Illinois ladies facing bc
Comments
-
I also am not from the area, so best to call the woman who trapses all over for her kids' sports! That would be Lisa!
Now this is weird about BC/BS as they paid EVERYTHING for me without a problem, but that was nearly five years ago. The only thing was the wig (they did not pay for it) I wonder if they have tightened up. Rita and I are retired teachers and our insurance is provided as a continuation from when we received benefits as Illinois State teachers. The State of Illinois (as most may know) is in a mess financially, so any email from our retirement source makes me jumpy. I do not want to leave my program (and I won't have to this time aorund) as I love my doctors and I have receieved great care. Medical Insurance is a nightmare. I carry my husband is a lawyer and so in business on his own. He amounts to nearly $760/month! Thank heavens I adore him. I do not know how people manage.
See you tomorrow. Nana, I will be outside the hotel at 12:10. I have white hair......a former student went home and told his mother that I had hair that glowed in the dark. You'll know me.
Be well, all! These are hard times for many.
Susan
0 -
Thanks Susan...I'll be there...I have brown short brown hair...with a short fluffy body.. he he
See you all tomorrow...
Nana Marsha
0 -
-
Late this a.m. and wow !!! thunder, lightning, pouring rain for what seemed like most of the night. I had to go to Mt. Vernon V.A. and get a fasting blood draw so only just now getting to have my first cup of coffee......sooooo, if I don't make too much sense.
I hope you ladies are all going to have a wonderful lunch and enjoy rainbows by the dozens. Sounds like a lot of fun and Nana Marsha.....you will love it.
Have Maggie home from hospital which is good and cuts down on my trips per day. Hear more thunder outside....going to be an interesting day I think.
Hope you all have a great day -- someone take some good pictures to share with the rest of us.
Hugs, Jackie
0 -
Hi Everyone - just wanted to say hello. Sounds like some of the gang is getting together today, that's so wonderful. I hope you have an excellent time (well - it wouldn't be any other way with you gals, now would it ?
Mom is scheduled for surgery 6/30. I'll be taking her for her surgery & then all of us kids will take turns helping her out at home. I can't remember if I told you or not, but she is def. Trip-Neg.
Hugs to all & Rene, I am wishing you the best!!
Julie
0 -
Another good time, great to see you ladies!
0 -
Ladies ...thanks so much for meeting in Lombard.It is so nice to be able to put some names with faces. Unfortunately we did not get picture taken before LIsa & Julie left ...I will try to figure out how to post picture of the remainder of the group.
Susan....thanks so much for picking me up and getting me back. Marsha
0 -
It was especially good for me as I have not spent time talking to the individuals in this group, with the exception of JulieB. Everyone looks healthy, happy, positive and just so ready to live life. I loved being with Nana, Adey, Lauren, Onward (and she really is that in spirit, Navy Mom, Lisa and Julie B. I too am sorry we forgot about a picture and hopefully Marsha will firgure out how to post a picture. If she does, just imagine Julie B and Lisa.....looking as lovely as ever. They needed to get back to work. We are a fortunate group of women.
Susan
0 -
Love you guys. Everyone looks fabulous. This picture doesn't do the crowd justice. I even got an escort!
I'm so glad I made it! (Adey didn't get lost on the way home. Roosevelt is familiar territory)
0 -
Hi Gals
Had a great time at lunch today. If we stayed much longer we would have been looking at the dinner menu!
Here are the 2 books that I mentioned:
Dancing in Limbo, Making sense of Life after Cancer by Glenna Halvorson-Boyd and Lisa K. Hunter
Forgive for Good, A Proven Prescription for Health and Happiness by Dr. Fred Luskin
Both books have been helpful in assisting me to see things a bit more clearly and with an appreciation of what life has to offer no matter what kind of situation you are in.
Navy
0 -
Lots of fun today, glad I was able to break away from work and join everyone!
0 -
Yay for Lago!
0 -
Hi
It was wonderful meeting everyone today- albeit briefly. I came in late to work (see below) and couldn't push lunch too long. I left really wishing I could stay. Great people, great conversation...and great food.
