Bottle o Tamoxifen
Comments
-
Jo, I know what you mean about the persuasive docs! If I had my way I wouldn't have done half the crap I did.... but at least I am still here to complain about it!!
So hang in there with the re-start - it might be easier than before. (Note that I did NOT say "easy"!)And nerve damage just plain sucks. Period. Just sucks.
0 -
Jo, thank you and I hope you ease right back into the groove. Maybe baby steps and lots of milk as I remember that is what really helped you.
Linda thank you I am ready for winter to be over and just want my life back to what it used to be a 6 months back, is that too much to ask for? How are you doing these days?
Oh Paula I may be down but I know I could really use to whack someone right about now.....better run and hide and take that cute little Tink with you.
0 -
Junie so sorry your mom is not doing well. You have had alot on your plate here lately so don't ever worry about coming her to vent. You have to have a safe place to go and we are all here fo you.
Linda thanks for the info on the immune system
Jo the nerve damage just plan sucks. I just love how these docs can be persuasive. I have another week to be off Tamox and then have to go back on it. I just overall feel better so I really don't want to but that was the deal I made with the Dr's so I guess I'll keep my end of the bargain. When I do my BMX I will be off tammi for a month, that one will be really hard to go back on. ugh.
0 -
Junie- I also have left side itching. I think that it is leftover from rads. I finished Oct. 20. Not unbearable, but aggravating. Hope your itching goes away soon.
Deb- I'll be in your pocket tomorrow, and happy birthday.0 -
I have a follow up with the pain specialist on the 24th and I am going to insist on some answers. This guy has a way of doing most of the talking and not saying a whole lot that is worth a damn. There has to be a reason for this. It started a month after I finished rads - so I have been dealing with this for just a little over a year. It really does suck.
Linda - I don't think I would have done half this crap either. If I had known then, even half of what I know now, chances are I would not had even considered doing rads.. I was sucked in when I had the chance to do the 5 day Mammosite rads which did not work.
0 -
Jo-So sorry about the nerve damage pain. BC sucks! If you like your PS, please message me with details. Good luck going back on the tammo. Fingers crossed that all goes well and that your pain specialist has some good answers for you.
0 -
June - prayers for your mom ... Sorry you have to deal with this! I hope she isn't miserable
0 -
June I had a thought I wonder if when they inserted the balloon for your mammosite has anything to do with this as you seem to hurt right on your scar line. Also is your PS down in the Valley or did they refer you to someone in SA?
0 -
Sherry - That is a thought on the balloon. There really is a big space in there. The catheter is not small by any stretch of the imagination. My PS will be down here in the valley. He is in Mission where I am told they have a great breast center. I did not know that until today.
0 -
Ceeztheday I am almost 2 years from my finish date of rads, so I cannot think it would be from that, who knows. I am waiting to hear back from the nurse as to if they want to see me or not. I hate to jinx myself, but so far so good this morning......knock on wood. fluke, or something more? Why do I always seem to worry about every little thing now? So annoying.
0 -
Seems many of us are having a Tami holiday right now, including me. Newfmama, I am seeing my oncologist in Feb , too. I wonder what his solution will be. I'm also interested in what your suggests for you. It took me two full weeks before I even began to feel better. I just can't spend the next few years suffering that kind of muscle pain and fatigue.
0 -
Well, I am back on the Tamox after a 12 day break. Will see what kind, if any, SEs I have to put up with this time. I do know for sure that the muscle/joint pains are caused by the med.
Jules - I am with you. Don't know if I want to put up with this crap for the next 4 years.
June - We tend to worry about every little thing because that is the nature of this damn beast. It just won't leave us alone. I sure wish it would. I have much better things to do that deal with this crap.
0 -
Well, I have 2 cysts on my remaining ovary (normal "functional" cysts) but the endometrial lining is thickened. Not alarmingly so, but "borderline" and they want to investigate further, so in 2 weeks, I go back for a hysterosonography...basically just like an ultrasound, but this time, the doctor goes up there with a catheter and injects saline to open the uterus and get a better look. He'll go from there whether he wants to just watch it, do a D&C or, God forbid, if he seems something obvious, what to do about that. They are under the assumption it is caused from the Tamox, so I'm hoping that's what it is. We shall see in a few weeks. So, this **** never does seem to end, does it? And have I mentioned how much I dislike these little white pills???!!!!!
0 -
Schipmom - Been there done that with the down stairs crap. Had to have a hysteroscopy and a D&C all because of the little white pills. This year when I go for my annual pap, I am going to insist on a hysterectomy. Don't need the plumbing or better yet, the worry about issues and/or cancer at that end. I am also beginning to wonder if this shit ever ends.
0 -
Jo, after the D&C, are they just monitoring you to see if the lining thickens up again? Would going off the Tamox make it thin out I wonder? I know a D&C is in the cards for me, and I too am wondering if having all the plumbing taken out would be better. I'm a baby...does the D&C hurt??
0 -
I am also now getting on the train. I just finished 3 years of Lupron injections and now starting Tamox. Three years of Lupron was brutal. I am praying the tamox treats me a little better but I get scared reading the issues people are going through. I think I have already had most on the Lupron since that was instant menopause but we will see. I am on day 3.
0 -
ChristlC welcome aboard to this thread. You will meet the best group of ladies here and even though we goof off some bit (Paula being the biggest trouble maker) we all tend to be there for each other when we need it the most. I will tell you in the beginning I had insomnia, headaches and constipation. I would say after about 4 months the SE subsided. I have a whole new list of SE, but is that from the little white pill or just getting older.....
