Bottle o Tamoxifen
Comments
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Oh yes with all that drooling I'll be doing I am sure no food will make it to my mouth!!!!
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I will join in on the pocket parties. Sorry everyone is going through so much. I sure do hate this stuff sometimes , okay make that most times. I have a friend who they just recommended Hospice to for BC so I guess I won't complain too much.
Paula - sorry to hear about your niece. It is hard no matter the age or circumstances.
i sure am glad that all of the food is virtual or I would weigh a whole lot more.
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peg - So very sorry to hear about your friend. Damn BC! The gift that keeps on giving. I am still trying to find the return line. I am tired of playing this game.
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Paula, thanks for the eye candy! I especially like the first one you sent - not complaining, mind you, but some of these guys have been just a little too muscle-bound for my personal taste, kind of like them solid and well-defined, but not bulging. So keep a few of those "lesser" guys for me!
Sorry to hear of so much going on with all of you. I do apologize for missing the pocket parties - I have had a relatively rough week so haven't been here much except to read and try to keep up with you all, so I may not mention each of you individually tonight, but you are each and every one in my heart and prayers. Wishing you moments of grace tonight and tomorrow.
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Welcome CarolAnn & StJude...
Am enjoying the pocket parties and not making a sound as I stuff myself on these wonderful treats. Promise not to leave any evidence...
Tink - I too am 41 and premenopausal and my MO has not mentioned anything beyond the Tamoxifen either. Guess I will play it by ear. Hope the ovary pain is gone...
Paula- I so agree with you. Apeman I could do without, but a touch of chest hair is sexy...
Alicia - Glad it wasnt shingles and hope it clears soon....Sure would be nice if you could catch a break already...
Lynda - Hang in there hon. Hoping things get better every day...
Sending heartfelt hugs to everyone. Sweet dreams (after all that eye candy...lol)
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(((Linda))))
I will make for sure that the man candy is sweet for us all. I was rather cheesed though when I went in search of tattooed guys. I love a man covered in ink! The dissapointment was they had all their clothes on. But I will find me some man candy for sure!
((((Tink))))) I hope you feel better soon.
(((Alicia))) I hope it clears up quickly for you!
Nightie Night all and I hope sleep finds you well!
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Peg so sorry about your friend.
went to the foot doctor today for this fungus on my toes, yuk. Anyway as she is checking my toes and then doing my chart update as it has been 4 years since I last saw her. She tells me the reason I have fungus is because of rads suppressing my immune system. I told her yeah that during rads my WBC was low and that now it has been running about 4.1 which is just barely into normal. She said all the cancer treatments effect the immune system and chemo does really awful things but rads takes a toll on our system as well. She said that if I had not been wearing toe nail polish this last year it probably would have helped but gee no one told me not too. But this all does make sense that I started tamox 2 weeks after rads. Since then I have had 3 vaginal yeast infections and now this toe fungus. Getting a little tired of Se's of some kind. BUT the good news for today is when I got home I had my insurance approval for my BMX. I have been a little worried that my insurance company might deny it and make us jump through hoops. Don't know why as they have approved everything as soon as it has been requested. But at least I have it in writing now.
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pala- you are soooo bad...but is look sso good. Actually saw a chocolate fountain similar to that one in a window in St. John's Newfoundland. Jo, yo uare really going to have to check out your root snow. I will even let you know what street I saw it on!
June- thanks for asking...Sam appeared to be holding up fairly well today. The real challenge will be the months to follow. As you can imagine, she has spent the last 9 months running on adrenelaine...the crash is going to come.
lso, because I love you all...check out this page on women and heart..it is a 3 minute clip ...bit of a spoof really on how women do too much, take care of everyone and don't notice that they are having a heart attack...to be honest, this is pretty much how mine went down last March...except that I called 911, said I thought I was having a heart attack and demanded that they NOt have their lights or siren on as there was an 83 year old woman in the apartment above me and I didn't want to disturb her....oy...anyhow, while it looks like a bit of a comedy, it is pretty identical to my experience so....please check it out so you know what symptoms to recognize. It can happen....especially for those on tamoxifen with a family history of heart issues...
