Bottle o Tamoxifen
Comments
-
Paula...I'm so sorry to hear about your neice. It is always a great loss. Love and prayers for her your sissy and family xo
0 -
Paula- So sorry to hear about what happened to your niece. Heartbreaking. I will be thinking of her, you, and your family.
0 -
spunkyboobs...not sure what the percentage is but had one after four months on it...blood clot caused a heart attack (mild..no damage to the heart but I have a stent and a handful of pills now...and a heck of a scare at the time. They said it was tamoxifen related and genetics rearing its ugly head....It waslast march just befre I turned 49.
paula6- emotional ups and downs are par for the course...it will pass my friend...it will pass...find something new to get you out of the house, stick kleenex in your pockets and go...if you cry...well....no harm no foul....
Ralston- the manufacturer can make a difference..different binders. try another one and split the dose in hald..half in the am and half in the pm. it helped my emotions....
hey...this is an emotional time for us....anti-estrogen dropping some of us right into menopause, messing with hromones that are already on a ride of their life...fears, lack of control, lack of knowledge for some...ssososoosso hard. Give yourself permission to cry and to get minimum 4 hugs a day...that is for a healthy person so we need MORE HUGS!!
Alicia- i am workig only half time this week and most of it form work so...i am here to jump in your pocket whenever you want!
Jo/sherry- sounds like you need a few ugs too so..coming at you...likely waist height and I am srong so be prepared for a mini-bear hug!
0 -
Paula - I sooo understand as I am so weepy or pissed dependent on the moment. Feel like I am an emotional wreck since starting Tamoxifen and that is not me. But I too don't want to take another pill to counter this one (my warped mind sees it as a personal failure/weakness).... I also am sending heartfelt sympathy for your sister and niece. While the circumstances weren't ideal, I am so sorry about the miscarriage.
Jo - Glad the meds are finally bringing you some relief.
Sherry - Keeping my fingers crossed that you will sail thru the infusion with no SE's and enjoy a wonderful weekend with those precious bundles.
June - Enjoy the moments sweetheart. Can't think of time better spent.
Alicia - I am so sorry. You sure have had a time of it hon. I will be in your pockets and will be praying for you... How is hubby doing?
Cheeztheday - Will PM you my FB info..
Linda - Thanks for the shout out. Hope you had a good Monday (as good as a Monday can be...lol) and a great rest of the week too...
Welcome to all the newbies and hello to anyone I missed. Traveling on business this week so I get to enjoy some hotel living but am glad for the change of pace & distraction. Hugs to all & sweet dreams.
0 -
PAula - June.....sending you some extra loving' ladies...tough times.
0 -
Paula so sorry about your neice. Miscarriage is always hard not matter the circumstances.
I just realized that I have a busy week this week. I went to yoga tonight. Tomorrow I am going to the chiropractor, thursday the accupucturist and Friday the MO. Then off to see my grandbabies. I am taking off work next monday so we can have a long weekend.
0 -
Alicia: Will be in your pocket too!
Paula: So sorry abour your niece. Hugs to you.
I can certainly relate to the emotional issues since starting this journey. I was looking at some pics from a few years ago yesterday and I just started crying. These were before BC, when I was younger, and didn't have to constantly worry about my health. When I wasn't always going to doctors or going for tests. When I didn't have to take little while pills that gave me all kinds of wacky side effects. When I was "normal"! I thought my life was boring back then, but sometimes I just wish I could go back to that "borning" life! I know they say "what doesn't kill you only makes you stronger", and sometimes I believe that and I honestly do feel stronger because I've gotten through this, but other times I feel so weak that I just want to curl up in a ball and sleep until all the doctors appointments, tests, surgeries, aches, pains, hot flashes and everything else goes away! But I know I can't. A DX of BC changes your life forever, and this is my life now, so I just have to live it. But I'm glad that lots of you ladies have the same feelings and I'm not alone in feeling this way...at least I know one thing about me is "normal"!
0 -
Thank you everyone. Hubby is doing good. He is on an oral type of chemo and his platelet count is slowly coming down. It never ends though. All of his scans were CLEAR ! So it is just a strange thing he developed this blood disorder but glad we found it because it causes strokes and heart attack left untreated.
Deb ~ you said it perfectly. I relate to every word.
Hope you all have a good day. I am off to keep busy and CLEAN the house !
0 -
Ok so I just added a Dr appt to my only clear day this week. I took my nail polish off of my toes and I have a fungal infection on two of them. How gross is that. So Wed to the foot doctor.
