Bottle o Tamoxifen
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Help - Uterine Biopsy Anyone?
Hello,
I was going through the posts to see if anyone is experiencing what I am experiencing.
I have been on tamox for 5 months without any problems-- got my period in January and it was the usual 7 days. This month was different though. it was heavy the first 3 days with small clots, tapered off as if it was ending but has not ended yet. Nothingreally heavy but enough for me to use a thin pad. This is day number 13.
Went to my GYN who did a biopsy and scared me. Said that uterine ca is always a possibility when you are on tamoxifen. Said she could not get the regular catherer in the uterus as something is blocking it. She said she is concerned. She then used the smallest cathether and not sure if she got enough for a decent biopsy. I wasn't concerned until she said that. Now I am playing the waiting game and find myself feeling sad and I do not want to feel this way.
Hope you ladies can shed some light for me.
Thanks
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Hi Warriors,
Did not really introduced myself properly with my post above. I guess I was too anxious. I see some old familiar warriors from my Chemogroup. I can certainly relate to many of the stories. Hoping someone can tell me about their endo/uterine biopsy experience. More importantly, did anyone experience a two week period while on tamoxifen, etc.?
Have a good day.
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Welcome Allenan! I'm so sorry we have to meet this way. I have been blessed with no period since last Feb, so I can't help you there. I'm sure though that someone here can. I know that its nerve racking to say the least when a doctor starts talking like that. I remember when I had a baseline exam before I started Tammo the gyno scared the crap right outa me. Here I just got done doing chemo for breast cancer and now she was scaring the crap outa me more. I understand they want to keep you in the loop, but sometimes they need to maybe handle it in a more delicate manner. Anys sorry for the rant really just wanted to welcome you, the gals here are great, so post away. Anything at all, we are a silly grouop at times but will get down to bussiness when needed.
Well all my daughter is coming home for good! Yahoo!!!! Its not the happiest time for her, and my heart breaks for her, but I am on cloud nine. Her bro is even mor excited then me. He was all smiles for her when she told him. He doesn't know the whole story, and thats up to her to tell him in her time, not mine. So this time next week my home will be happier again. I know I'm one of the weird ones who would let my kids live with me forever, but thats just the way I was raised.
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Thanks for the warm welcome Paula. I do remember your trademark signature "Fight like a Girl". My brain is so fuzzy and my dreams vivid. I thought I was in the minority but after reading the post, I think I have found a place to call home here on this board.
My kids are young but I am sure I would let them live with me as long as possible. May your home be blessed. Nothing wrong with enjoying your children.
Hope someone else can help me out with this prolonged period. As I write, it seems to be ending. At least I hope so. The thing is I feel great otherwise. I hate the waiting.
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mumito - I had an endometrial biopsy years ago, before Tamoxifen and breast cancer. So I can't really answer your question except to say, yes I've had one but not since I've been on Tamoxifen. When I saw her last fall, my gyn wasn't concerned about my chances of Tamoxifen causing cancer of the uterus, but she did say the same thing yours did - if I have any bleeding she would probably want to do a biopsy. So I suppose that is the standand procedure. I hope everything goes well!
Allenan - I'm sorry I can't answer your question, either, except to say when I was at my gyn's last fall, she said she had a hard time getting a sample and had to use a smaller instrument because the Tamoxifen can cause the opening of the cervix to restrict and she wasn't sure she was able to get enough for a sample (she did). Sounds very similar to what yours said. I hope that's what she was talking about. Waiting is the worse! I hope you get good results, too!
Paula - I KNOW how happy you are to have your daughter coming home! I'm happy for you! I'd love for my son to stay here, haha, I'm weird like that too! In fact, I tell him when he graduates he should just finish the room over the garage and he could have his own little apartment up there and when he has kids, I'll move in there and he can have the house. BUT, that's my own little dream. He's got big plans and they don't involve Atlanta. So when the time comes, I'll just have to suck it up and let him go and be happy for him. I'm sure you know what I mean because you already had to do that when your daughter left. I'm divorced and he's my only child, so it will take every fiber of my being not to follow him wherever he goes, but a kid's gotta fly! I saw the prettiest saying about that somewhere - There are only two lasting bequests we can give our children; one is roots, the other wings.