Go Red For Women TM presents: 'Just a Little Heart Attack' http://www.facebook.com/l/AAQFAjdyf/www.youtube.com/watch?v=t7wmPWTnDbE 0 -
Loved it Sandee! Good indication of what my life is like x 6 kids. I am a SAHM but I'm not sure why they call it that because I'm hardly ever home! Do all of those symptoms happen that fast, or do they gradually sneak up on you?
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Was anyone given the choice of Tamox or Femera? Blood test shows I'm in menopause although I had a period in January (and the prior 3 months). Onc is leaving the choice up to me-really? I'm not the one who went to medical school...
Thanks for any input.
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Spunkyboobster, I am in a somewhat similar position w/r/t menopause -- 8 months or so without a period, blood test showed post-menopausal last summer, but I had a light but definite period in January. Current blood test shows post-menopausal, so the oncologist wants to start an aromatase inhibitor. He didn't offer tamox as a choice...
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Sandee thanks for posting that about heart attacks. Funny but got the point across.
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spunkyboobs - I am definitely postmenopausal and have tried two of the AIs with no luck. Too many stomach issues. I have been on Tamoxifen for 13 months now. In a lot of ways, I am glad I had to go that routine. The AIs are a lot harder on the joints and bones. I already have arthritis and I don't need anything making it worse. When you are on the AIs you shoud have annual bone density scans to monitor osteoparosis - with Tamox, they are not needed. The choice is yours and you know your body best. You will make the right decision.
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spunkyboobs and others - the risk of recurrence in a POPULATION of women with breast cancer who take tamoxifen is slightly higher than those who take AIs, so the docs are pushing the AIs more because of the statistics. They still don't know if more than 5 years is better for AIs, but they did find that more than 5 years of tamoxifen does NOT reduce risk of recurrence further. So for premenopausal, tamox is used, for post menopausal, most docs are recommending the AI. There is a LOT of room for adjustments based on SEs. Remember, these numbers came from studying LARGE numbers of women, and there is NO WAY it can be directly applied to an individual case. We are all just kind of gambling here, taking the drugs and hoping we fit into that "normal" curve and don't get recurrence. Many of us could just do nothing and NOT get recurrence, some of us will do everything and still get recurrence. So it's kind of a crap shoot, but until there is better individualized information, the docs are doing the best they can to avoid SEs (if we tell them about them) and reduce our risks. Femara (Letrozole), exemestane (Aromisin) and anastrozole (Arimidex) are 3 relatively commonly used AIs, they work about the same, there may be some differences in SEs between them, but I suspect it is probably individual variation for that. I don't think there is any one of them considered better than the others at this time.
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Thank you all for the helpful information. I get stuck making a decision becasue there doesn't seem to be any certainty whether I am post-menopausal or not.
Chicago 1958-are you doing Lupron injections along with AI?
Thanks!
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Lupron was suggested because I'm concerned about osteoporosis, but I'm still thinking it over while doing radiation. I'll post more back on the Illinois thread...
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Tamoxifen, Al's... I constantly feel like a "lab rat", sorry, but It is how I feel... Before was better to take Tamoxifen 5 years just if you were pre menopausal, now it seems that it is better to take it 2 years and switch to AL's for the next 3 years. So many questions and so much that still is unknown, I totally believe that we are in an "experimental" treatment.
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achpurple...i was exhausted the week before my heart attack..trouble concentrating....the night it happend, I had heart burn ( only had i once before..one week prior)...neck was sore...arm started to heat up...i was walking in a figure 8 in my living room frenetically while dialing 911...and told then to not turn on th esiren because i had an old neighbour whose son had just died...so....to answer your question..other than fatigue..i had them all at once...except the sweating.
Sherry- you are welcome...yeah,...the video was funny...teh exerience was not but it was near identical....
Linda- thanks for the info....lan rat indeed....thikn i will take my chances for awhile. i cannot deal with any more side effects
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Sandee- Thanks for the video clip. I looked it up on YouTube and emailed it to some of my friends and put it on my Facebook page. Very helpful. Almost everyone on my mom's side of the family died of heart attacks, so I am always nervous about that. So glad that you recovered well from your experience!
