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Bottle o Tamoxifen

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Comments

  • Galsal
    Galsal Posts: 754
    edited April 2012

    sure thing Tink...it's a day of no appts for me then.  will se OT for a regular LE therapy appt on Tues and Gyn on Thurs.

  • chabba
    chabba Posts: 3,600
    edited April 2012
    Tink, since the only thing I normally schedule on the day after tax deadline is to finish our taxes I can get away Wed. Wink 
  • jo1955
    jo1955 Posts: 7,545
    edited April 2012

    Tink - I can be there in spirit.  Can't come to your pocket party but will be thinking about you.  I am having recon surgery that day.

  • chabba
    chabba Posts: 3,600
    edited April 2012

    Jo maybe tink can lend me a spare se of wings so I can pop over to be with you too.

  • June2268
    June2268 Posts: 926
    edited April 2012

    Jo and Tink I think we all need to be with both of you ladies......

    Jo I do wanna wish you luck as I will be in Florida.  I will check with Tink so she can let me know how you made out....

    Love ya ladies

  • Galsal
    Galsal Posts: 754
    edited April 2012

    oh busy day that day!

  • Paula66
    Paula66 Posts: 1,572
    edited April 2012

    Will be there with bells on Tink!!!!!  I will behve for sure since Junie won't be there getting me in trouble, lol!

     Sherry I completely agree with you on the Tammo issue.  I think that sometimes you have to look at the whole thing to really get a good look at it.  Like you said there has to be some quality of life and hey you tried it and its just not working well.  I just dont think that they get it sometimes that why o why would we want to feel like this forever.  I do get concerned that the SE that I have with this will follow me until I draw my last breath.  That really bothers me too.  

  • Sherryc
    Sherryc Posts: 4,503
    edited April 2012

    JO I think we will just all clone ourselves on Wed and then we can be with you and Tink and hey anyone else gets a Wed appt we will just clone another set for them too.  I wonder how cloned wings work.  Will they behave??????

  • jo1955
    jo1955 Posts: 7,545
    edited April 2012

    Sherry - They are Tink's wings - of course they are not going to behave.  I am hoping Paula will send me some eye candy Tues night so I will have that to look at when I go to the hospital.

  • odie16
    odie16 Posts: 1,415
    edited April 2012
    Tink & Jo - I will be there for your pocket parties Wednesday and will try to keep the giggling down. Tongue out
  • June2268
    June2268 Posts: 926
    edited April 2012

    Just cause I will be in Florida does not excuse me from a party.......so Tink please fly and get me hun!

  • tinkertude
    tinkertude Posts: 1,998
    edited April 2012

    Junie...of course I will be there to get you!

    thanks Ladies!! youall are the best

    Jo... when I am done with my appt... ill fly on over to be with you !!! save me my spot on your shoulder!!!1 hugs!!!

    ok im going to vent now...

    I just got back from a few days away at the beach one of my fav places to be. We thought going away for few days during spring break would be good for us. We have never done that before and the last few have been rough. Last yr my DD was in the hospital the yr before all the failed biopsys trying to get an answer. I was so excited and did have a good time I just cany seem to get that knot out of my stomach or stop feeling like I am on the verge of tears. I shouldnt be complainign for goodness sake I was just at the beach I know but I just never got into that happy place where it used to take me! so frustrating... i so want to feel that peaceful feeling again.... ok im done.... thanks for listening to me whine!!!!

  • jo1955
    jo1955 Posts: 7,545
    edited April 2012

    Tink - Since I am going to be in the hosp overnight - you get a special place on my pillow.

    You are not whining and yes, it is allowed here. This is a real concern for you and this is the place to come to.  We understand.  We get it.  There is something going on that is making you so sad.  It could be the Tammy.  Have you tried stopping it for a couple of weeks and see if feel better.  Tammy takes months to get completely out of your system so don't worry about not being protected.  If this has been going on for awhile, I would make an appt with my MO.  You shouldn't have to live like this.  (((HUGS))) 

  • Paula66
    Paula66 Posts: 1,572
    edited April 2012

    You are not whining my sista!!  You have every right to your feelings.  I know just how you feel.  I have days that I feel like I'm on top of the world.  Other days I have were I am just like you.  I put on a face and just don't let others know the real truth.  Thats why I love coming here to you gals, you get it.  (((((((Tink))))))  I don't know if your like me or not.  I just don't let my family know the real truth that goes on in my mind.  Hang in there my sista!!

  • Paula66
    Paula66 Posts: 1,572
    edited April 2012

    Oh and my daughter made it back from Alaska!!!  Yahoo!!!!  I am so happy that she came home.  She picked the best burger joint on earth to eat supper at, yummy!!!!  They don't do frilly things to burgers, just the way they cook them makes them so yummy!  I am so super stoke that she is home.  I just hated the way her life was and she finally woke up to see that!  It means no vaca this year for us, but I will gladly give up a vaca just for her to have been able to come home. 

  • jo1955
    jo1955 Posts: 7,545
    edited April 2012

    Paula - So glad your DD has come home.  I bet you are so thrilled.  

  • June2268
    June2268 Posts: 926
    edited April 2012

    Tink we all  need to whine every once and a while and god only knows that you have had your share of BS going on........love you and hang in there.

    Paula I am so thrilled for you that your gilr is back home......party hardy girlfriend.....

  • Sherryc
    Sherryc Posts: 4,503
    edited April 2012

    Tink whine all you want.  But I am with Jo that it is probably the tammi making you feel this way and maybe you need a break from it.  I know my break has made me feel so much better

    Paula so happy your daughter is home.  You can have a staycation this your with her.

