Bottle o Tamoxifen
Comments
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Same here Paula and Sherry with the gas. I don't feel bloated I am fat, but I do have the gassiness and you are right Sherry any food sets me off it is so frustrating.....
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Hmmm.. Its all very interesting. I had DIEP in August and did not have that bloated belly... then had stage II in November with some upper belly lipo, but not a lot... and my lower belly has remained the same... so the bloat is from the incision upward to bra line. I started tamoxifen one month after stage II surgery, and continued to wear compression for another 2 weeks. So started Tammy on about 12/14, and one week later while still wearing compression, I was sending photos to PS to show the bloat.. so that is only one week after starting tamoxifen... would it bloat me that fast?? AND more importantly, will it go away with time? It is not very attractive... and I have not gained weight.
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I would say it is from something surgical at this point....I was pretty sick at the end of rads with zero appetite and a flat belly while on tamox at the 2 month point....
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hope so... I also have been exercising more... so who knows... maybe DIEP/lipo'd bellies don't like exercise.
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Sjack sorry you are faced with this scare. I will pray for B9 results! Keep us posted and feel free to come here to talk before the results come back!
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I had lumpectomy, rads and then tammy, now starting month 15. No bloating but gas started about four months ago and is pretty bad. Dosen't matter what I eat.
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ok.. one more thing to look forward to... does gas x work or some other gas reliever?
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I miss all of you guys! Hope everyone had a wonderful New Year. I am headed for the US next week to be with my Dad who is in the hospital now getting chemo for leukemia (recurrence after 20 years.) Will be hard but I'm glad to have the time with him and be able to be with my Mom and brothers during this time. Hard. My Mom had lung cancer in 2009, and my Dad is now in the same hospital. Mom is OK but spooked by being back there. June, how is your Mom doing?
Welcome to the new ladies. I say hang in there on tamoxifen. SE's subside or we learn to live with them, not sure which. Also we learn some things that help. I've found eating healthy helps allay the hot flashes and swimming and taking omega 3 helps with the joint aches. Constipation is intermittent but taking a probiotic, eating lots of yoghurt and fiber, drinking enough and taking magnesium seems to help with that.
I go see my MO next week and will ask her if I can stay on tamoxifen even though I've just had the oopherectomy. I seem to be overall ok on it and want the maximum number of years on these drugs for the protection. Not sure what she'll say but I don't feel ready to switch to an AI now that I'm coping with tamoxifen, even with all of it's SE's.
To Mind_boggling, I wish you the best in finding answers to your question.
SherryC, how is your neck?
To everyone, lots of love, Shari0 -
Hi Shari, nice to "meet" you, and thanks for the nice post. Hope things will go well for your dad and that you have a wonderful visit with family.
I have a question on the probiotics. I thought they only helped with diarrhea. Do they help with constipation too?0 -
HI, Kay,
Nice to 'meet' you, too! Thanks for your nice wishes.
I don't think theres a downside in trying a probiotic (they come in all different doses, speak to the pharmacist) to see if it helps you with constipation. It does seem to help me. If it doesn't help you could always stop taking it. Here they seem to think it's part of having a healthy digestive system. (Of course, run everything by your MO.) You could also just see if adding more yoghurt (that has active cultures, is BIO) helps, first.
Shari
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Here is a picture of me and a dear friend at our New Year's Eve party.
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Jo I love the pic and you are one gorgeous lady with a beautiful smile.....looks like you had lots of fun.....
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great pic Jo!!!!!!!
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Shari good to hear from you. I'm glad you are getting to come home and be with your family during this difficult time with your Dad. I know what you are going through as I just went through the same with my Dad. I'll be praying for you and your family. As for my neck it is still killing me, it does not seem like the steroids have helped. Dr. said to wait 7 to 10 days and if not better to call him and he is going to talk to my MO about it. If it is not better by Thursday I am calling him, my next appt with my MO is the following Friday. Until then I am having to break down and take pain pills because it is so bad. Just trying not to overdue it, I still need to function at work.
Jo what a great pic. Is this the friend that had BC that gave you so much support.
Kay my MO put me on probiotics (8 billion cultures per day). Makes me think he knew tamox might cause some digestive problems.
It has already been a busy day. Just took a 550 peice bulk mail newsletter to the post office and now I have to work on another newsletter. This one is via email but I still need to get it finished.
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yes Betsey, tamoxifen is for premenapausal...as i was too.. i am on it for a year or three and they are following my hormones to see when i can safely change to an aromotase inhibitor( which if given before you are post menapausal does not work as well)
so I should have phrased that question better...
ie you can be premenapausal and 40 but your hormones are already checking out on you..or you can be my age and they are not, or at least were not...so really, what i am wondering is if less intense SE are associated with already lowered/changing hormone levels? ( since tamoxifen works by mopping up estrogen and if already lowered then not notice as much? ) you know, basically think everybody is a unique combination of many diff genes, so we are all going to vary , was just thinking out loud and making a gross generalisation!
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Shari how did I miss your post. OMG I am so sorry that you are going through this right now. I bet your Mom is spooked as I know I would be too....Praying for your Dad and please keep us ladies posted on you Dad.....love and hugs!
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June, thanks, you are so nice. How is your Mom doing?
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Sherry - That is a good friend of mine - she did not have BC. She comes from Canada for 3 - 4 months every winter.
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Shri sending prayers out for your dad.
Jo lived the pics on fb. You looked like your having a blast!
Oh and June just for the record the chocolate was amazing, lol!!!!!
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Paula Paula Paula you wait till this weekend as I have a lot of time on my hands......
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Bring it sista, lol!
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Whew! Girl fight - girl fight! June & Paula - do you need a referee??? hahaha!
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Shari thinking and praying for your dad and you! hugs
Junie how is your mom doing?
Jo... See it wasnt even my fault this time Junie and PAULA gotta watch those 2 lol!!!! love you ladies!!!!!
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Lol Jo all I gotta do is bring out a pillow and June is mine, lol! Love you Junie!
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Tamoxifen is used both for women who are premenopausal, and for the post menopausal. I am post and am on it.
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How are SE's on it for you, cycle path? Was there a reason you're doing that instead of an AI? I thought an AI was preferable because it had less serious side effects.
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I had a friend who stated out on AI's but the joint pains where so bad that after two years she switched to tamoxifen and finish her 5 years on it with less problems.
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interesting...my oncologist said that AI is not going to give you as much protection if you are premenapausal than tamoxifen....but if you are post, AI is superior in terms of inhibition of recurrence..they work/act differently.
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Louis that is what I understood as well I did not say that my friend was post menapausal just could not take the SE's of the AI's
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My MO has told me that I will take Tamox for about 3 years then switch to AI... I assume that the Tamox is better for PREmenapausal women and the AI is better for POSTmenapausal or they wouldn't in general make that proposal, as a plan... of course there are exceptions and of course if a person has trouble with one or the other they may bend their ideas a bit... or maybe if you are almost postmenapausal, they will go straight to AI... just my guess though... sounds like my MO is consistent with Louis13's MO, and many others I have read... I have rarely heard of a premena. woman on AI... except your friend Sherry.
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