Bottle o Tamoxifen
Comments
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I have actually taken the house phone with me in the car instead of my cell. It really doesn;t work once I leave the driveway. I asked the sales guy at AT&T if he had anything in braille. He thought I was joking.
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Linda, I know what you mean about thinking of throwing in the towel. There are times when I feel that tamoxifen has changed my life in quite a few ways. Had such a big impact, physically. But then I always think of my cousin who is close to my age and has had BC twice. Every time she wants to quit meds her dr talks her out of it. He reminds her that almost any side effect is better than a BC again. I hate the terrible joint aches, but I'll take it over BC any day. I think the hard idea to get used to is that BC has made it necessary for us to have to be on these life changing meds. It's just not over after the surgery, though most of the people around me expect it to be. I do try to live a normal life, grateful to be alive, but once in a while this stuff does get me down.
SherryC, will be there with you.
With love, shari0 -
Thanks, Shari & Dianarose. Shari, you are so right that it doesn't end after surgery. So many people continue to ask me how I'm doing, and I just smile and say "hanigin' in there!" and push myself so hard to get my work done so I don't let students or colleagues down. Have started thinking about not renewing my contract next year, but it is very scary both financially & personal identity issues. And yet, I am so wanting time to "just piddle" and not have stresses hanging over my head.
Paula, I was just thinking that some surgeons will do a hysterectomy without having much objection, with minimal disease present, but I guess removing breasts to prevent BC seems more threatening because you can see the results, whereas with other surgeries you don't. And of course, you can get breast augmentation or breast reduction for appearnace, and to relieve back pain, but why should it be different if you want a little more tissue removed to prevent BC??? I actually asked my BS if she would consider BMX after my first diagnosis - to prevent recurrence - she said she didn't think it would be necessary, I had chemo and had NED on PET, so she just gave me false reassurance - recurrence hit me 4 months after that visit. You have to do what you know in your heart and your own body what you think is right - just finding the health care provider to listen and help can be a challenge.
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Linda... so sorry.. if it isnt one thing its another. We are all trying to fight and do what we can to survive this beast and it seems what we take to make us better makes so many other things happen... its so frustrating... hugs... thanks for the info on the neti pot
Im gonna vent abit...went back to docs today aas I had blood just pouring out of my nose and drainage this a.m. She is sending me to an ENT i go Thurs. Also mentioned I was occasionally short of breath have been off asthma meds for over 2 years now... well she did a lung function test and it was down to 67% which obviously is not good.. did a neb treatment was better so BAACK on asthma meds... i feel so done and so tired of not feeling " good".. anyway living on sudafed to keep the bloody drainage under control... we will see what Mr ENT says 10:00 appt if anyone would like to come even though it is unrelated to this bc stuff... would love some pocket pals!!!! xoxo
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Linda I know what you mean. My younger sissy had 1st go round with BC when she was in her early 30's. Her doctor wouldn't take her other breast. He said there was no way he would do it. Well she went thru with surgery, chemo, and 2 years later, cancer in the other breast. I was just so heartbroken for her to have to go thru chemo all over again. Plus her MO scared the crap outa her, (I still to this day am furious about it). I know I read several articles that say woman here in the midwest are more likely to have their breasts removed unlike the women on each side of the coasts. I started to doubt them after reading story after story about woman who weren't really given the whole picture. I understand that there are woman who live long times with just one breast, heck my granny was one of them, along with my auntie. But it just seems as if it has gotten more aggresive as time goes on. I also know that its a harsh reminder daily of what once was, but in the grand sceme of it, I have much more peace of mind knowing that I don't have to live with ticking time bombs on my chest.
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Sherry// thinking of you and hoping your PS appt went well
Hugs to all you wonderful ladies
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Tink - I will certainly be with you on Thursday. It does not matter if it is bc related or not. Just be sure to have lots of pockets and if it does get too crowded, I will hop on your shoulder. I hope you get some answers and relief real soon.
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Packet party sounds like it is needed for Tink. As Jo said doesn't matter if bc related or not.