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Allenan.. welcome sorry we had to meet like this but these ladies are awesome. I had some irregular periods and went for an ultrasound in Nov. They said there was thickening on the upper limits of normal prob due to the TAM. My GYN told me to call her if I have any in between bleeding that is NOT a period and she will redo ultrasound and do a biopsy. She said any kind of unusual bleeding while on Tamoxifen should be checked out. Good luck and keep is posted
Paula.. so glad your daughter is coming home. Im sorry that it is not under the circumstances maybe she was hoping for . I understand I like my kids close to. They are still teens and there are days not so much lol... but yes on a whole i understand. hugs and hope she is ok!!!!!
Junie... glad we could get back on I was going through withdrawals!!!!
wings are ready for the next pocket party!!!!!
Hugs to you all!
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Paula so glad your daughter is coming home. I know how much you have missed her.
Allenan welcome but I'm afraid I can't help you or mumito as I no longer have a uterus. Hopefully someone can help you guys out.
Drove for the first time today and it was too soon. I have overdone it and am exhausted. DH is working late and I am watching movies tonight. Don't think I"ll get out of the recliner.
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Oh gosh, Sherry. So sorry you are hurting. It is so hard to really know when we are ready to do more. Glad you can take it easy tonight. We just don't realize how much we use our chest muscles to do seemingly easy things like driving.
We learn in yoga to really listen to what our body is telling us and then not to go past that point. It was a very helpful lesson for me to follow during my recovery. Get some rest.
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1openheart I can't wait to get back to my yoga practice. I do pretty good about listening to my body. At least I knew when to stop.
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Sherry - So sorry you not feeling well. At least you can take it easy tonight. We so want to get back to our routines we tend to forget just how much we use our upper bodies. Baby sets my friend.
Can I get a pocket party tomorrow afternoon? I have to see my PS to sign all the consent forms and get my pre admit stuff. I am so excited about the surgery next Wed but nervous at the same time. Almost forgot you let everyone know the appt is at 1:30.
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Jumpimg in the pockets Jo!!!! Will be there with bells on. You go girl!
Lynn I know what you mean about your son leaving. When my daughter moved it was right after my 1st chemo and I was a mess already from that. I didn't want her to leave at all. It was so emotional. She came home for a visit around Thanksgiving and then went back. We tried our hardest to get her to stay but she wanted to go back. I told my son that he can never leave home because I don't think I could take another heartbreak like that.
Sherry do sorry your not feeling good. Just as Jo says baby steps. I know how hard that must be because you are a go getter. You will get there for sure.
Have a great night girls. Junie have missed you, even on international pillow day too, lol!
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Jo... of course will be there tomorrow! with bells on... I mean wings! hugs!!!!!
Sherry... rest up I hope you are feeling better tomorrow..... gentle hugs for you!!!!
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I'll be there, Jo. Everything will go great, don't you worry!
Sherry...I am really enjoying getting back to a regular practice. It is good for body and soul!
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Allenan & Mumito,
I have been on Tamoxifen now for 5 months and have yet to miss a period. I was told to call the doctor with any unusual bleeding (i.e. - too long or heavy) ...... Really bummed I get the menopause SE's and the monthly curse...
Allenan - Will pray for good results for you.
Sherry - So sorry you are sore tonight and am glad you can curl up & relax with a good movie in the recliner tonight. Feel better soon.
Jo - Count me in for the pocket party... Understand the anxiety and know you are eager to get thru this.
Paula - I am sorry your daughter is coming home under unhappy circumstances but am glad she has you there for her.
Wishing all my Tammy sisters sweet dreams (medicated or not ....lol)
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Tink - I have your place on my shoulder reserved. You ladies please try and behave - if you can. LOL! I am so ready to get this over with. Once more week.
