Bottle o Tamoxifen

Does anyone ever have occasional slight tingling in the hands or feet? Perhaps a circulation thing?

ceeztheday I have the same thing going on. I was wondering that myself. 

Ok my sistas, why do I feel like Im more off my rocker now more then I ever was!  Man have my emotions been all over the place lately and its driven me nuts.  I go from weepy to anger as hell at the drop of a hat.  It drives me to the brink sometimes.  I was never like this before all of this.  I know I have always been high strung.  I can in my own mind go 20 thousand miles and hour, but was always able to keep it in check.  Now I cant seem so get ahold of all this emotion and its drivin me nuts. I know I cant go backwards, but I want to be able to live in the moment like I used to and this sucks!!!!  Its like Im having a huge battle within myself and am getting lost.  Does anyone else have this mind game going on since this Tammo taking began?  I just dont want to take yet another pill just to feel like me again. Thanks for listening!

Sorry I have been MIA lately, just trying to spend some quality time with Mom..... 

Ceeztheday I used to get the tingling pin prick feelings in my feet especially after taking a tub in the first few months probably leading up to 6 months and then it subsided.  It did go away on its own.  I feel like that this pill can bring things on and then you find out either how to cope or nip it in the bud to then find out you have something else.  That is why I love these ladies as we have all been through one thing or another and the Doctors seem to think it is all in our heads.  So when in doubt check in often as it really does help and the support is immense.

My Tamox is Nolvadex/Soltamox which I swear before they made me switch to a 3 month supply (which saves me $) I was on another brand.  I have put on a tone of weight for me and when I started this stuff I know I increased my physical activity and lost 20lbs.  Seems kinda strange that all of a sudden last 4 months I have packed on the weight.....I am going to now call the pharmacist and see if they can tell me the name brand I was on before this one.....

Paula please know we are all here for you and so sorry you are having such a hsrd time with this.  I haven't gone through what you are now going through but I have been down in the dumps on many occasions.  I never had chemo so I cannot relate.

Love you all and miss each one of you!!!!

Paula..that has been my biggest complaint and side effect from the Tamoxifen. I even told my therapist that its like I feel like I'm climbing up a hole and every time I get close something Knocks me back down. Up and down up and down all the time. I feel you pain sista.. very frustrating. People will ask how are you... I just smile and say oh good. It does get old putting up a front all the time. So glad you all understand. Hugs

hi girls..  I am having a bit of a freak out.  I go from freaking out to ok all will be fine.  Went last week for my 6 month ct scan of chest (i have nodules)  there was no change, but they found a compression fracture in my spine.  HMM....  I do have some lower back pain and sore tail bone sometimes.  Nothing life altering.  NOW I did take quite a fall in August and am telling myself it was from that.  My leg bone was so messed up 5 days in the hospital, leg surgery pain meds who could know what hurt.  All my markers are good, alkaline phosphates well within normal levels.  So I am hoping this is just some osteoporosis.  I have to have a bone density test this week and an mri of my spine.  So if you can send up some prayers I would really appreciate it.

You are all always in mine !

Hugs ~ 

Jumping in your pockets Alicia!

Thanks girls for understanding.  I have never really felt this was up until this dang BC crap.  I'm just so dang tired of all of it that I wanna do someting bad, lol.  What I mean by that is I wanna scream until my throat hurts kinda thing.  Not freaking out where I wanna cause harm to myself.  I wanted to clarify that before I scare someone.  Hey I know maybe if I could in real life hit June with a pillow, lol  Thanks again girls!

June sounds like days well spent!

Tink thanks girl!

Love to you all!

Going to the pain specialist at 10:45 tomorrow morning.  Nothing exciting.  He put me on a new medication and this is to see if it is working - which it is.  He will need to give me enough pills to get me through until next month when I see my GP.  

Have a great evening everyone! 

Jo- So glad that the pain medicine is working!!!!!!!!!!

Jo ~ good luck with the pain specialist !  I hope the new med works.

Sherry ~ good luck with the zometa.  I hope you have no side effects and can enjoy the visit with your grandkids !

Paula ~ I see a psychiatrist for depression.  I was great all the treatment and then bam, last year out of no where so depressed and just plain old scared of the unknown.  He says it is similar to post traumatic stress disorder.  Do you see anyone?  It really does help and I am on a mild antidepressant that doesn't conteract with the tamoxifen.

I will be wearing big pockets thanks girls !!

I'm always in your pockets and your are always in my prayers ... Even if I don't have time to comment I read your posts every day. You are all always on my mind! We are strong sisters!

Ralston:  I have been back to taking 1/2 pill in the morning and 1/2 in the evening to get my full dose in for the day - haven't had any reactions so I'm sure I will start taking the whole pill in the evening starting soon.  I've always taken mine right at bedtime (not after supper).

Paula  so sorry about your neice and her miscarraige.  And again there is a lot to be said to just talking to someone about how you feel.  I hope you feel better.

MamaV thanks sweetie.

Purl ~ a cancer diagnosis and tamoxifen = emotional issues.  Big hugs.

We have to cry when we need to and laugh when we CAN !

One day at a time is all I can do and sometime it is hour to hour.  With you all on my side I find strength and feel positive.  For that I thank you all ! 

Ralston..I split my dose because that has helped with some side effects



Alicia...many orayers and positive thoughts coming your way hugs



Ceeztheday I will pm you for Facebook



Paula...hugs and love ya



Jo..will be flying by to keep you company tomorrow



All my dear Tammy ladies.....hugs

Sherry, glad you will get to see your grand babies soon! Hope you can get that pain under control so you can enjoy your time with them.



Paula66, I am sooo with you right now. I have finally gotten off most meds, still on tamox, pain pills, and ambien. Just tapered off Effexor and those horrible dreams, jaw jitters, VERY dark thoughts (lots of thinking about dying, mostly about departed loved ones, wondering if I was crazy to want to join them, but not really planning on doing anything about it - very much like you - not ready to hurt myself, but sure as heck not feeling "right in the mind"), painfully cold fingers, and other SEs better, just had a lot of withdrawal symptoms as I was going off. Hard to tell just what is what these days - SEs from tamoxifen, SEs from Effexor, withdrawal SEs.... had a bad week with physical pain and emotional roller coaster. Breaking into tears without any reason. I feel so sorry for DH as he just doesn't know what to do during those times, and I don't know what to tell him, don't know what he can do to help except just hold me during those times.

So we are all here to support each other through this "significant life-changing event." We are here to support each other through SEs that "can be devastating." We are here to support each other because we understand at a level that words just don't even get at. Prayers and love coming your way. May you find a couple moments of grace and/or peace today, tomorrow - and hang in there with the 24 hour (or 1 hour!) rule.



Purl51, yes, emotions can be a roller coaster, it might be the tamoxifen, it might be just having to deal with BC and all the little details (all the appointments, bills, insurance crap, trying to run the house, work, find time for family....). I have been on this for almost 2 years, no end in sight, but each day try to find at least a little "moment of grace" that my retired pastor friend talks to me about.



Alicia, I will be in your pocket!



Jo, glad to hear your new med is helping. I made appointments for a series of acupuncture treatment, start in 2 weeks. Also seeing my BS for maybe going back to PT. Still working with the mindfulness stuff -sometimes it helps, sometimes it doesn't.



MamaV, Odie, archpurple, Ceeztheday, Ralson, Maria., June, Panmars - and all others I missed naming - wishing you a good start to the week. Positive thoughts and prayers for healing and inner peace for all of you.

Paula so sad about the miscarriage. What a rollercoaster for you all!