Bottle o Tamoxifen

Shari - My story is very similar to yours.   My tumor was found on a routine mammogram and verified on a compression mammo and US.  Like you I was medically boring. Now, it is a nightmare of doctors appts and testing.  So sick of it.  I have many more appts this month and will be so glad to see July come.

I do alot of research on the internet and somtimes think I shouldn't as I don't always like what I am reading.  But, as they say, knowledge is power and we do have to be our own advocates.  Case in point, my gyn was talking about doing a transvaginal US maybe next year since I am on Tamoxifen and I asked to one on my visit last week to establish a baseline.  He did agree and it turned out I needed a biopsy for a 1.5 cm fibroid and very thick uterine lining.  So glad I asked.  Had a hysteroscopy D & C done on Saturday and will get the results next Tues.

Hope all you TammiBabes are having a good day. 

My DIL from Seattle sent me an email last night and her mom now has DCIS.  I just hate cancer.  Anyway she wanted to let me know and to tell me she had given her mom all my numbers and email in case her mom wanted someone to talk to.  She said she knew I wouldn't mind but wanted to fill me in on what is going on.  So I sent her an email back with probably more info than she wanted but I wanted her to really understand about her Mom's cancer.  So she emailed me back this morning and was thankful because I was able to tell her alot more than her mom did.  It is all so new her Mom probably does not know all this yet either.  Heck I've been searching for months now for info.  Anyway I think my DIL felt better with the info I gave her.  I hope her mom gives me a call.

In the last ten days I have only had one night that I had one hotflash.  I really do think they are gone. wooooohooooooooooo

Jo I am like you and wished I had known more in the beginning. 

JO..HEHE Never tired of flying ... just flying around too much!.. Alis sched has been all over the place with finals and catching up with appts and lots of end of school year lets get together before summer starts stuff...  and trying to get ready for vacation. ... leaving MOnday...

How are you feeling????... hugs!!!!!!!!!!!!!!!!!

Sandee~~

Congratulations on your good news.  I just got my 2 year mammo and cancer free also.

We can both do The Happy Dance.

  CatbirdC

Yahoo Jo, Sandee, and, CatbirdC!!!  Doing the happy dance for ya. YAHOO!!!!

Tink getting ready for a vaca, luckey girl!  I am green with envy, lol.  My vaca this year was spent recliner side at hotel Paula recovering from my BMX.  Atleast I had a HOT HOT waiter who waited on me hand and foot.  

My SE have kicked up abit.  I had extreme bone pain from the taxol, so I can handle this.  It is abit uncomftable, I can do this though.

Sherry Im so to hear about your DIL mother.  Im glad to see she has you to guide her thru this.  Its like you said on the searching, theres so much to try and find.  Let alone a site you can trust.

It so nice out here in my part on the woods.  Its raining, but atleast its not 100 degrees out.  Enjoy it while I can.  

Have any of you gals been BRAC tested?  If you have tested positive and have kids, how do you deal with it mentally?  Im still having bad days with it, and could use alittle advice on how you handle it.  I know that just because I tested positive that doesnt mean my kids are either.  My family history with BC is very strong so with me being positive really does a number on me some days.  Thanks for any suggestions.

Good news is always celebration time.

Dear sandee and catbird, so happy to read of your good news. You should know that it inspires all of us. Good to know that test results can come back ok. I wish all of us year after year of boring, normal test results. My mom had lung ca two years ago ( shes fine now) and i remember her saying that her new favorite word was 'normal.'

Jo, glad you are feeling better and thanks for your supportive words. I have a scan scheduled for weds and am following your 24 hr rule strictly.

Tink, where are you flying to? I am set to visit my family in a few wks in the US which means an international flight for me with a stopover so plenty of ops for Security snafus. I flew in january and decided not to wear my prosthesis (wore bulky clothes) to avoid any weird situations. Nothing happened. I had also been nervous about potential blood clots due to the long flight but i got compression stockings and walked a lot and it was ok. So many new, wacky things to worry about.



Paula, i feel for you re talking to your family about the gene. Not easy. I guess they are wondering about it anyway and maybe you could present it as a good thing in the sense that they can be watched very closely and if anything, it would be caught early. Of course no one wants the gene but if they have it (which they wont know they do unless theyre tested) at least they shpuld be treated well by the system and have sympathetic docs and fewer insurance hassles. Here in israel, where unfortunately the Ashkenazi Jewish gene is prevalent, there are accepted protocols if you have the gene. Yearly MRI, etc. Maybe the same there. Not easy news but once they are over the shock (should they choose to get tested, and test +) they can at least use the info to make choices such as perhaps doing prophylactic mx. I know quite a few women here with the gene who havent been dxed with BC. Most havent done prophylactic mxs but have done oopherectomies (after they had kids) and are watched very closely. There is also a website FORCE something, that deals well with these issues. Good luck.

SherryC, sorry about your DILs mom. Sounds like they are both lucky to have you. I would imagine that theyll have good resources in Seattle. Nice for them to be able to talk to you.



Well, good day to everyone!

Shari

Sandee/Catbird congrats on the clear mammos and good news... so happy for you ladies!!!!

Paula. I had the BRCA test done but mine was negative. I do have a daughter and what they told me with her was that if I was positive they would do a test on her when she was out of her teens to test her for the gene since i was negative they told me she should get a mammogram ten years earlier then she normally would so i would imagine she would have to start at 30. There is not a strong family history but me fear is I have started that strong family hostory if you kknow what i mean... as the future unfolds my hope andprayer is that it stops with me.

Jo/Shari.. my FIL has a house n Myrtle beach so we are headed down there to stay for 10days. They have a laptop down there, there is know way i will be able to not check in for ten days lol!!!!

Sherry...my wings are ready to go for tomorrow what time we leaving????? good luck tomorrow please let us know how it goes..

Shari.. glad all went well for your travels. I know what you mean though the simple things like driving flying that we really didnt give a thought to before is all so different now, everything kinda has to readjusted. I have not flown yet and it is about a 6-61/2 hr drive down to Myrtle beach from here and this is our first trip since all this started last summer was spent recoup from a bilat.with reconstr. As excited as I am to go away i am also a little nervous too.. when i get back a few weeks later i will have another revision surgery yet that doesnt scare me....too much.... wow how life has changed lol!

Sandee, congrats on your results. I  have my own MRI coming up in August and a little worried.

surfette...good luck! hugs coming your way!

I know JO it seems like it never ends... I have 2  6 month check ups on Thursday BUT the some vacation then when I get back pre ops and surgery... but I will enjoy the break and be happy for it, this time last year I was preparing for the "big" surgery 13 hours worth   after that all the others have felt like a breeze so to speak...

have a great day Ladies.

hugs to you all!!!!!!

I'll be there too Tink

edited to add--Hope the pocket is deep, I'm 5'10"!

My pocket is big enough for all you wonderful ladies!!!! hop aboard!!!!

JUne  so glad you are doing better... you going away for vacation?? hugs!

Sandee and Catbird CONGRATULATIONS on the good news !!!!

Jo ~ Glad to hear you are doing okay, good luck with your appt today.

Today I see a new therapist and next Thursday is my breast surgeon appointment.  I hope she doesn't feel anything.  I am feeling a little better.  But definately not completely out of the funk.  It's tough but I will get there !!!

Hugs girls !