Neary 6 weeks out from mast and back pain persists. I had an MRI early this am-- for peace of mind, really, but also to hopefully get a clue as to what might be going on. Thoracic spine. Constant pain and unbearable tightness right along the bra strap line and burning nerve pain that jumps all around. The good news is that there is nothing nefarious-mets seen. Frustrating is that nothing much else was seen. I was kind of hoping for clear cut answer of some sort. So at this stage, I can only conclude it's somehow surgery/muscle imbalance/nerve irration related. I'm starting PT, seeing a new acupuncturist (interesting woman- will have to report more on this later) and setting up myofascial massage. Oh, and seeing a neurologist Thursday. Suspect there might be (?) some mild fibromylgia stuff going on as some of the nerve stuff was happening pre surgery. On top of work and kids' stuff--- I guess I had better get the calendar up to date. One day at a time. Today was good and tonight-- tonight I hope to sleep. -julie
0 -
What a lovely group of ladies! It sounds like you had a great day! I'm so glad you had the chance to get together. Thanks for posting a picture, lago.
0 -
Great. I was so hoping to find a photo of the lunch group today. Thanks so much for posting, Lago. So sorry that i was unable to be there. Lago, Onward, and Lisa.... all that hair!
I have to be at NW at 6am tomorrow morning for my exchange surgery. Yikes! I am off to bed!
0 -
Update - The radiologist who did my biopsy called me at work today (a day earlier than I expected!) and gave me the GREAT news that my results were negative! The relief was ... amazing. What a huge black cloud to have lifted. He was so sweet about it too. He made a point of checking today just in case the results were done, and they were, so he called me right away. I was blown away by his consideration.
I see my Onc on Friday for my Zometa infusion. I'll also be talking to him about having a prophlactic mast. on that side. I dread another big surgery, but I dread more having to repeat these scares over and over again for the rest of my life. Thank you to everyone for all the great support and good wishes!
What a great picture! Glad you guys were able to meet up and had such a great time. You all look MAHVELOUS!
Joan - Good luck with the exchange surgery tomorrow. Will be sending good thoughts your way!
0 -
0 -
I finally figured out how to post the picture.
Marsha
0 -
Good Morning girls....How is everyone this rainy morning. What a change this is for me coming from Las Vegas were it was a 101 degrees all week. Missing my pool and hot sunny weather all ready. Had a great girl's trip, had way too much fun and as they say what goes on in Vegas stays in Vegas he he. But I am glad to be home. Sorry I missed lunch but was thinking of all of you as I was flying home. I must say you all look so beautiful and healthy!! Thanks for posting a lovely pic. Glad you all were able to meet and chat. Zap you are the party planner.
Nana...glad you were able to meet us Illinois girls and yes they are a very chatty group!! hope you had fun.
Rene.. love your good news!!!!! B9 Time to celebrate. Is your ds still looking at going downtown to live?
Joan...good luck on your upcoming exchange. Sending you a healing hugs your way.
Lago...you look lovely. No one would think you were down and out with shingles.
JulieB....how are you doing? glad to see that all tests are B9 too. Hope you are feeling better soon. Let's chat soon
Juliet....how is your mom doing? Where is she having her surgery? If there is anything you need, just call.
Laura...sending you healing hugs your way. Hope all is well.
Jan...shingles too. Oh I hope you are doing well too. Yes we do need to get together soon for lunch.
Jackie...glad to hear that Maggie is home and resting. Now you need a break too. Stay cool from the heat wave.
Just wanted to stop by and say hi to all....I have a super busy week. To everyone else I missed I hope you all are doing well. Well off to do laundry and errands. Have a wonderful day today.
Remember to be healthy...be happy and enjoy life.
BJ
0 -
Rene that's fabulous news. Happy Dance (might be a repeat)
Joan good luck with the surgery today. I'm sure you will do fine. You've done this before
Marsha, congratulations on your virgin picture post!
Julie 6 week out from MX isn't a long time. I really hope this is just nerves regenerating and it goes away in the coming weeks.
BJ shingles are gone but I'll take the compliment anyway, thanks.
Jan how are you doing? I really hope you got the shortened version of the shingles.
Laura how's the LE. Mine is better but still have some soreness in both upper arms and numbness/solid area in lower left arm. Not too bad though.
Today it's peach jello for breakfast
Chicken broth for lunch. I've already made lunch plans for tomorrow after the colon-cam. I'm already hungery. 0 -
James Buckham
Every trial endured and weathered in the right spirit makes a soul nobler and stronger than it was before.0 -
Good morning everyone and a big thank you for the pictures of all you fantastic looking women. Susan.....your dress matched the de'cor of the restaurant ( at least where you were sitting ) perfectly. Such fun to be had.
Glad you are back from Sin City, Vegas, Bj. It will be anti-climatic, but our everyday routines are what makes the vacations pop.
Rene, what a relief.....you must be hearing the tail-end of everyone's sigh here. The only thing worse than waiting for what you think could be bad news, is having to wait just as long for the good news. So glad that hurdle is done.