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Well, I went for the ultrasound today and those nasty cysts are still there, BUT they are smaller, so I guess that's a step in the right direction. They want to do another ultrasound in 2 months and then if they are still there, I will probably have to have them removed. I doubt they will be completely gone by June as I know they usually only disappear when you have a period and I haven't had one of those since December, but I'm hoping they will at least shrink a little more by then so maybe I won't have to have surgery. I am so sick of surgeries, tests and being poked and prodded!!! So, we shall see what happens in 2 months.
Thank you for all being in my pocket today. I think I'll go eat the rest of the brownies that are left over from the party now
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Odie I got my period regualry for the 1st 12-14 months and only this past year was the 1st time at missing 3-4 months at a time and then getting it for a few days to only repeat itself. So there is still hope.
Pocket party was a blast for both Jo and Deb and I was surprised at how much Tink behaved herself.
Deb praying that all will be fine in 2 months. I hear ya on the sick and tired of being poked and prodded. I get to tell my embarrassing stomach issued with a team tomorrow. So pocket party again tomorrow gals. Oh and Paula, eye candy please.....
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June,
I'm in for the pocket party tomorrow. I just ate the rest of the brownies, but I'll make more!!!
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Thanks for the pocket party ladies. I agree June - Tink was well behaved - for once - LOL!
I still can't believe this PS of mine. Most doctors you go and wait and wait and.... Well, my appt was at 1:30 today and I was in a room and saw him at 1:30. It has been this way everytime I go. I am not complaining here, I am just amazed. Okay! On to other things. I have to go to the hospital on Friday to be preadmitted and get labs done. They will let me know what time to be there on Wed. The nurse told me I was scheduled for 8:00 in the morning so I will have to be up before the chickens. I will be discharged on Thurs. I will be there for a 23 hour observation - whatever the hell that means. The only medication/supplement I have to stop now is my Fish Oil. I can take everything else up to the day of surgery. So looking forward to getting this over with.
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Hi Jo...glad it went well today. I tried to be real still in your pocket. My PS is also very prompt. It is nice for a change. June, I'm still in for tomorrow! Good luck.
I had good news this morning. I expected my MRI to be fine, but it was really good to hear it from my doc's nurse and have that behind me. Almost 1 year under my belt. So, my gyn. annual exam is up next week.
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Two years ago this week I found my lump. It would kind of come and go so it was a couple of weeks before I decided I better see a Dr. and find out if it was real. May 25 was date of Dx.
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Ladies - count me in for all the pocket parties! I'm always up for a party and treats! That's the least we can do to reward ourselves for all these doctor's appointments. Jo, I know you'll be glad to have your surgery over with and you're almost there. Glad you like your PS so much! And June I know you're looking forward to getting some answers, so I hope they give you some.
So I guess all that's missing is some eye candy then our party will be complete? hint, hint, Paula! You do find the best-looking guys!
Glad everyone had good test results - we just keep on moving forward.
I'm going to the doctor Friday to finally try to get some relief from feeling depressed and the weird, occasional foot pain so I'm trying Jo's recommendations. I already mentioned it to my doctor, plus I have fibromyalgia so I think it might help that, too. I try so hard to keep the medicine count down, but sometimes you just have to give in and let it help you, then maybe you can taper off. I don't know if that will be the case or not, but I'll probably try it.
We decided to let my son just fly instead of driving, because he is on a time crunch and I can just imagine what a fix we would be in if we had car trouble. Then it would REALLY be hurry, hurry, hurry! We're going to reschedule it when we don't have to worry about the calendar. My son is so sweet, he said "I'll just take a semester off from school if I have to so we can do this" (even though he is in a hurry to graduate!). So, I won't worry about it any more. There's always other options, I need to always remember that.
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openheart so glad you got a good MRI report.
Jo so glad you had a good visit. I know you will be so glad to get this done and get back to looking normal. My PS is always on time as well. Only once have I had to wait and that was for the nurse not the PS.