0 -
Darn toenails! It would be so nice not having to go to the docs all the time. Oh this should give you a good giggle Sherry. I still cant bring myself to do acupuncture, but guess who is getting a new tattoo?
I just want to thank you ladies for your kindness. My mind is in a different frame today and Im doing so much better as far as the emotions go.
0 -
Sherry - WTH!!! Just when you thought you were done for awhile with the appts.
Okay Ladies! I am back from the pain doctor and the news is not good. I may have a pinched nerve in my back that is causing tingling sensations in my right hand. It is the kind of pain you feel when your foot goes to sleep. I have to go Thurs for a MRI of my spine - no contrast. GGRRRR!!!! Never had an MRI before. Then back to the pain doctor on the 14th. When will this crap stop? I am so sick of it.
On a lighter note - Thanks everyone for the pocket party - Tink! You can get out of my pocket now - LOL!
0 -
But I don't want to Jo..... lol.... sorry to hear about the pinched nerve. Will pack up again for your MRI.hugs xo
0 -
Paula you crack me up with your fear of acupuncture. hehe You will have to show us a pic of your new tat.
JO-pinch nerve, grrrrrrrrrrrrrh. I don't find MRI's to be all that bad although some people hate them. My mom is claustrophobic but she actually did pretty good with hers. Call me if you have any questions. I have had several.
0 -
Jo, Paula, Sherry, Alicia.....good grief !!!But 2012 is supposed to be a health clear year for us all....I put in an order months ago!!! Here's hoping the various dr.'s can sort you all out, and help ...so hard to move on when you ar ein pain of one sort or another...hugs
0 -
Sandee - This really sucks. I was so hoping things would finally settle down and I could move on. I am so wanting to have some recon done where my lumpectomy was done. I had quite a chunk taken out. Oh well, time to start the 24 hour rule again!!!
0 -
Deb - I think you wrote exactly what is in my mind! I hate how I look and feel now and long for those carefree boring days!
0 -
I'm new to your group. I just finished my chemo today and start the big T in 3 weeks. My MO said I'd be on the T for anywhere between 2 and 5 yrs. He says it all depends on when I'm completely thru menopause. I always thought it was a 5 yr deal. Has anyone heard of this?
0 -
stjude - Welcome to this group. So glad you found us but sad we had to meet this way.
I have heard of what you are taking about - it is quite common. Some MOs will start you on Tamoxifen for a few years - depending on when you go through menopause. If you do during this time then your MO may switch you to one of the AIs. He may have you do a total of 5 years with a combination of the two or Tamoxifen for 2 years and an AI for another 3 - 5 years. It is realistic that you could be on an antihormonal for up to 10 years by the time all is said and done.
Hope this helps!
0 -
Oh Jo I will have to go on a man hunt for you!!! This way when you go in for the MRI and you want to feel relaxed all you will have to do is close your eyes and picture him. Jumping in your pockets again!.. Look out Tink here I come and I will bring some dude pics for us too drool over too!
0 -
Ready and waiting Paula lol...pocket time
0 -
Hi Ladies,
Newbie CarolAnn here....
I am into my 3rd week on tamox. I am premenopausal and my MO today mentioned shots to remove my monthly cycle. I just had a menstrual cycle this week. Just turned 48 - my Mom went into meno at age 55 and my eldest sister is now 52 and she has not yet started meno. I really do not want to take belly shots every three months for next year or two. Thoughts? I'm open...
Best of Health to all in 2012.0 -
CarolAnn - Welcome to this group of wonderful ladies. Watch out! We do tend to get wild and crazy every now and then. I'm sorry I can not help you with your question. I was post menopausal when my BC journey started. I am sure someone will come along and chime in.
Paula - Girlfriend - you are the best. I hate it that there will be 2 pocket parties for me this week. I love having all you ladies come along. This latest thing is not BC related and it is so wonderful that you ladies would come and be with me anyway..
I have not had an MRI of my kind so not sure what to expect. I will be using Mr Google to do some research. One good thing about this is that I don't have to do constrast dye - I am so scared of IVs.
0 -
Good evening ladies! It's been a VERY long day, 2 doctor appointments and a massage.
Saw the neurologist, she said my exam was better than it was 6 months ago, so there is hope the peripheral neuropathy will eventually resolve, but she says it may take a LONG time. But at least it is better enough I am able to do more with my hands and fingers than I could this time last year.