I'm going in Monday for blood test results and to talk to my PCP. I try not to complain, but my hip/leg has been hurting a bit.....my idea ( I could be so wrong ) is that the condition of my feet has caused me to walk in a different fashion than my norm.....and the fact that I have one leg longer than the other.....has I think....now caught up with my hip. So, hopefully.....they can come up with some answers that will get me going in the right direction. These damp days seem to increase the mild discomfort ( hello Arimidex ) as if I didn't know you were there, but it is really the only time that I do " feel " that pill. Otherwise....all's fine. I am down to 170 #'s now so depending....I may only try for 15 or more so. If I were younger......I might wish to go a little lower, but I don't want to overdo it ---- I'll just see how it goes.
Laura and Jan.....still thinking about you and hoping that you get good control of those shingles. I recall Denny having them and it just was such a trial to get through.
Lago.....I'm already hungry for you too.
Julie and Juliet.....thinking of you both......a huge dose of high hope and healing prayers for you Julie and you Mom, Juliet.
See you all later.
Hugs, Jackie
p.s. Waving at Wendy
0 -
This is way off topic, but I'm curious if anyone ever experiences this.
I'm not even sure how to explain how it feels but I'll try:
Ever since I've gone through all of the surgeries, rads, and insta-pause... I notice that I often have the strange "brain sensations". For example, I will be sitting at my desk working, and all of a sudden my vision seems very funky & kind of goes dark. And I also just feel like I'm completely out of it, and cannot focus.
Sometimes I feel like I am just on another planet! It especially occurs when we have rainy weather.
I've had my eyes checked, and had a brain MRI last January (when they found my recur), so I am perplexed about it.
Maybe it's some sort of free-floating anxiety - or maybe I'm just a space case, LOL!!
Anyway - just curious if anyone has had weird sensations since going through all of the tx's and/or menopause.
Thanks very much - Julie
0 -
Ladies - I'm so sorry I couldn't go to lunch. One of these days, I swear, I am going to see you all again. Looking at the photos touched my heart... you guys are all so sweet.
Thanks so very much for the well wishes for my mom. I pass these messages on to her & she is grateful for the support.
XOXO Juliet
0 -
Juliet, I do have funny feelings that I cannot explain. I call it a brain blip and I just cannot find the word or the thought and I do have trouble attending a task. I have always been a bit attention deficit, but it has gotten worse. My kids notice it. My thoughts flip.
Jackie, might you have bursitis? I did and went through PT and now it is good!
That's it for me.
Susan
0 -
Hey all, I feel very thankful that I found this group. It is always fun, informative and a joy to see how much we have changed (for the better) since our last visit. Nana, so glad we got to meet you. I promise to bring my wig (in my purse) next time. Perhaps we can auction it off or something. Adey thanks for the loan. My son neglected to return my credit card when he used it the night before......love ya, onward
0 -
BustersMom I started taking Acetyl-L-Carnitine when I was on chemo because I heard it could keep neuropathy at bay. (I think it worked because I did get it in my left heel but once I started taking this stuff I never seemed to get it anywhere else). Anyway I swear my memory is better so I kept taking it. I also recommended it to Marybe and she too said her memory is better. It does say on the bottle "memory booster". I wonder if this would help. I get mine at teh Vitamin Shoppe.
Onward you do know you crack me up.
0 -
Congrats on the good news, Rene. That is such a huge relief. I guess that is why I did the BMX as I knew that I was just going to be too much of a constant worrier if I just did the cancer side.
My exchange surgery went very well this morning. Back home trying to stay awake for a little while. Think I may have overdosed on anathesia this time. Probably the Norco pill that the recovery nurse insisted I should take to stay ahead of the pain. Really have no pain though... well at least not for now.
BTW, I did speak to my ONC this week about the Shingles vaccine and he said NO! But they did recommend that my DH get one for my own protection. So he marched right off to Walgreens and got one. Nice man. He was a bit disappointed though to learn that the vaccine only diminishes your chance of getting shingles by 50%.
Well, I am going to nod off again... everyone enjoy each and every day as much as possible!
0 -
Joan it may only diminish 50% but it also reduces the intensity if you do get it. Totally worth it. Glad to hear the exchange went well and you seem to be feeling great. Did they have to do any fat grafting? I feel we are doing the same thing and about the same. You're like my preview.
BTW I'm hungry! Making sweet & sour cabbage soup for my husband (and to freeze). Not sure why I'm torturing myself but at least I can smell it. More chicken broth and peach jello for me.
0 -