I was toast last night and went to bed early. Got up this morning with DH and he cooked breakfast he left for work and I took a nap. This afternoon I have finally felt better. Did some bookkeeping work I was behind on. Got a call from one of the girls at my MO office wanting to get my mammo scheduled before my next visit. I informed her I have no breast to do that with. MO and I talked about my BMX at last visit but I guess he forgot to put it in the computer. I guess it is good they do stay on top of things. She just laughed and said yes that would be kinda hard. Said she would talk to my MO and see if he wants me to have an US which from my last visit with him I don't think he will. But none the less I told her if he wants me to have one I'd be happy to. Insurance covers them 100% so I don't care.
I have been off of tammi for 4 1/2 weeks and I feel so good. No aches and pains and mentally I am so much better. When I was talking to Jo earlier today I told her I don't know if mentally I am better because I have had the BMX and I am not worrying about that or if tammoxifen was effecting me mentally and I just did not realize it. As good as I feel I so don't want to go back on it. I have until the 23rd which will be 6 weeks off of it.
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Sandee, glad to see you, glad you are having a good trip!
Jo, you are getting closer to the big day! Have you joined a surgery group here? I found it extremely helpful as I was one of the last ones in the group to actually have surgery, so everyone was a few days to several weeks ahead of me, and it was very reassuring to know how much time it was going to take to heal, each step of progress, etc. Really helped decrease my anxiety.
Sherry, 1openheart, Odie, Shipmom, Tink, Paula, Allenan, Mumito, Heartsnsoul - and anyone I have missed - thinking of you all today. I have not yet recovered from the weekend, so am just stopping by briefly to see how everyone is doing - will be checking in when I can, keeping you all in my heart and prayers.
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Sherry, I have been off tammi just about the same amount of time you have been. Seem to have much improved hot flashes, although I am still getting some - about half as many and much less severe. I am still struggling with fatigue and pain, so I am wondering if it might be due to lingering chemo effects and not the tammi. Am seeing an integrative health nurse practitioner in a couple of weeks to see if she has any more suggestions. My PCP just says give it a few more months. *sigh* "But I have places to go, people to see, things to do!!!" and I can't do that when I am only functional for 6 hours a day! Had surgery 6 months ago, finished chemo 15 months ago.... seems like I should be doing better by now, but I only have a couple more weeks of teaching then get 3 months off, and am hopeful that will be what helps me kick this!
Gentle hugs to all of you! And a couple of WHACKS just to keep you all on your toes this week! (yes, I know it is middle of the week - SURPRISE!!)
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Hey ladies...
Thanks for the words of encouragement June .... Count me in on the pocket party tomorrow.
Congrats on the good MRI results 1openheart. Nice to get good news ...
Jo - I tried really hard not to giggle but being quiet is hard for me. Will try to do better Friday during the labs.
Sherry, be good to yourself and continue to take things easy.
Linda - Hang in there - Soon it will be summer and you can get some rest as well. Hard to believe our surgeries were 6 months ago huh? Just look how far we've come. Oh and by the way,
(((((( WHACK ))))))))))) back at ya !!!
Sending love to everyone. Have a great night.
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Junie heres your man candy, ENJOY and good luck tomorrow. Sending good thoughts your way girl!
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This is for us girls who will be waiting in your pockets June, but you can enjoy too, lol!
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Oh la la.....
Thanks for all the kind words about my good news. I really appreciate all of the encouragement.
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The pocket party was great! You ladies sure know how to throw a party.
Odie - You must have been too close to Tink's wings - they were tickling you. LOL!
1openheart - Great news on the MRI! That's what we all like to hear.
Linda - I did find a LD flap thread and the gals there have been so great and just a wealth of information. It has made this process so much easier. There were so many questions I was able to ask my PS and wouldn't have even though of some of the things if it were not for them.
Paula - You rock girlfriend. Maybe you can send me some next Tues - the day before mysurgery and I can dream about them. Hint! Hint!
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