    So still contemplating not going back on tammi so I decided to google cancermath and check it out.  It says that taking tammi is only going to give me 6 more months to live over not taking it.  Now I know this is just some calculation and I do not know how reliable it is but I printed it out and am taking it with me to my next MO appt.  I don't see how 4 years of misery is worth living 6 more months.  My MO is a research fanatic so I'm sure he will have numbers for us to discuss.

  • jo1955
    jo1955 Posts: 7,545
    edited April 2012

    Sherry - I have also done those calculations so I would be interested in just how accurate they are.  MOs do like to push the cancer meds but I would hope they would also look at the quality of life issues too.  You have done way more than is expected to protect yourself from this happening in the future.  We do all we can and then pray for the best.  This is all one big crap shoot.  From what you are telling us and from the weekend we spent together, I have to vote on the saime side as your DH - don't go back on it.

  • tinkertude
    tinkertude Posts: 1,998
    edited April 2012

    Thank you lADIES.I knew you all would get it!!!!... Yes I think it is the Tamoxifen too. I was not like this before. I am going to check out that cancer math site... thanks Sherry!

    Jo... i promise not to take up too much room on your pillow and no WHACKS until you are all healed up.... so here is one last whaaaaaaaccckkkkk until then :) couldnt resist!!!!!!

    you all are the best! thanks for always being there! dont know what I would do without you all

    Junie.... have a great vacation. Ill txt ya when I hear about Jo! :)

  • Sherryc
    Sherryc Posts: 4,503
    edited April 2012

    Jo thanks for being so supportive, I know I can count on you.

    And all you other ladies I love you all too what would I do without all of you. 

  • Linda-n3
    Linda-n3 Posts: 1,713
    edited April 2012

    Sherry, I want to weigh in on the tamoxifen issue.  The one thing to remember is that if you go off it now, IF you have a recurrence, and IF it is ER+, you can always start back on the tamoxifen THEN.  I took it for nearly 2 months last year, could not tolerate it, went off.  Had recurrence, started back on it because the MO said it was not considered "failed treatment" and my tumor was still ER+.  Took it again, still felt like crap (can I use that word on here?) and decided quality of life is more important than quantity and taking 4 other meds to combat SEs of tamoxifen, and then having MAJOR SEs from those drugs was just not worth it to me.  MO not real happy about it, but DH is very supportive.

    BUSY week this week - last week of classes!  One more week and I will be DONE and will check in more regularly.  In the meantime, will be thinking of all of you wonderful ladies, hoping all the appointments, planning, treatments, and other life stuff goes well for you.

  • odie16
    odie16 Posts: 1,415
    edited April 2012

    Hey ladies! Had to chime in on the Tammy issue. I agree that QOL is so much more important and you should do whatever you are comfortable with. Tink, sweetie I am soo sorry that you were not able to get the peace & joy from your beach trip. That is just so wrong!!!  Sitting on the beach listening to the waves has always brought me an inner peace like none other so I can appreciate what you are saying. Sending huge hugs!!! 

    As for me, I will be seeing my PS Friday afternoon for what he has indicated will likely be my last visit.... While I am happy to be done with that part of my journey, it is kinda scary to be left to my own....lol 

  • jo1955
    jo1955 Posts: 7,545
    edited April 2012

    Tink - Okay!  You just had to start it didn't you?  WWHHAACCKKKKKKKKKK!!!

    Sherry - We all know we have to take care of ourselves.  After all we have been through all we want is to feel good and be able to move beyond the cancer and live our lives to the fullest.  When you see your MO, go in knowing that he is not going to like your decision to go off Tammy and stick by your guns.  

  • slgarcia05
    slgarcia05 Posts: 154
    edited April 2012

    Hi Ladies.  I just found out on April 10 that I am in remission!  I started Tamoxifen today and am really nervous about taking it for the next 5 years.  Can you please tell me what I can expect?  Thank you so much in advance!

  • jo1955
    jo1955 Posts: 7,545
    edited April 2012

    Tomorrow morning is the big day for me - LD flap recon surgery on the left side.  I won't know what time I have to be at the hospital until late this afternoon.  I will be away for a few days.  Have to be in the hospital overnight so should be home on Thursday.  Scared shitless about getting an IV.  Had a very bad experience many years ago and just can't let it go.  Was in a military hospital with an ectopic pregnancy.  First IV ever was put in in the ER.  Three days later it had to be removed and restarted.  WITH NO BREAKS, it took 5 people and 20 tries to get it back in.  Back in those days, enlisted did not tell officers what to do or how to do their job.  I just freak out at the thought of it. Also, when I had my lumpectomy, I was put out with the gas before the IV - no problem there. Just needing some support and encouragement today.

  • tinkertude
    tinkertude Posts: 1,998
    edited April 2012

    Jo.....great big hugs!!!!! Will be there right by your side!!!! Hoping they will allow you to start the IV after they put you out!!! you are going to great girl!. i prommise ill behave and wont take up too much room on your pillow!.... ohhhhh have to get in just one last little whaaaaack!.... until your all healed that is! love ya!

  • Joanne_53
    Joanne_53 Posts: 714
    edited April 2012

    Jo, I can totally understand your being nervous and apprehensive about the IV -- if they "accomodated" you for your lumpectomy, maybe you could ask if they could put your under first again and then start the IV.

    I am thinking of you and wishing and praying for wonderful results.

    Joanne

  • Paula66
    Paula66 Posts: 1,572
    edited April 2012

    Jo hugs for you girl.  I will be there with bells on.  Wouldn't miss this party for sure!!  When I get home I will look around for your boy toy so you can have some sweet dreams. You are gonna do good!!

  • jo1955
    jo1955 Posts: 7,545
    edited April 2012

    Joanne - I can be convincing - but this is a different doctor and different hospital. I am going to give it a try.

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