Deb so sorry you have to be going through this BS......really sometimes I wonder does it ever freakin end......I too dislike these little white pills.....hugs to you!
0 -
Thanks June! The Lupron put me in menopause and I had hot flashes, gained about 20 pounds - mostly in my middle, insomnia and the mood swings have been crazy. Once I completed the 3 years my Onc admitted most don't endure the entire 3 years.... but no one mentioned that before. I just thought I was nuts. :-) Anyway, now I am moving to tamox. I am glad I found this group. Goofing off is good............
0 -
Oh no you didnt just go there Ms June!! I'll show you trouble,lol!~
0 -
CristlC - Welcome Aboard the Tammi Train. This is a great group of gals who are very supportive. Don't believe everything June tells you. She is a big trouble maker - she can be a very bad girl - LOL! We all still love her. All joking aside, come her often to vent, scream, whine or just to have a good time. We have been known to have some great virtual parties on Fridays.
0 -
Christi welcome to the train. This is a great group of ladies that are very supportive of not just tamoxifen issues but life issues. so come here any time.
Deb-good luck on your procedure. I had a hysterectomy years ago but kept my ovaries so I don't have the uterus thickening to worry about. Hope you don't have to have a D&C
0 -
I did just go there my little friend Paula....ha ha and Jo uh hum.....me, nooooo you cannot be talking about me, you must have me confused with Tink......LMAO. Love ya gals and you both know it.
Okay so the Nurse called and told me to look out for a rash as with most breast itchiness comes the rash which usually leads to secondary cancer. So lets pray I never get the rash and now I am not just a little worried I am more worried than that. She said that I am too far along to have it be associated from rads. So it is a wait and see......
Mom update. The nurse told my brother who is the health care proxy that it doesn't look good. I am so fed up to here with shit just happening. I really need to drink and it is on Wed and the afternoon to boot......
Love to you all and yes that does mean you Jo Jo and Paula
0 -
June - What are you talking about with the breast itchness?? I itch all the time but no rash yet. Is this something I need to be concerned about? Don't we ever get a break? How long out from rads do you need to be for it not to be associated? So many questions now. Never gave the itchness a second thought.
And yes, I am talking about you girlfriend. You can be just as bad as the rest of us - LOL!
0 -
Oh June its ON!!!! Look out now cause this chic is gonna whack ya early, look out now cause Im coming in, WWWWWHHHHHHHack!!!!!!!!!!! Yes you are a trouble maker, lol! I know it cant be me or Tink cause I know she is to super sweet to ever be as bad as you, lol!
I also have you and your mom in my prayers June. I know how tough this has to be for you. Love ya girlie!
0 -
Jo ~ glad it is just scar tissue there, but sorry it is bothering you so much.
JUNE ~ ugh on the MOM news. So sorry ~ hang in there, you have surely been through more then enough.
Deb ~ hoping all goes well with your next female parts testing. I had to have a uterine biopsy 6 months ago and it came back OK. I am hoping yours is just normal changes as well. We are here for you.
NOW IF I had a workout buddy that looked liked HIM I may hit the gym more often :P
Alicia
0 -
You know what I like about you Jo is you said like the rest of us as Paula would put all the blame on poor innocent me.....and Tink sweet another cough uh hum.....where are you Tink?
Jo I guess Pagets and IBC. She just it was something to watch as being diagnosed with dcis can typically bring this on. Remember after she told me all this, she did tell me not to worry......yeah right! Do you a rash with yours Jo?
0 -
Oh June you musta started early cause you are having issues now, lol cause somehow I just cant seem to put you and innocent together, lol!
0 -
June - I have not had a rash recently. I had a big time rash when I went through rads. It was so bad, I had to stop for a few days to get it cleared up. INNOCENT?? I'm not sure you know what that means girlfriend. As for Tink - WELLLLLL.
Alicia - This whole thing just sucks. I am looking into reconstruction options. I would like to be evened out.
0 -
June and Jo a few months after rads I had a rash and I happen to go the dermatologist. He gave me 1% Kenelog and told me to keep it around because for several years after rads your skin can get irritated very easily and get a rash and be itchy. He gave me several tubs to keep on hand. My rash came and went several times but has not bothered me in quiet a while now. But the itching was on the skin not down in the breast. Don't know if this info helps or not.
On another note. I had read a new study that came out at the San Antonio Breast Cancer Symposium in Dec that the new studies show that Zometa is good for lowering recurrence rates on early stage pre menopausal women. So I asked my onco about it last Friday and he said yes that it is very promising. So he requested approval from my insurance company and they approved it in one day. Some insurance takes up to 7 weeks and some are not approving it yet because the studies are new. I feel like I did not do chemo and I want all the help I can get. It is an IV infusion that I will get every 6 months for three years. There is a thread on here if anyone wants to read about the study. It is called Zometa, News from San Antonio. But basically the thought on it is that the Zometa helps to make your bones extremely strong so if there are any BC cells floating around they will not invade in your bones because your bones are not weak. That is the simple version. Of course it is a biophosonate and there are risk with that as well but my MO already had me on a oral biophosonate for this very reason anyway so I knew what the risk are. Hope someone finds this helpful
0 -
Sherry - Darn it all. The Zometa sounds good but I am several years post menopausal.
My itching felt like it was down in the skin but scratching did help some.
0
