Bottle o Tamoxifen

Good Morning gals!  Thanks Y'all for keeping this a fun thread! 

Beacon, I must say, you are not helping yourself by being negative about everything we are talking about on this thread.  None of us really love the idea we are taking or HAVE taken Tamoxifen.  And we ALL have SE's!  We just TALKED about hair loss and problems with our once lovely toe nails pages back!  If you WANT to find answers to any questions you might have, go BACK on this thread & read what we talk about! 

http://community.breastcancer.org/forum/78  Now here are a lot of topics about Hormonal Therapy, including Tamoxifen for you....

We just don't think it is nice for you to come on this thread & rag on us because we aren't sticking to your subject.  So if you don't want to hang around with us, then this isn't the only topic on BC.org.   Oh wait, here is another one for you.

http://community.breastcancer.org/forum/78?page=3

http://community.breastcancer.org/forum/78?page=5  And THIS thread was started by one of our friends that had serious side effects, and SHE still stays up-beat, & trys to move on!   If you can't find anything on these threads to help you, START your own! 

SURE I lost a lot of my hair too!  But I just style it a different way, & even colored it!  RED!!!  And my toe-nails?  I lost 4 of THEM!  They just sort of got soft, & I took them off.  But compared to the rest of my life.....Oh wait!  Did I tell you I went deaf on Tamoxifen?  So compared to the next 20+years of my life, who cares?  I'm done with yesterday. 

Do what you can!  It's all about attitude..... and breakfast! 

Is that SPAM I see?  YUM! xoxoxooxoxo

Tek!!!!!!!!  Morning girl!  Yes, you are right!!!!!!!!!!  Oh well, Spam, Sausage, both rank right up there, ha!  xoxoxoxo

YES!!!!!!!!!  Fried Bologna!  My DH sprinkles a little sugar on it while frying, because you KNOW it makes it better for you!    You have to snip the edges, so it won't curl!  Aren't wieners and bologna the same thing?  Except we just had hot dogs the other night, & the skin was so TOUGH!   I might have to try making hot dogs with bologna.....Ha, ha! 

Jo good luck with your appt.  Yep the needle thingy scares the crap out of me.  Since my med is working some I am hopeing for something topical for the breakthrough pain, but guess we will see what the old pain dr has to say about it.  I am such a wimp sometimes.

WHAT FRIED BOLOGNA, that sounds horrible.  But guess it is cause I don't like bologna.  When I was in 7th grade got a stomach virus and had had bologna sandwich for lunch.  Not good coming up and have not eaten it since.

Breakfast looks wonderful, I needed it.  DH was running late this morning and did not get my oatmeal made form. yes he spoils me.

I missed alot on here last night!!  I was cooking dinner.  I bought a huge 1015 onion at the farmers market so I decided to make homemade onion rings last night.  Made them gluten free as my DH is allergic to wheat.  They were so yummy,  still have 1/2 an onion because it was so big.  Think I'll make hamburgers friday night and more onion rings, ya'll are all invited.

Alicia, we are on our way to pick you up and drag you outside girlfriend.  We are all gonna stick together and help you get over this funk!!!!!!!!!!!!

so our discussion on Biotin I am taking 2000 whatever a day sounds like I need to up it as most of you are taking 5000

JO..OK wings on and all pixied up!!!!! Im there!

Tink - You are such a sweetie - you just earned yourself an extra happy juice on Friday.

PLEASE, someone help.  I have a couple of questions.  I noticed skimming through that most of you are Hers2-.  Was that a factor in taking Tamoxifen?  I was told by my onco that unless a women had had a hysterectomy, Tamoxifen was not given.  I am 15+ yrs post menopause and have high risk osteoporosis (and duh, I am on Als!!).  I am hating taking first the Arimadex (too many SE) then now on Femara.  I am also starting to lose what little hair I had grown after completing Chemo & before being put on Als.  It was growing until I must have gotten a "good" dosage level & now I am going the other direction.

 I understand the importance of estrogen inhibitors, but right now I am angry, frustrated and hurting.  My GYN is willing to do a hysterectomy, but the Onco poo-poos it as being a major surgery in order to go on Tamoxifen absolutely ridiculous.  Right now nothing is too major (especially if it can be done vaginally) if it keeps me sane or from breaking something or someone.  I got over the loss of my hair, never wore a scarf, hat or wig, but I am through all the Chemo and I WANT my hair back even if it is just a pixie.

 Does ANYONE on this list/board understand or have any suggestions?  I see my Onco next Thurs. June 2.  Daughter/Nurse is going with we and possibly my husband.  Onco has met them  several times before & DH is also a patient of his.  Life is just wonderful.

Gals,

I'm not sure if I saw it in here, or the 'Newbies on Tamoxifen' thread, but weren't certain of you having toe pain?  I've been on this tamoxifen about 2 months now, and in the week or so have had a good amount of pain in my big toe--at first I thought maybe an ingrown nail was starting, but it's not.  There's no bruise, no swelling, just pain.  I'm just wondering if I'm getting another lovely SE of this wonder drug.  Thoughts?

Thanks suzanneinphoenix,

This is like it happened over night on one side (so far).  Even hubby noticed it and that is saying something !!!   My hair has always be thick but "going through the change" did lighten the amount somewhat.  Obviously I can't grow a new boob therefore I am determined to have some hair growth so that I don't look like a boy or pull the plug.  I am older anyway & never expected to live forever.  There are a lot of things I would do differently with this mess..............hind site is always 20/20.  BC is a bi**h.

Hi Linda I do have toe pains and they come and go with some weeks so bad and other nothing at all!  My toe pain was more like a cramp that pulled my toes downward and I literally had to grab them to pull them back.  Not sure if that is more like a spasm but only on my left foot not on my right.  I hear bananas really help and another woman on this thread was taking something like Lycra ( I think, I forgot the name ) but I am sure she will chime in and tell you.  Good luck and let us know what works for you!

Wanted to share a photo of DH and I at the Wedding last Weekend.

Sorry can't seem to make this picture any smaller

Thanks June

Congratulations Tek!  That just makes our day!  xoxoxo

Sherry!!!!!!!  I forgot!  LOVE the picture you posted, AND that handsome man you snagged!  xoxoxoxoxo