Paula- Keep those pics coming!! I agree that a little chest hair can be sexy. Hope your crud has subsided and that you are feeling better.
Jo- Thanks for all the snacks and laughs.
Sherry- I too have some fungus under my big toenail. Yuck. What did your doc prescribe? Congrats on getting the insurance approval. Hooray!
Peg- So sorry about your friend. Hugs.0 -
My friend that was just referred to Hospice is in our book club. We are making a DVD where we all do our own little conversations to her about how we met, favorite book club memories and what we love about her. Very hard to record as it felt like we were saying goodbye. I know she will love it though and it will give her young children something to watch latter in life that gives a little snippet of how much their mother was loved. We are hoping she will be around for awhile longer and can continue to do bookclub even if it means we have to skype with her.
I too feel like we are being experimented on. I know that tamox has been around for a long time but it seems like each onc treats differently. I haven't had a period in almost 2 years but my onc has never said anything about drawing hormone levels to check for menopause or switching me to an AI. Which there could be a little bit of consistancy. Not sure they would even believe us if we said we were ahving SEs. They usually just say that must be from something else since it isn't listed as one of the SE.
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peg that is such a beautiful tribute for your friend. You all are so strong to do that. As Im sure it brings so much emotion as you do it. Just like you said that one day her children will be able to see just how there moms life had touched others. Hugs for you peg.
I to feel like a science experiment. I love my onc, but I still wonder sometimes how come one woman has a certain test ran on them while I dont. I know that we are not all cut with the same cookie cutter, but I sometimes wonder? Ya know its just mind boggling how on minute I am healthy and then the next, bam I'm not. Yes I do know Im getting older, but up until the day I had my breast removed, chemo, and tammo, I never felt like I do now. Yea my feet hurt, muscles ached, I was tired alot, but I worked 50+ hours a week and worked most of the men under the table. But with a nights rest I was back and ready for more. Now I feel like an 80 yr old does with pain that some days is a nightmare. Thats the one thing that makes my blood boil that they dont listen or just think we all are the same. Tell that to the couch that has my ass imprinted on it, grrr.
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Cheezetheday-She said Lamasil but when I looked it up on drug interactions it is a major interaction and I would need to be on it for 12 weeks. I have a MO appt this afternoon and getting my first Zometa infusion so I will talk to him about it and see what he says about me taking it. I'll let you know.
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Peg-what a wonderful thing to do for your friend and her family. I can't imagine how difficult it was to make though. Very moving.
I am also confounded by the lack of similarity in treatments and tests. I wonder if some docs request more tests for the $ or if insurance has some bearing.
Have a great weekend everyone!
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Sherry- Thanks for the info. Good luck with the MO appt.
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Peg that is such a beautiful thing to do. I bet she will treasure it. Hugs
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Don't fall off of your chairs. Just checking in to see how everyone is doing? My goodness, didn't realise I've been off since December.
Looks like we have lots of new tammy girls.
So what's new (as I'm to chemo brained to go back over the 1,000's of threads) on the tammy train?
Feeling better these days, but the hot flashes are still a sourse of my misery:(
Jules
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Hey Jules - Glad to see you back. You have been missed.
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Been thinking about you Jules, missed you.
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Jules, glad to see you back - sorry about the hot flashes.
Peg, that is a wonderful project, such a tribute.
It's Friday, had a very long work week, am taking tonight off. Probably crashing in front of the TV with a good glass of merlot. I don't even have the energy for eye candy tonight - lol! Hugs to all of you.
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Jules!!! I think a bunch of us have been off the site lately...perhaps that means life is a bit more 'normal' on the outside? ...'normal'being a relative term...maybe back into our lives a bit more...maybe not as distressed as we were when first diagnozed...but I know that I need to check in every week...that this really is the only place I am talking about cancer...expressing fears when I have them....such a process...and I know as March 21 approaches, I will be on more again because I will be looking for reassurance etc...
peg- what a gorgeous idea!! Hard now but she and her family will appreciate it.
Ceez- glad the video may be of use...my galpal sent it to me after having been here last weekend and having heard my story in detail...it really does describe it well.....just so hard to recognize.
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