Saw the BS today. She spent the time I needed talking about the pain - she says it is uncommon, but related to nerves that are trying to heal sending signals to the brain, which the brain interprets as pain because it doesn't know how else to interpret those signals. She said it usually gets better, but takes a LONG time (geez, where have I heard this before? Do these docs have a script memorized??). Her NP had BC and reconstruction, told me that she also had it and it may not be as "uncommon" as the BS says, but she was very encouraging, told me hers resolved after 7-8 years. OK, not so encouraging, but at least got a little info.
Jo, sorry about you having to do the MRI thing. Of all tests and procedures we have had to endure, this one is probably one of the least scary, but very noisy.
Ralston, in answer to your question about the Effexor - yes, it absolutely made me even more depressed than I was before I went on it. Depression is so common with BC and treatment, and I am usually able to acknowledge it and move on, but this was the darkest deepest scariest depression that I had ever had. Needed to get off it. Doing MUCH better - took about 4 weeks from the last dose to feeling better.
Thinking of you all tonight. Welcome to the newbies. Hoping you all get some SLEEP tonight!
0 -
Welcome to the new girls ! I hope your side effects stay to a minimum.
My onc told me at my last visit when I asked why tamoxifen if I am not getting my period anymore? She said I am 44 and would not be in menopause. She said 5 years of tamoxifen and then most likely another 10 on something else ! OH LORD !
Linda ~ you had a long day for sure. Get some sleep you deserve it. Effexor gave me a crippling headache, I stopped after 3 days. It's a shame because I had no appetite and would love to drop a few lbs.
I have 2 pocket parties too JO ! Mri is a bit claustrophobic so if you are take something. I have an mri friday and a bone density test on saturday. ugh ~ but at least I will have some answers hopefully by Monday.
I am thinking tonight will be an ambien night my mind is sooo tired.
Good night my friends.
0 -
Alicia - When I jump in your pocket on Friday for your MRI - I am just going to stay and hang around for Saturday - if that is alright with you. The bone density scan is a quick one. It took the tech longer to get me set up than to do the scan.
0 -
All right ladies...sounds like the 24 hour rule needs to be in full gear....Linda....7-8 years is a lot of 24 hours....so do one at a time. I was 7 or 8 years for those individuals...might be shorter for you...you won't know. That is in the future..we have right now...the present so breathe and remember...you can get through anything for 24 hours....you really can. hugs coming your way
Jo, sorry you too are having such a rough time....sending you hugs and strength my friend.
Carolann, stjude10...welcome to this great thread. I am no longer on tamoxifen (I was only on it 4 months) and am 49 myself....was pre-menopausal when I started but tammi pushed me over the edge into menopause ...a lot of oncologists start you on tammi and then move you to an AI ...others keep you on tammi.See what works for you.
hugs to all....go gently with yourselves....do not get discouraged..we are here
0 -
Ok....while I do not have any BC related appointments (well..not directly anyhow) I have an appointment with a root canal specialist tomorrow am.....then a funeral (same gal who los her mom to breast cancer in December...her dad died last week) and then a chiroptractor apointment...still not convinced the radiation has not affected my teeth and definitely not convinced that the AI did not do some bone stuff....but if anyone is around for a pocket party, i promise to wear my newly tie-dyed favourite shirt with big pockets! I am NOT looking forward to having my teeth tapped....all left side stuff....coincidence???
0 -
Sandee - What a time we are all having with this BC crap. Is there ever an end to all this? Count me in - I will be in your pocket so wear that favoritie tie-dyed shirt. What time are we going? I will bring snacks.
0 -
St Jude and Carol Ann welcome to the train. This is a great bunch of ladies full of support for you any time you need it. Carol Ann I was 48 last year at diag and no where close to menopause and my MO does not have me on lupron shots. He says I will be on tamox for 5 years and then if I have gone through menopause on an AI for 5 years. Not sure if I will make it for he AI's we will have to wait and see.
Wow lots of pocket parties. SAndee I'll be in your pocket tomorrow. Alicia and Jo I'll be there Friday with you and Saturday with Alicia again.
I have a MO appt on Friday with a Zometa treatment. My first one so I'll wear big pockets if anyone wants to join me.
I have been struggling with nausea. Not sure if it is from the tamox or if it is from all the neck pain that I have had. Back to drinking ginger tea. At least I can talk to my MO about it on Friday.
0 -
Looks like I will be busy on Friday - 2 pocket parties. My, all the traveling and hopping around may make me hungry. Got to plan the snacks for that day. Sherry, will be right there with you at the MO appt holding your hand.
0