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Paula/Lynda - I sooo agree with you ladies. And I consider myself very lucky to have a wonderfully supportive BS who never once questioned my choice to go BMX. I had cancer on one side and an area of concern on the other. No way did I want to do this twice if I could avoid it. It is bad enough to have to make such decisions but to have to fight to find a medical provider to listen & support your decision is ridiculous. And like Tink, I have never regretted my decision.
Edited to include that I would consider it an honor to attend the pocket party Tink. I'll even bring snacks...
Dx: 6/27/2011, IDC, <1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Of course I will be there with bells on Tink!!!!!!
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I'll be in your pocket Tink!
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I think it is wonderful -- pocket parties - I would like to be part of this also -- thinking of you Tink.
I wish I knew about them earlier -- no doubt I will be having some myself.
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((((Tink))) Count me in.
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Thanks all for the pocket party you guys were pretty well behaved but there was some giggling going on in there. Tink I'll be in your pocket Thursday. Sure hope they can figure out what is causing this and get it fixed.
So my appt went well got all my instructions for pre and post op. I get to start my tammi holiday next Monday and they want me off of it for 1 month, yipeeeeeeeeeeee!!! They also sent me for my bloodwork and EKG and then I realized they were able to do all my pre registration for the hospital so I don't have to go back and deal with any of that. Just a little paperwork the morning off.
Linda hope you can make a decision about your contract. I would love to work part time then I could still be busy working but have plenty of play time as well. Oh well can't do that with my job.
MX is a personal decision and I don't think any Dr has the right to make it for you. Even if someone wants to do a MX and the Dr really does not think it necessary they should just support the decision. I feel so much better about making this decision. With all the other stuff going on in my so called good breast. It will be such a relief to not worry about it and get screened every time I turn around. I am looking at this as another chapter in my BC book that is getting close to the end. One of these days I'll be able to write that last page, but till then it will be another adventurous chapter.0 -
Tink, I will be there for you tomorrow!
Sherry, glad your appt went well. Nice to have one that is not horrible or super-stressful once in a while!
I talked to HR today - will renew my FMLA and I will actually TAKE some time off this time! (It was originally a floating arrangement, so I could take time off if/when I needed, but I don't do so well with that - I just keep plugging on). Will try to hang on for 9 more weeks until semester is done, then can keep my position for me in case the summer gives me enough time to recuperate. If not, I can still use FMLA and then long-term disability would kick in after 3 months. This is a big load off my mind financially, but not professionally. I guess I need to work on a new identity that does not involve my professional life.
It's a beautiful day here, we are on spring break, and I need to get back to grading papers since I have these days to catch up! Hugs everyone!
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Linda glad you got that worked out with HR. What a relief for you
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Just got news on my sick pool days. When I went to work here three years ago I decided to participate in the sick pool. So glad I did, I can only request time once every 12 months. So far I have been able to keep up with every thing with my sick and vacation times. Anyway I requested 45 days which I thought would get me through everything this year because I will still be accruing sick and vacation time along the way. Anyway they decided to give me an additional 5 days. So now I have 400 hours that I can use. What a relief to not worry about that.
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Sherry - so glad your appointment went well. I know it must be exciting to finally get things moving forward! Nice about the sick time so you won't have to worry!
Tink - so sorry to hear about your sinuses getting worse, but glad you're going to the ENT. I'm still fighting something - I believe it has left my sinuses (finally!) and is moving down to my chest. And I think it's all viral! Longest damn time I've ever been sick - it has worn me out. And now here comes the pollen!
Diana - oh yes! I've taken the house phone with me in the car, too. Didn't notice it until I was backing up, but I just took it on with me. Chabba - I've noticed the phone won't change the channels, either LOL!
sgreenarch - "I think the hard idea to get used to is that BC has made it necessary for us to have to be on these life changing meds." You got that so right! As much as I dislike taking Tamoxifen, the warning I have heard is that if it comes back, it's likely to show up elsewhere and be Stage IV. Chilling enough to keep me in line!
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Sherry that is fantastic news!
Tink honey I hope you are feeling better.
