said, they are not a bad set (as it were)... my reduced breast has more natural droop than my gummy side; I'm hoping with time there will be a better match up in that regard.  My reduction side is looking better every day but the hematoma is going to take a long time to soften up so my process post exchange, emotionally, was: depressed (which was not entirely a reaction to how I looked but also like I said at the time, a sort of post partum depression)... then acceptance.  There is so much to be thankful for in this process and I think you're wise to remember that this is not a replacement for what was lost nor is it the same as an augmentation; it's a reconstruction that while not the same as your originals, will have many good qualities and will become a part of you.  I love what Annie said about it still being her but just with new stuffing :)  It IS your skin... your body.

    MBJ -- that's a great image (wedding night) for how the expectations work -- and also how reality is (though I'm not married I have a long term BF whom I live with). 

  • Adnerb
    Adnerb Posts: 727
    edited June 2010

    Jenjo:  How are you doing after your lat flap surgery?  Hope everything is going well...

    Kate33:  I have a feeling you will be just fine.  I looked at your pics, and you are looking really good with just the T.E.'s!   I can just imagine they will look even better after the exchange.  Hope you will feel better as well.

    Deekay:  You and I are getting our exchange on the same day!  Yippee squishies for you and me!!!

    Brenda 

  • Lilah
    Lilah Posts: 2,631
    edited June 2010

    Brenda -- I can't believe you're up!!!!  At last!!!!  How excited are you? :)

  • vmudrow
    vmudrow Posts: 415
    edited June 2010

    Kate33- You will be fine, but I know it is normal to get nervous before surgery - I would take the valium, it will make you nice and relaxed.

    Anybody know what is the average wait time between last fill and exchange?  Is longer better?  My PS says at least 4 weeks.

  • Lilah
    Lilah Posts: 2,631
    edited June 2010

    Vmudrow -- my PS said 6 - 8 weeks... many women here say a few months is optimum to allow the stretched muscle to relax into it's new form. 

  • vmudrow
    vmudrow Posts: 415
    edited June 2010

    So my dear, dear husband threw me a suprise nearly 50th birthday party last Friday on June 25th.  I will turn 50 on Dec 25th, so it was a total suprise. There were like 80 people there and all of them know that I had surgery.  I still felt so funny giving them hugs and having them feel these hard "coconuts" (TEs).  Anyway we had a great time - but can't wait for the exchange!!!

  • Lilah
    Lilah Posts: 2,631
    edited June 2010

    Happy half-birthday V! :)

  • mslrg
    mslrg Posts: 36
    edited June 2010

    Hi Ladies, I have to ask again: How much bruising and swelling did you get with your exchange surgery? I look so beat up. PLus, the areas where I had lipo as well as my incision sites, have got this red, raised, swollen, scaly, itchy inch-thick line. I hurt so much. Moving even slightly hurts more, and makes me nauseaus. Surgery was on Monday. I see my PS for a post op tomorrow. What are your thoughts?

  • deekaay
    deekaay Posts: 254
    edited June 2010

    Lilah, thanks for the reassuring words of wisdom.  I, too, like the idea of new "stuffing" so I will enjoy that image when the worries visit.

    Brenda, Yay, Yipee Squishies on the same day!!!!!!!!  Can you imagine how good that is going to feel?  mmmmmm.... 

  • Lilah
    Lilah Posts: 2,631
    edited June 2010

    Mslrg -- I had a LARGE amount of bruising on my reduction side (not on implant side).  I did not have lipo.  On my reduction side the entire lower half of my breast was as purple as an eggplant (DARK purple in other words) for at least 10 days - 2 weeks following surgery.  The bruising also went as far down as my hip (dark there as well though not quite as solid).  My PS said it was blood from the breast following the line of gravity down to my hip.  The bruising on my body healed faster than on my breast.  Bruises follow a color pattern... from purple to green to yellow-brown as the blood is reabsorbed into the body.  When I saw my PS a week after surgery she was not at all alarmed (though her nurse wondered if I was on blood thinners -- I was not).  Anyway it seemed to me it got worse before it got better (for example.. the bruising on my body below my breast to my hip seemed to get bigger before it disappeared).  I think as swelling goes down the bruising can come to the surface more.  In my case my PS thinks a blood vessel burst and caused all of my bleeding (she said I hadn't bled much at all in surgery and was not bleeding when I left it!)  I also was very swollen and still am now, though not as much (7 weeks after surgery).  In fact my reduction breast is hard in places from the hematoma that formed under the skin (it continues to soften and will take months to get back to normal).  I was pretty alarmed and worried that first week but seeing my PS put me at ease.  That said, the red raised itchy part is not familiar to me -- could be infection, I suppose, though could also just be scabbing (and you're itchy from nerves or from healing -- actually I was itchy from healing).  I had a thick looking, dark red scar too (I thought) but it turned out to be a scab that came off about 5 weeks after surgery (and the incision underneath was a fine line and pink.. now healing to normal color).  You could be suffering from a low red blood count -- which can make you dizzy (which in turn can make you nauseous).  I had that as well due to blood loss even though it was all internal.  You might want to ask your doctor to test your RBC.  It's common after surgery to have a low red blood count.  I only found out about mine because I'm still on Herceptin and my ONC checks my RBC every three weeks; I went in for Herceptin the week after surgery and my RBC had gone from 11 to 8... a big drop in three weeks time. Anyway, I'm glad you're seeing your PS tomorrow!  Hopefully everything you are feeling is normal post-surgical stuff... and if not you will have a doctor's opinion and examination. 

  • Adnerb
    Adnerb Posts: 727
    edited June 2010

    Lilah:  I may panic right before the surgery.  I may need the Xanax then.  I'm trying not to expect too much, so I won't be disappointed.  BTW I am not surprised that your reduction side took longer to heal.  I've always heard that breast reduction is a much more complicated surgery (than augmentation).   I'm glad you're feeling better and that the worst seems to be over.

    Brenda