I have had my own dilemma this last week. I still have my ulcers and called my gastro who prescribed me a pill to take 4 times a day to coat my stomach. Well I was only taking 2 pills, morning and night and after the whole time I was on it (5days) I felt like I was getting a cold and it hurt my throat to swallow. Long story short I stopped the pills yesterday morning as nigh-time was the worst. My throat was closing up and I couldn't breath. I looked in my throat and my tongue is huge on the right side. So I call my gastro and he tells me he has never heard of any such reaction to the medication and that I need to be seen immediately. I couldn't arrange an appointment with my primary and I have an appointment with my MO on Monday. I think I am just gonna sit this thing out. Night-time worries me the most as it is kinda scary not being able to breath, but I am so TIRED of Doctors and how they never hear of any such thing. The freaking SE listed are under severe throat and tongue reaction but yet you never heard of any such thing and pass me on to the next Doc to figure out what you should be able to do......SO needless to say I am quite bitchy but gonna wait it out. ARGH!!!!!
Let hope Thursday turns out better......love ya ladies
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JUne-yuk, take care of yourself. Not being able to breath and SE are not good.
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June - So sorry to hear you are having the stomach issues and think you have every right to be bitchy! Why is it that doctors deny SE's even on the most obvious ones? Take care of yourself hon!
Lynda & Sherry - Glad you ladies got the time off worked out so you can just focus on taking care of yourselves for awhile.
heartnsoul76 - I totally agree with you as I am not crazy about the Tamoxifen & side effects either but it sure as hell beats the alternative. You verbalized my deepest fears exactly in the one sentence.
Tink - Will be with you for the ENT visit tomorrow and will try to keep the giggles to a minimum....
Happy Thursday to all my other Tammy friends!
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June - What a bummer! I often ask the same question - don't these doctors read all the side effects? Why is it we find more information than they do? You have every right to be bitchy right now. Hope you get some answers and relief real soon.
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Ok so last nights sleep was a tad better but I am taking Benedryl even though I know I am not supposed to . I need some of this swelling to go down as when morning comes I want to be there for my kids. Pretty sad that I am actually worried about that and if someone just looked at me they would have put me on a steroid and call it a day......anyway a little less bitchy and ready for some fun today soooooooor ready Tink for that pocket party and I will try to refrain from giggling.....Where are the pic's of the eye candy Paula?
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June - wouldn't worry about a couple of Benadry. Know my MO said that if I had allergic reaction to take the Benadryl (anaphylactic) - wouldn't have to worry about Tamox not working if I was already dead! A couple in big picture not that important, if have seasonal allergies, take something else. Be careful when Benadryl wears off, it often just controls symptoms and does not stop reaction, can need steroids for that.
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Junie, here is the eyecandy for our Tink!! But something makes me wonder if you need it just as much as she does. All that med junk, yucky, hugs for ya girlie!

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Paula I knew you would come through, now only if I could get our dear friend Tink to share as I really do hate sloppy seconds......
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Paula - OMG! You find the best eye candy.
June - We don't have to tell Tink. I can will share with you.
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You don't have to tell Tink ..but Think already knows haha.. oh junie I will share. So sorry to hear about your reaction and hope you are doing better today... I'm going all out and he is all yours.!
Thank you all for the pocket party today...its amazing when I'm not in the pocket how well behaved you all are lol...hmmmm. anyway..ENT changed my antibiotics AGAIN..put me on a nasal steroid and I have to go tomorrow at 230 for a CT scan if sinuses to make sure there are no polyps or blockages.. so hoping to have answers soon. Thanks to all you wonderful ladies for being there with me...it was a great comfort xoxi0 -
Jo I love you and you always manage to crack me up.....
Tink it sounds like another pocket party for tomorrow too......yipee and along with all those parties comes the eye candy.
Gorgeous day here in Mass and I couldn't be happier
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Tink rats about the CT but we will just have another party tomorrow, yipeeeeeeeeee
JUne hope your feeling better girlfriend.
One of my girlfriends that is quiet younger than me and has an eye for fashion cleaned out her closet and gave me a bag full of clothes. Almost everything fits and looks so cute. She never wears anything out. Feel like I went to the mall last night but I did not have to spend any money. Woohoooooooooooo0